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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to be confused about friend's reaction to autism diagnosis

103 replies

ToeKneeChestNut · 02/07/2017 22:02

NC, as this may be outing.

Friend visited today, who I haven't seen for a few years. Her DD (age 9) has recently been diagnosed with ADD, although they just refer to her as autistic. The younger DC is NT.

The visit was all about how exciting it is to have her DD diagnosed as having ADD and what a wonderful thing it is. She says that her DD will be very creative, will be a huge success in life and will make "a fortune", whereas children who are "unlucky enough to not be on the spectrum" will reach mediocrity. She said that the fact that her DD really struggles to keep up at school is "fantastic".

Her DD went through four or five pairs of knickers during the visit, as she is too distracted to remember to go to the loo. Again, this was described as part of the "adventure". I really am quoting here.

Of course I just went along with it, but the whole thing seemed excessive and even a bit manic. I'm very pleased that they have a diagnosis and I hope it help a lot. But I don't understand the feel of celebration that's come with it. I also resented the digs at academically-minded DC, but can let this go as I think my friend didn't mean to be insensitive.

So, AIBU to be confused? Or is this genuinely a wonderful thing and I don't appreciate the implications of having ADD?

OP posts:
VestalVirgin · 02/07/2017 22:29

Totally in denial.

Doesn't come across as consciously just wanting to make the child feel better about it, to me.

More like being totally deluded.

Ignore it as best you can.

ToeKneeChestNut · 02/07/2017 22:34

She has a meeting with the school about the wobble chair soon, she said. Maybe she'll find out more about her DD's diagnosis then.

OP posts:
LonnyVonnyWilsonFrickett · 02/07/2017 22:39

I can see where she's coming from. I have to be careful not to tip into manic over-cheerfulness about DS autism, particularly when either of us are stressed. When you are in a dark place you hold onto the light so hard it burns your fingers. Give her time, support her if you can, and hopefully she'll be able to regulate it a bit when things sink in.

ToeKneeChestNut · 02/07/2017 22:43

Thanks Lonny, I will. Thank you for the insight.

OP posts:
TooStressyForMyOwnGood · 02/07/2017 22:44

Lonny's post explains it better than I could.

Goldmandra · 02/07/2017 22:45

She has a meeting with the school about the wobble chair soon, she said. Maybe she'll find out more about her DD's diagnosis then.

That's unlikely. Parent usually have to educate the teachers about their child's needs following this sort of diagnosis.

I couldn't speak the word 'autism' for six months after DD1 was first diagnosed. Coming to terms with a diagnosis is similar to grieving. There are different stages and we all experience and manage those stages differently.

I would just chalk this up to your friend finding the news a bit difficult to process, give her lots of opportunities to talk about it and, hopefully, she will appreciate that support and stop feeling the need to paint everything in such a positive light.

ToeKneeChestNut · 02/07/2017 22:46

My friend has just sent me this:

Thank you for lunch today. (children's name) enjoyed playing with (my children's name) and it was great to chat to you. we needed a good catch up!

In addition to the challenges, there are also positive traits associated with people who have attention deficit disorder:
Creativity – Children who have ADHD can be marvelously creative and imaginative. The child who daydreams and has ten different thoughts at once can become a master problem-solver, a fountain of ideas, or an inventive artist. Children with ADHD may be easily distracted, but sometimes they notice what others don’t see.
Flexibility – Because children with ADHD consider a lot of options at once, they don’t become set on one alternative early on and are more open to different ideas.
Enthusiasm and spontaneity – Children with ADHD are rarely boring! They’re interested in a lot of different things and have lively personalities. In short, if they’re not exasperating you (and sometimes even when they are), they’re a lot of fun to be with.
Energy and drive – When kids with ADHD are motivated, they work or play hard and strive to succeed. It actually may be difficult to distract them from a task that interests them, especially if the activity is interactive or hands-on.
Keep in mind, too, that ADHD has nothing to do with intelligence or talent. Many children with ADHD are intellectually or artistically gifted.

