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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

To ask if this could be Mirena Coil?

56 replies

Flockoftreegulls · 21/12/2017 07:40

Hi, been skulking around for ages, finally decided to join and ask for opinions. Am posting in ABU for traffic.
I have a mirena coil for heavy debilitating periods. I am 38 and for the last few months I have started getting periods again getting heavier. I have also had joint pain, horrendous PMT like feeling suicidal once a month, migraines, loss of libido and weight gain.
I wondered if it means that coil is not agreeing with me. Doc says perimenopause and has given me progesterone tablets. I have been taking these for a month but no change. She really didn't seem to be listening. She just seemed firm about not removing coil as she said well we will have terrible periods back. Tbh I would rather have them than feeling like I want to die every month.
I mean I am open to the idea of perimenopause, my mum had hers start early 40's. I just feel so awful like I am cracking up. It's not normal for a menopausal woman to feel suicidal every month is it? Am very stressed. Dh not being sympathetic, I think he just thinks I am a lunatic. Keep bursting into tears.
Alot of family stress at the moment, can't bother my mum with it because she has a lot on her plate right now.
Please be kind. Has anyone else had similar?

OP posts:
cakeymccakington · 21/12/2017 07:42

How long have you had the coil?

Original poster
Flockoftreegulls · 21/12/2017 07:47

Two years

OP posts:
cakeymccakington · 21/12/2017 07:50

I think it's unlikely to have suddenly started to cause such extreme symptoms tbh.

But if you want to rule it out you're totally within your rights to insist it's removed.

But then you may end up feeling the same AND having horrendous periods, which would be awful.

Maybe see a different GO?

cakeymccakington · 21/12/2017 07:50

GP even!

Soutty · 21/12/2017 07:52

Hi

I'm on the Mirena for endometriosis. I have had a little weight gain with it (water retention mainly, my rings are tight) but otherwise it has been a godsend and stopped my periods completely.

38 seems young for perimenopause. I would insist on having tests for your hormone levels to see if this really is the case and if it is and you are feeling this bad then you need some sort of HRT to make you feel better.

If you are still having heavy periods with the Mirena then there's no point to it. It sounds like it doesn't agree with you - if it was me I'd insist on having it taken out. The Mirena is life changing if it works but it doesn't work for everyone. A friend of mine who also has endometriosis had to have hers taken out.

Good luck.

Original poster
Flockoftreegulls · 21/12/2017 07:55

I can't face years of feeling like this. What am I going to do.

OP posts:
busyboysmum · 21/12/2017 07:56

I exactly the same problems with my Mirena coil and when I described them to my doctor she made an appointment for me to see her that day and whipped it out for me. So I would say it could well be the Mirena coil. My symptoms didn't start at the beginning they gradually built up until I was so socially isolated from my family I felt like I hated them all. And I've never been like that and as soon as I had it out I went back to normal.

busyboysmum · 21/12/2017 07:57

Im 48 btw and still no peri menopausal symptoms.

Original poster
Flockoftreegulls · 21/12/2017 07:58

Oh busy that's exactly how I feel

OP posts:
Original poster
Flockoftreegulls · 21/12/2017 08:00

I never even had PMT before I had the coil. I feel like I can't breathe

OP posts:
ChardonnaysPrettySister · 21/12/2017 08:00

I was ok with it for a year to two and then had the symptoms you describe.

If your periods are back to what it was before then what's the point of it?
Also, did the scan to see if it's correctly placed? It might have moved.

AuntyElle · 21/12/2017 08:01

You could also post on the menopausematters forum: www.menopausematters.co.uk/forum/index.php
Some good advice there.
Flowers

HulaMelody · 21/12/2017 08:02

I had a mirena coil for nine months. Each month I had it I felt worse. One day within a cycle feeling depressed and lonely turned to more and more until I felt grim full time.
Still have low times which I know are hormonal but I don’t feel like I’m held hostage now.

HulaMelody · 21/12/2017 08:03

I should add I’m not perimenopausal.

YellowFlower201 · 21/12/2017 08:05

I felt horrific on the Mireya coil. Just get them to take it out. You can go to a sexual health clinic and they'll do it for you.

YellowFlower201 · 21/12/2017 08:06

Sorry Mirena

Jerseysilkvelour · 21/12/2017 08:13

I had a bad experience with the Mirena coil too, PMT weight gain bloating like you wouldn't believe, and it got worse and worse as time went on. Cleared up pretty quick after I had it taken out!

In your situation I'd get it removed just to see what happens. You can always get it back again if needs be can't you.

Original poster
Flockoftreegulls · 21/12/2017 08:19

My periods are not as bad as they were. Initially I had none and they then started to come back and have gradually got heavier. Still nowhere near as bad as they were. I honestly think I am better off having heavy periods. At least that way I only felt bad for a week a month. Now I feel bad all the time. I can't stop crying today

OP posts:
MrTrebus · 21/12/2017 08:27

I've known a few women in my family and friends close circle who've tried Mirena and they've all had to have them out because of the hormonal effects it made them,in their words, complete miserable horrible bitchy women and they had them replaced with a non hormone coil (I've never had a coil and don't like the idea of them so I'm only really quoting from what they said)

InteriorLulu · 21/12/2017 08:38

In had my Miranda removed in August after developing similar symptoms to you OP. I'd had it in for 2.5 years, and I'd say that for the first 2 years of that everything was fine. It was there to help control my heavy periods.

The doctor did try to encourage me to keep it, but I insisted they remove it, which took a further 3 weeks for the appt. I now have a copper coil - and I was told horror stories about how bad my periods would be. Yes, they are heavier, but nothing i cant cope with. The trade off is that i have my life back.

Bunbunbunny · 21/12/2017 08:51

I got worse and more emotional over time with it, I realised it was a problem when I started bawling over a character dying in Casualty, it wasn’t a main character just one who had been on screen for 5 minutes! My periods did stop but was not worth it for ups & downs I felt. Feel 100% better for removing it

Quickchange1 · 21/12/2017 08:57

I had a terrible time with the Mirena. Every month I felt weepy but also nauseous, aching boobs and exhausted. Like being pregnant every month! But the complete worst was the headaches and migraines. They got so bad I ended up having an MRI scan!... after a bit of research I decided to have my coil out. All symptoms disappeared. My heavy periods are back they're annoying but I can cope. If you're having them anyway I'd get it removed pronto and maybe try the pill?

rizlett · 21/12/2017 08:58

I had bad problems with a Mirena even after it had been in for 18 months - have it removed - you can always get another one put in later if there is no improvement in your symptoms.

Jassmells · 21/12/2017 09:01

Have you tried mini pill? Worked for me and heavy periods. Get that thing out pronto.

Original poster
Flockoftreegulls · 21/12/2017 09:20

Thank you so much for the responses everyone, am going to have to be firm with the doctor. Am in Germany and it's a gynaecologist because you don't see the GP for stuff like this. I found her very dismissive which is totally different to how my lovely GP practice in the UK was. I will just have to be firm that I want it gone

OP posts: