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Charlie gard case thread 2

954 replies

Fancythat69 · 08/07/2017 20:22

The last thread is full, Not sure if another has been started.

Theres a CA rally at GOSH planned for tomorrow. What are these people on?

Charlie gard case thread 2
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16
Stopnamechanging · 10/07/2017 11:43

I agree,it's tough though,not giving in to the vile trolls who spout utter disgusting crap,but after the countless times I've bitten and got into rows with people,while trying to educate them (you'd be surprised how many people with such strong negative opinions know nothing!) I've learned they aren't worth the energy,my time is better spent sharing posts and showing my support to Charlie's Army,an army I'm incredibly proud to belong too,and staying positive
💙💙💙💙💙💙💙💙💙

Hmm
ShatnersWig · 10/07/2017 11:45

Stopname I do wish you'd preface your copy and pastings from the CA FB page as you know it has resulted in people thinking you are posting that stuff here yourself as your own views. It's really confusing. And put it in exclamation marks rather than emboldening the whole thing.

thatdearoctopus · 10/07/2017 11:47

I suppose it's only to be expected, with the general level of intelligence and literacy displayed on the CA FB page, that they've interpreted "enjoying looking at the ipad" as meaning he's sitting through and reacting to whole episodes of Peppa Pig.

Nquartz · 10/07/2017 11:50

What I still don't understand is that Chris says so emphatically that Charlie doesn't have catastrophic brain damage yet how can he explain why Charlie can't do anything for himself, even something so vital as breathing on his own let alone move, talk, etc.

I agree with a PP (sorry, can't remember who, it was a few pages ago) about the people interviewing Connie - why don't they challenge what she is saying when she is contradicting herself and seems to be blatantly lying/making stuff up.

Lexieblue · 10/07/2017 11:54

Nquartz I'm not arguing he doesn't have brain damage (think the medical professionals have been explicit in this) but my limited understanding of this condition is the reason for Charlie being unable to breathe unaided is functional (mitochondria fuel the muscle cells needed to perform respiratory function) rather than brain stem issues, but am ready to be shot down and corrected on this point.

Goldmandra · 10/07/2017 11:55

why don't they challenge what she is saying when she is contradicting herself and seems to be blatantly lying/making stuff up.

They are probably scared of being seen to be having a go at a poor parent whose baby is dying.

It is also possible that the publicist has agreed rules in advance of what they can and can't say. I bet the tv stations are clamouring for interviews with the parents so they can probably set whatever conditions they want..

LogicalPsycho · 10/07/2017 11:57

I was debating whether to ask why on the CA when they're comfortable posing with sunglasses on staring at their child, comfortable posing under a "Suffer little Children" church quote, when they are comfortable to be photographed commanding the bunch of wankers who picketed a Children's Hospital Angry Why they are suddenly too shy to release a video of Charlie sat enjoying himself watching his iPad?

It would be the evidence that swayed a lot of people but it doesn't exist

LogicalPsycho · 10/07/2017 11:58

*on the CA page.

DonutCone · 10/07/2017 11:58

The iPad comment is just ridiculous. He is deaf, he opens his eyes for a second every now and then, but probably can't actually see.

Unless the iPad has smell o vision I really can't see what he could possibly be getting out if it.

No doubt on Thursday will be appeal. What a few more weeks for a baby who can't see, hear or move to be left lying there. A part of me wonders if they're are desperate to get to his birthday. They seem to need the photos of all the events. Maybe if they have the entire first year collect they will have enough to let the poor child go.

Lemonading · 10/07/2017 11:58

In the Terri Schiavo case which has been referenced on the thread a few times, her parents were adamant that she was responding and could see them, they even had videos they said showed her responding. The post mortem confirmed it couldn't have been true because huge parts of her brain were missing. That case dragged on for years and years and her husband was accused of all sorts.

Lightlovelife · 10/07/2017 12:00

Dorothea just quoting their email. I have not signed any petition about this case, and don't intend to.

JaneEyre70 · 10/07/2017 12:02

OMG surely they can't go through the whole appeals process again Shock

DonutCone · 10/07/2017 12:03

The Terri Schavio case was awful. Her brains cans showed that almost the entire brain had died.

They look 6 hours of footage for the trial and they only found a few minutes in total of her showing any forms of reaction. She absolutely no quality of life at all. This to me is another example of parents not able to deal with their pain right now, so wanting to keep someone alive in an horrendous condition to postpone their suffering for a bit longer.

Stopnamechanging · 10/07/2017 12:04

Apologies ShatnersWig, I have been here for 14 years and it's always been common to bold quotes on here but I have taken on board your criticism.

LogicalPsycho · 10/07/2017 12:07

Just how do people who are both blind and deaf, get any joy or interaction out of a smooth glass screen?

Until there are braille iPads with intercochlear implants attached, they are deluding themselves and it's tragic.

Goldmandra · 10/07/2017 12:12

OMG surely they can't go through the whole appeals process again

I would hope that, unless they could show that due process had not been followed, they wouldn't be given leave to appeal again.