Good news!!!!!

Don't be a stranger!

(her name and kisses)

OP posts:
ToeKneeChestNut · 02/07/2017 22:48

Maybe she really is just excited by it all. I hope so. She is a very nice person and her husband is also very friendly and sociable.

OP posts:
eeniemeenieminiemoe2014 · 02/07/2017 22:51

my daughter is very likely to be diagnosed ASD in the next few months. It hasnt really sunk in yet but I do hold on to the positives like the fact she is scarily intelligent and her memory is absolutely incredible. I look at her repetitive behaviours as being her quirks and try to ignore the downsides and just focus on the here and now. but yoir friend sounds completely in denial

HateIsNotGood · 02/07/2017 22:52

I don't know how it feels to have a child diagnosed with ADD but I recall that when ds was firmly diagnosed as being/having autism at the age of 8 I felt a numb vindication. I could possibly have felt celebratory but life dealt us a different deal.

I still have to 'explain' to some - nearly a decade later - that really if I had a choice my ds wouldn't be autistic. That the apparently 'normal' teenager you think you see is the result of years of training/sacrifice.

YANBU and neither is your friend.

SerfTerf · 02/07/2017 22:53

I think it's about you. She's trying to educate YOU.

notanevilstepmother · 02/07/2017 22:54

It sounds like she is trying to put a positive spin on it for her DD.

Fwiw I have both ADHD and autism, they are not the same and you can have one or the other or both.

ADD is also known as ADHD primarily inattentive.

There are good sides to ADHD, but there are difficulties too. I guess she has had enough of thinking about the difficult side of it and wants to think positive. -Maybe she is a bit deluded- but dwelling on the bad stuff doesn't help I guess.

Anyway good luck to her, and her DD. Maybe she is a bit hyperactive herself, these things can run in families. Ask if there is anything else, happy to answer it from my point of view as an adult with ADHD.

Megbert · 02/07/2017 22:54

She may be terrified of pity.

I was when DS2 was diagnosed with ASD not too long ago.

He was still his wee self to me and the thought of people's faces falling and them saying 'I'm sorry' like he was broken or something was too much for me to handle.

I just kept repeating 'It's fine! He's fine! We're fine!'

notanevilstepmother · 02/07/2017 22:55

I wouldn't like my mum to say she would prefer it if I wasn't Autistic, it's a big part of what makes me me.

notanevilstepmother · 02/07/2017 22:56

Exactly, I'm not broken, I'm just different to some people.

DrinkFeckArseGirls · 02/07/2017 22:57

Did you say sth that could have triggered her response?

WhiteMane · 02/07/2017 22:57

Add and adhd are the same condition. People are either diagnosed as being predominantly hyperactive type, predominantly innatentive or combined.

Asd is a related neurodeveoplment disorder that has a high comorbidity with asd.

There is a school of thought, more US than here, that all nuerodevelopmental disorders are just different types of autism. That school of thought is not held up within dsm or icd where they catagorise asd and adhd seperately.

Neurodiversity was coined first by a person with asd to look at asd as a positive development rather than a disability. It is used now for all developmental disorders and to a lesser degree for mental health problems.

Sounds like your friend is trying a bit too hard to look at the positives of nuerodiversity. Maybe to overcompensate for her fears for her dc or maybe because she recognises these traits in herself and has found them useful. Give her sometime to adjust and find her middle ground. Being wired up differently is both awsome and incredibley disabling all in one. It's alot to process. If you can't cope with her way of processing it all give her space but bite your tounge.

WhiteMane · 02/07/2017 23:00

Not I'm totally with you on that one. As a parent with and off children with both asd and adhd.

Megbert · 02/07/2017 23:01

I wouldn't change anything about DS2 either, notanevilstepmother and I'm sure your mum feel exactly the same. Smile

Megbert · 02/07/2017 23:01

Feels*

Doh.

