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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be fuming at DS doctors/surgery - sorry long/rant

116 replies

HaudYerWheeshtBawbag · 28/07/2017 19:58

Going to Turkey next week, ds has prescription sun cream due to allergies, was prescribed by his dermatologist in 2012 and he gets 3 bottles every year.

Now I asked for his prescription on the 21st June, (alongside other medication) and his sun cream wasn't there, with another medicine that he needed, thought human error, ordered it again, went to collect it on the 28th June, got the medicine but no sun cream, again told the receptionist that his cream was't there, she said she will order it again and leave a note.

Went on the 3rd July to get sun cream, and again no script, I asked to speak to the practice manager as it will not be the 4th time I had asked for the cream, got told the PM was at another doctors but they would call me, in the mean time the receptionist said she will order it again.

PM didn't call me so I called again on the 6th June and requested a call back and asked if his scrip was available.... no it wasn't

Called my GP again on the 12th July, and the 13th July as still waiting and no script.

Went to the GP on the 18th July for the complaints procedure, and got a very rude woman, who said the PM was busy, and she will me when she can.

I asked for an appointment for ds1 and 2,, advised that it wasn't an emergency however I would need an appointment, she asked what it was for and I advised it was a private matter, she told me she could not give me an appointment without me telling her.

I said is there a private room we can have (waiting room busy, and in my practice, there is 4 other GP practices) she told me No, so I advised that I would not be disclosing there complaints to a full waiting room. She told me she would not give me an appointment, at this point another receptionist came over I explained and I was given an appointment for today.

Ds1 has been referred to hospital (he has a undescended/retracted testicle) so possibly need surgery as he is 11 and having some discomfort with it now.

ds2 I needed some antibacterial cream as his skin is infected, he also needed his cold sores to be checked out, as he gets one and as soon as we get it cleaned another turns up, however pretty horrific. (ds2 has a compromised immune system, so cold sores are common for him, however currently they are horrific)

While at the doctors, I also asked about his sun cream, doctor advised that sun cream is now no longer provided by the NHS and he would need to be seen by a dermatologist, I advised that he is under this and it was then who had given him the script. He said he could see this, however it needed to be reviewed every 3 years, and it would be rare that it will be given out now.

I advised that if I was told this at the time (21st June) I could have had ds on trial creams, however could not do this

I said I could under stand this, however we go on holiday in 8 days... he said he could not help and that it was the NHS who had stopped it.

I advised if I was told this on the 21st June, I could have spoken to his consultant, however couldnt do this with 7 days to go. GP said I would just have to try, or he could give me a private scrip, which I have taken and paid £78.78p for 4 bottes of 120 ml sun cream to last him the 4 weeks!!! AIBU to be fuming at the doctors for this

And to make matters even shittier, ds left his wallet on the pharmacy desk, and a woman has stolen it, caught on CCTV, pharmacist seen her with it, and knows who she is as she handed a prescription in, so got the Police coming to me tomorrow also for this (alot of money in his wallet as he just had a special event)

OP posts:
JaneEyre70 · 28/07/2017 21:58

My grandson has similiar looking skin, and DD has had an absolute nightmare trying to get sunscreen this year from our GP and gave up. Thankfully he was given Sunsense before which we've managed to get from QVC at a good price. It's made him going to nursery hard too, as if he has to have something different to the other kids, it has to be in the pharmacy bottle and with confirmation from the GP he needs it. Talk about going round in circles.

Groupie123 · 28/07/2017 22:00

He needs the sunscream. It's not available on the NHS so you pay for it. I don't see the issue here - there is currently a 50 per cent sale on the Sunsense official website.

2rebecca · 28/07/2017 22:02

eczema is not a photosensitive dermatosis. Polymorphic light eruption is a photosensitive dermatosis. It's skin conditions that are triggered by UV light.

