Wow. Sorry this is long.....
I worked solidly after my degree, right up until a few years ago. I left on a 46k salary- peanuts to some, decent to others. For the record for where I live it's good. So obviously paid more in pension, tax and NI contributions, than some people I know, took home per month.
I now claim ESA and PIP.
Our lives have been turned upside down with my diagnosis(s).
We are going on holiday this year, for 7 days. Last holiday was 3 years ago. The holiday will be exhausting, but I can sleep for several hours during the day whilst dp and dc's go off and sight see etc.
The holiday isn't about me. It's about my dc. Giving them a break from the daily repetition. Me and my problems will still be there. But they have an opportunity to see somewhere different, taste different food, have new experiences. My dc's stopped being kids several years ago, when they had to 'step up' and start looking at things like an adult. They have to know my changes in mood, and when to seek further help, they have to know when it's appropriate to call an ambulance, they have to know how to move me correctly when I'm in spasm, they assist me with dressing on my bad days, and the list goes on with regards to personal care, cooking, cleaning etc.
So I'm guessing what people are saying, is that because I'm on benefits, despite paying in for years into the 'system', that I shouldn't save some of the money I receive, to give my dc's a 7 night holiday every few years. To give them some memories of us together, that is different from the ones they experience 7 days a week, for the rest of the year.
I have to laugh at the whole 'spending benefits' on 14 nights in Florida etc. I bloody wish! It would take me approx 4-5 years to save for something like this, unless we had family helping us.
And that's another thing. People are so quick to judge. But how many people are being supported by parents for example to have a holiday? Because truth be told, if my kids were struggling and I had the finances to support them, then yes I would help them and their children to go on holiday.
I just hope that for many of you who are quick to judge, that something doesn't happen to you. Because guess what- I wasn't planning on it! I didn't plan on having a man drive into me because he was in a rush, then having my injuries have a knock on affect and lead to a catalogue of diagnosis. None of you know if this could be you writing this in a few years time. Disability has no regard for whether you are old or young, rich or poor, black or white, male or female. Just thank your lucky stars you are healthy.
Sorry- rant over