Its just bonkers.
He's not fit to fly. No Dr in their right mind, with Charlie's interests at heart would sign it off. No insurance company would OK it (OK, maybe US ones would with their own self-interests at heart)
Even if they bring the "wonder drug" to the UK, who is going to administer it? Its untested, so I doubt Drs at GOSH would be prepared to do it as they cannot be certain that it is harm free (Hippocratic oath: reject harm).
Someone mentioned upthread about the Michael Jackson effect and its a valid point, surrounding themselves with "yay-sayers" to convince themselves and the huns of CA of their own delusional beliefs.
The Reverend Mahoney, who they've dragged onboard said on his gofundme "Tragically, the courts, hospital officials, and government bureaucrats have forbidden Charlie's parents from seeking this cutting-edge experimental treatment allowing Charlie to have a chance at a better life. Our public institutions should never usurp the rights of parents "
This last line is the bit that gets me. What are the rights of Charlie's parents? Zero. It is Charlie who has the rights, not them. I'm beginning to wonder if needs protecting from them, as previous posters said, becoming a ward of court. This circus is now like some kind of reverse variation of Munchausen by Proxy syndrome.
The only thing certain in life is death and taxes. It is so cruel when its a baby. When my DGD was receiving palliative care in the hospice, it was the saddest thing ever to let this legend go, but I had to. Preserving their painful, unconscious existence when their body had failed did not benefit DGD nor me.
That poor baby.