Charlie Gard 9

[muckypup73]

Hi guys new thread.

Let's try to keep this one as sensible and measured as the past 7 threads have been.

Please note the MNHQ comment on thread number 7.

"Hi everyone,

..... We had to remove several parent-blaming posts, so we'd like to ask folk not to do this. We think we can all agree that this is a truly awful time for all involved and we just wouldn't wish it on anyone. If there's anything we could do with more of, it's support. We'll continue to remove reported posts that break TGs (if we've missed something, do feel free to let us know).

If we have to make too many deletions, we will need to look at removing the thread; which is the last thing we wish to do.

Thanks all"

If Charlie becomes a US citizen could GOSH charge him for his ongoing care?
I happen to have dual US / UK - I got my UK one relatively recently.
UK citizens get their NHS number at birth.
Immigrants like me get theirs when they are given leave to remain.
Charlie will always be British because he was born here to British parents.

Stupid thing though - to get a US standard passport photo they would have to take out his ventilator and sit him up with no part of any other person visible and get it taken on a camera that prints on the correct paper and size (phone photos specifically not acceptable)
its a right palaver when I renew mine

rabbit, yes UKIP guy.

Link here :

news.sky.com/story/gard-spokesperson-baby-charlie-is-effectively-a-prisoner-of-the-state-10949732

they're wording it slightly differently on the tv news, where I showed a quote it was typed exactly as they were reporting it.

Parents have released a statement that Charlie is being held hostage??!!

Cheers GinSoakedTwitchyPony

I'm pretty sure that UKIP bloke has used that hostage phrase in a Fail interview recently.

I'd love him to show us all where this private hospital, with any ICU, let alone a PICU is that they could have just walked out of had they have been rich people.

They really aren't helping themselves with this. Why are they allowing this dick to release statements like that on their behalf? The best thing they could have done this weekend would have been to have kept completely quiet.

What was the point in that?!

I expect the Judge is banging his head against the wall right now

The pastor has been allowed to pray for Charlie at his bedside before - although not straight away, much to his indignation. There are pics of this. Behind him is the curtain dividing Charlie from the next bedspace - you can see the end of the bed. The bedspaces are very close.

If he is saying he is not being allowed in again, I can only imagine that he was a disruptive presence the last time.

If he does the sort of praying beloved of the evangelical types, it's not exactly quiet is it? I wouldn't want to be sitting at the next bed with my desperately ill child and bevforced to the paster calling for the Lord to intervene for Charlie and deliver him up unto God's Own USA, where hevwill be cured

He may even have tried visiting/calling down the Lord for the other patients. Pure conjecture of course but I wouldn't put it past him.

I think most of us are speechless right now.

Will do Light

No writer, strictly speaking, no.
A family spokesperson has said that. It's his opinion, not the family's.
Another here I think!

After some sleuthing on Twitter I think I might know what that American woman (CHF) was tweeting about. From what I can see there are rumours that Charlie's guardian's barrister (Victoria Butler-Cole) has advocated for "Death with Dignity", a pro-euthanasia group, and CA supporters are saying it's a conflict of interest for her to represent Charlie.

It is clear they think pressure from America is their best hope. I don't think it will work but it could get Trump and co tweeting.

Fairy there's a still of video from yesterday within the article, so I think he may have said it outside court at some point yesterday? I'm not able to view the video at the moment.

This whole thing is getting so nasty now. Poor Charlie stuck in the middle of this.

I thought the Gards had something approaching 2 million quid in their bank account. How much richer does he think they need to be?

Having just looked up Victoria Butler Cole, she's advocated for darned near everybody
which makes her as impartial as you can get IMHO
www.39essex.com/barrister/victoria-butler-cole/#misc-cases

The different perspectives are interesting: I read Joshua Rozenberg's tweets and saw the procedings as disastrous for the parents based on this. But he's written an article for Sky about how much they've achieved in getting Connie Yates and the NY doctor in conference with GOSH. Strange as it seemed to me as (1) the chance of him revealing some kind of breakthrough that GOSH were unaware of are vanishingly small and he has much more obvious motives for recommending treatment which is not therapeutic than GOSH have for withholding it and (2) I can't imagine how Connie could cope, sitting silently, hearing that her baby has catastrophic brain damage, in the belief there is a high level conspiracy to murder him. It's a strange position for him to take given that numerous courts have already ruled, in effect, that to keep Charlie alive in this way is illegal.

"Prisoner of the state"?! Ffs 🙄

Sand I'm pretty sure there's a reference to the medical decision not to move to a tracheostomy and the reasons in the original judgement if you want to take a look there? Sorry I can't remember exactly where.

Really not sure how the family's legal advisors think this is going to help their case - or if at this point the family are taking much notice of legal advice. Wtf are they thinking?

Bore - my thoughts too. I wouldn't be surprised if some of the other families have complained about him.
I can't remember the rules at our NICU but on SCBU only 2 people were allowed at the bedside.

In the interests of fairness there is some truth in that statement but it has been twisted to suit the parents narrative. It's very sad.

The 'prisoner of the state' announcement is really offensive. Have they been asked to pay for any of the (very expensive) care Charlie has received from the NHS to keep him alive? No, and without that, in the American system, he'd have died long before now as insurance would have reached its limits. You can't have it both ways and benefit from care that's free at the point of use, regardless of income, and then start complaining about how you're poor and don't get rich people's privileges. Perhaps they'd like to be presented with a bill for Charlie's treatment as they leave for the US? This attitude towards the NHS is utterly wrong.

My guess re-trachey:

It's another procedure, it involves cutting through the neck. There are lots of benefits to a trachey for lots of people and they outweight the risks of taking a scalpel to the throat:

• You can speak (by temporarily blocking the trachy to push air through voice box)
• You can go out and about easier
• you can move your head/face
• it's more comfortable for people who are awake/conscious, also more dignified as can be covered with a scarf/bandana
• it can be cared for in the community

^ Charlie wouldn't have those benefits though, he'ld still be laying there, not talking, not moving

CA keep posting pics of smiling kids with tracheys on fun days out with the family, as if a trachey would make all of that possible for Charlie! Suddenly he'ld be awake, sitting up, with neck control, smiling and laughing - if only huh?

The Gards are being very poorly advised by their opportunistic American friends.

They do not understand the British way.

I predict this latest stunt will get people's backs up. I'm just waiting for Fathers for Justice to weigh in now.