I feel for the parents but more and more for the GOSH staff. They are being required to put a baby through treatments that could be causing him significant distress and that they feel are unethical. What a position to be in.

I expect this will play out for a while longer but it would be so much better if the courts order today that ventilation is withdrawn immediately so that this family can get on with grieving their loss and GOSH staff can start to return to some semblance of normality.

ShatnersWig · 10/07/2017 12:13

Stop No apology necessary. I use bold myself for short bursts of quotes, I'm more concerned that without prefacing, people will think those are your views, as has already happened.

Doubledottvremote · 10/07/2017 12:15

logical yes but he posts lots of religious stuff on his fb page therefore is a good person. He was posting messages of support about Charlie Gard to them...but on a completely different page it was for a wee girl called Charlie who is about 4ish and has long curly hair. How he thought that was baby Charlie's photo I have no idea.

He's going to write a book next year when Charlotte is 16.

GlitterDustFairy · 10/07/2017 12:17

Just following on from @meddie says about transfers. Absolutely correct, transferring a critically ill patients is not just as simple as taking a patient off the unit, even for a scan in the same hospital every eventuality has to be considered, never mind trans Atlantic. I'm also guessing that he will need to be sedated (if he isn't already for tube tolerance; which if he isn't poses further questions into his condition. Someone correct me if I'm wrong regarding sedation and nasal intubation). Paralysing agents may also be required which in turn affect blood pressure and renal function.

Also, regarding oxygen delivery and ventilators
They can be manipulated to deliver whatever oxygen concentration is needed from room air to 100%. There are also different modes of ventilation depending on the patients respiratory status.

flimflaminurjams · 10/07/2017 12:19

Its just bonkers.

He's not fit to fly. No Dr in their right mind, with Charlie's interests at heart would sign it off. No insurance company would OK it (OK, maybe US ones would with their own self-interests at heart)

Even if they bring the "wonder drug" to the UK, who is going to administer it? Its untested, so I doubt Drs at GOSH would be prepared to do it as they cannot be certain that it is harm free (Hippocratic oath: reject harm).

Someone mentioned upthread about the Michael Jackson effect and its a valid point, surrounding themselves with "yay-sayers" to convince themselves and the huns of CA of their own delusional beliefs.

The Reverend Mahoney, who they've dragged onboard said on his gofundme "Tragically, the courts, hospital officials, and government bureaucrats have forbidden Charlie's parents from seeking this cutting-edge experimental treatment allowing Charlie to have a chance at a better life. Our public institutions should never usurp the rights of parents "

This last line is the bit that gets me. What are the rights of Charlie's parents? Zero. It is Charlie who has the rights, not them. I'm beginning to wonder if needs protecting from them, as previous posters said, becoming a ward of court. This circus is now like some kind of reverse variation of Munchausen by Proxy syndrome.

The only thing certain in life is death and taxes. It is so cruel when its a baby. When my DGD was receiving palliative care in the hospice, it was the saddest thing ever to let this legend go, but I had to. Preserving their painful, unconscious existence when their body had failed did not benefit DGD nor me.

That poor baby.

teaandakitkat · 10/07/2017 12:22

If Charlie died on a plane to America would that be a terrible thing? In the context of his other awful options. If his alternative is months on a ventilator while people fight over him and his parents run themselves into the ground with their protests? Or his ventilator being turned off while his parents are dragged out of the room by hospital security?

At the end of the day the people who have to live on are his parents. Charlie will be gone. So would giving them a tiny bit of peace knowing they had tries absolutely everything be such a bad thing?

I don't know, I don't know whether any one death is better than any other when you are profoundly brain damaged.

And I don't know why I am beginning to change my mind a bit, the situation is just so horrific for everyone. So many people (parents, family, medical staff) will be so traumatised by this far into the future.

11122aa · 10/07/2017 12:23

Ive just had another Thought. I could see the Army wanting to bring out a charity single.

Lexieblue · 10/07/2017 12:27

I'm surprised this hasn't happened already tbh 111 but as the judge did say it has never been about money. The fundraising didn't need to happen per se GOSH were ready to apply for ethical approval to give the treatment.

I wonder what .CA hope money will be used for since treatment is apparently on offer for free? Be much better used to reimburse legal fee to GOSH or fund research

sodablackcurrant · 10/07/2017 12:28

I think the little boy should be in a children's hospice. I don't know what treatment he is getting that warrants an ICU bed, but others might know.

Surely a lovely hospice dedicated to terminally ill children would be so much more dignified than a busy hospital at end of life, for that is what it is now.

I know many will disagree with me, and I am sorry A. if I don't know the extent of the treatment he is getting that could not be provided in a hospice, or B. If anyone thinks I am heartless and unfeeling.

Far from it, I said what I said because I feel so much for the poor mite, he is just a pawn in all this and it is quite distressing to see.

LapinR0se · 10/07/2017 12:30

Oh NO why are these fuckers getting involved???

Charlie gard case thread 2
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