AnotherLegoBrick · 28/07/2017 22:03

This link explains it a little better

patient.info/doctor/photodermatoses

Your son has eczema, but the eczema isn't caused by the sun, he would have it regardless.

The bill to the NHS would be huge if every eczema patient has sunscreen on prescription.

We very rarely see prescriptions for sunscreen - it is usually now for patient on drugs which react with the sun. Five years ago we had a dozen or more patients.

AnotherLegoBrick · 28/07/2017 22:04

Then you need to find another pharmacy - there is no need for such a delay.

24 hours would be the max I would expect to wait.

ReginaGeorgeinSheepsClothing · 28/07/2017 22:05

I have SLE I need total sunblock-- I couldn't justify getting this on script; but then again am sadly never going to go to any hot sunny countries as its just not a good idea.

YellowLawn · 28/07/2017 22:07

It's not available on the NHS so you pay for it. I don't see the issue here

the issue is that previously the op received this on prescription and she wasn't told that it's no longer available on prescription. despite asking about it numerous times.

HaudYerWheeshtBawbag · 28/07/2017 22:07

His cream isn't sunsense!, the issue is he has/had it on prescription, however as he is currently 7 months past his last testings, they want him re-tested! which he will need to be admitted to hospital for, bloods took and tested for.

This rule was only brought in Dec/Jan due to NHS prescription changes, I was not informed of this, I've waited a month to be informed of this, 7 days before we go on holiday!

The stupid thing is, he meets the criteria going by the criteria it seems! however they wont give him it as he needs retested, which I would have done, if we knew about it.

Trust me, money isn't a issue, its the whole farce of system!

OP posts:
AnotherLegoBrick · 28/07/2017 22:09

I really don't think he meets the criteria - sorry

HaudYerWheeshtBawbag · 28/07/2017 22:09

Just as easy as that anotherbrick eh Hmm

Considering we only have one stockist in my town who I could purchase it from!!!

OP posts:
HaudYerWheeshtBawbag · 28/07/2017 22:10

Well you must be reading something I am now, cause from where I am reading he clearly meets the criteria!

OP posts:
HaudYerWheeshtBawbag · 28/07/2017 22:10

not

OP posts:
lazydog · 28/07/2017 22:11

FluffyPineapple - I think you have a very different definition of strong painkillers to most people. I wouldn't consider paracetamol (even with the "extra" tag, which just means caffeine, doesn't it?) or ibuprofen as strong painkillers.

You're right - makes no sense to get prescriptions for either of those OTC type medications.

shouldnthavesaid · 28/07/2017 22:11

I agree that paracetomal and ibuprofen can be bought easily in any corner shop.

However they are very far from strong painkillers - they're basic analgesia.

Oramorph, fentanyl, MST , gabapentin, oxynorm , short tec etc - they are strong painkillers. Strong painkillers - for chronic severe life limiting pain - are inevitably prescription only and the majority are also controlled drugs in the UK meaning they are kept under very strict legal control. I work on a critical care ward in an NHS hospital.

Being able to afford to buy basic OTC analgesia and skin preparations is good and if you are willing and able to do this then that's great.

Unfortunately though most people with chronic severe diseases requiring frequent medications or supplies (feed or build up products, dressings, sharps, lancets , pads , specific skin preparations etc) can't afford them - more so with government cuts to PIP which would be for this sort of need. I am imagining if OP's son jas required multiple grafting he does need a lot of medical care.

Some products can cost an absolute fortune. I know of somelne quoted £3.68 for a single dressing - one dressing, not a box. For someone on income support or JSA that's not feasible.

We shouldn't be slating those who can't afford to keep up with their healthcare needs at all.

I do agree that tigjt controls are needed anf it may wrll be NHS wont provide specific sunscreen anymore via prescription but OP should have been informed in a timely manner.

cantkeepawayforever · 28/07/2017 22:12

I lived in Dubai when my skin was like that (it is rarely so bad now, and only on my hands).

In those days, the prescription was to be wiped down in olive oil and bandaged. All over - wrist to shoulder, neck, round the torso, both legs separately. Soaked in the bath every night to ease the ooze-encrusted bandages off, and repeat. I suppose it DID keep the sun off, but smelling like a hot sweaty salad never made friendships any easier....

AnotherLegoBrick · 28/07/2017 22:14

Well you must be reading different guidance to me.

Good night.

cantkeepawayforever · 28/07/2017 22:16

[Sorry - irrelevant to thread, but the photo was triggering! I am not allergic to sun, but am allergic to almost all skin preparations including all makeup, most sunscreens and the vast majority of emollients. I am prescribed emollients, but the sunscreen has been a case of trial and error and pay. The old E45 chemical sunscreen - the white paste one, like cricketers put on their noses - was a particularly memorable stage...]

lazydog · 28/07/2017 22:16

HaudYerWheeshtBawbag - I think YANBU at all to be fuming at the crappy rudeness and shoddy treatment you've received, and the last minute rush/panic that's now ensued, but I don't think having to buy it yourself (if that's what the NHS's decision comes down to, in future) is unreasonable.

shouldnthavesaid · 28/07/2017 22:17

Oh God a friend of mine had that a few years ago (2011 or so) , he was admitted to dermatology unit for 5 nights and smothered in olive oil and bandages head to foot. Can't remember if it helped a lot. He said he'd never appreciated a shower more!!

Holidayhell1 · 28/07/2017 22:17

I believe anything that can be bought Otc is no longer prescribed as obviously the script isn't needed.

OhTheRoses · 28/07/2017 22:17

The NHS becomes a bigger are by the minute.

I have thyroid disease and have to have Levothyroxine/thyroxine. This means every prescription I need is free.

DD has suffered from depression and anxiety (16/18). She was cutting and od'ing. CAMHS refused support and told me to get her a therapist off the internet. I didn't we got her a psychiatrist. £3k later dd took a tiny o/D because she was anxious about exams and 26 hours later took herself to A&e to make sure she was OK and hadn't harmed herself. They wanted to another overnight with a 1:1 mh nurse for an emergency CAMHS review. The same CAMHS who had refused to help her nine months previously. The doctor felt she was fine. It was just a protocol that ill informed and undereducated nurses had rocked into place because they didn't knkw betted or that 16/17 year olds could be assessed by the on site mh liaison nurse.

Resources my back side. They need to stop wasting them before whining about lack of them. Oh yes and having assessed the following week CAMHS did sweet fa for three months.

The system has turned into a stinking joke.

shouldnthavesaid · 28/07/2017 22:21

Paracetomal still is - I get sent home with a box after discharge (I have been admitted a few times with severe pelvic pain for morphine and obs). Reasoning they gave was that I live alone and wouldn't be immediately fit to visit Boots . That said I keep a box in hoise at all times. . Think this is same for most patients - they accept a visit to pharmacy or shop might be impossible (not everyone lives near one , not everyone has a friend to drive them, not everyone can afford a taxi) so you get enough supply for a few days .

Some people are also prescribed very large packs (100 or so) due to afore mentioned difficulties.

Hulder · 28/07/2017 22:22

Sorry I would read that as him not meeting the criteria and would suspect his GP would too.

However mucking you about by saying his prescription wasn't in when clearly it was never going to be in was crap of the surgery - they should have said that the NHS criteria had changed at the outset. And making you pay for a private script for something you can buy over the counter is also crap.

Consultants generally live in blissful ignorance of what is and isn't banned on local formularies until an irate GP rings them up and asks them what they are playing at prescribing something that isn't funded.

Wheelycote · 28/07/2017 22:23

AngryHmm

YellowLawn · 28/07/2017 22:26

Consultants generally live in blissful ignorance of what is and isn't banned on local formularies until an irate GP rings them up and asks them what they are playing at prescribing something that isn't funded.

yep. consultant/gp pingpong is disturbing.

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