Xmasbaby11 · 02/07/2017 23:05

I think she's trying to look on the bright side. When you read her points, they aren't that positive after all 'life with them won't be boring' - that's just another way of saying they''' keep you on your toes!

My DD is likely to be assessed for ADHD and atm the difficulties outweigh the positives. Her lack of attention is a problem in every area of life and really hinders her. Basically life is trying to manage the difficulties so she can lead as normal a life as possible.

HateIsNotGood · 02/07/2017 23:06

notan - yes I understand that feeling. I'm just posting here how I feel - it's taken nearly 10 years to just write it. My son doesn't know, but I can feel and think that way, for his sake, for his sake I wish that his life wasn't more difficult than it could have been. That's all. I'm his Mum and love him more than anything else and will continue to train/sacrifice until the day I die. Hopefully he won't need me so much and can be independent before I die.

blankface · 02/07/2017 23:08

You can create a tiny bit of wobble/ movement in a chair by putting a folded up bit of card under one leg. Cheaper than buying a wobble chair to give it a try
Hmm

What they are discussing is an air-filled cushion which when placed on a chair or on the floor will give the child enough proprioceptive feedback that will enable her to concentrate. They are often wedge-shaped as those also help to create good posture.
www.sensorydirect.com/2015/05/what-are-wedge-cushions-and-how-do-they-work/

sleeponeday · 02/07/2017 23:19

Autism isn't ADD/ADHD/dysgraphia/dyslexia/dyspraxia/dyscalculia. But 75% of autistic people also have one of the latter, and families with clusters of the latter are also far more likely to have autistic members, too. They are linked disorders.

The diagnostic threshold for one of the disorders is that it is significant enough that it's an impairment. If it isn't, you aren't diagnosable. We all have traits of the above disorders, because they are part of the human condition. But if they don't disable, then you don't have the label. They are, by definition, disabilities. ADD isn't just being a little absent minded, and autism isn't just being very good at maths with a little social awkwardness on the side.

I have ADD. I am not autistic. Autism is a discrete diagnosis. My brother and son are autistic, my father has ADD, my mother has dyscalculia, a cousin is dyslexic and has children I think are ASD and ADHD respectively and my toddler girl is suspected of ADHD. My husband has ASD traits and his father is blatantly well over the diagnostic threshold; he's only without one because he is 72. Various of these linked disabilities are all over the family.

I second the comment that finding out that your child is disabled is akin to grief. I was very aware that it was his diagnosis, and very uncomfortable with some mothers who seemed to make their child's diagnosis their identity (I had no idea, at the time, how consuming securing the necessary support is, and the lengths people will go to to avoid providing it...). I found the neuro-diversity movement, as your friend seems to have done, and it was a huge comfort to me as well. I liked the fact I was asking autistic people how best to help my son - it seemed far more respectful than solely asking other mothers, when we weren't the ones directly affected. And I was so encouraged by the argument that autism isn't a disability, but a different way of being. It was so much what I wanted to hear. It was only when I read an article by an autistic woman who expressed her frustration with what she described as the fetishising of brain damage that I started to reconsider. Because while there are some benefits with my own child, he is impaired, and substantially so. His life is harder. It will always be harder. And pretending it isn't doesn't make that go away.

It's true that autism does confer some gifts in some cases, and so does ADD - again, IN SOME CASES. It's not the magical creativity fairy bestowing golden gifts, but when your mind is constantly buzzing with thoughts and you seem to lack a reliable record button in your memory in the way other people do, and distraction is your... oh look, an earwig! then you sometimes develop something called hyper-focus. This is an extraordinarily intense capacity for concentration; the ability to target a subject with laser precision and focus so wholly that nothing and nobody else penetrates until you're done. It can mean some people with ADD are hugely successful academically, or at a sport, even if they can't pass a driving test. Autistic people (and some people with the linked issues) often have areas of special interest, with which they are wholly obsessed. Anyone wholly obsessed with an area, who spends endless hours focusing upon it, will become expert. If the area is one of general usefulness, then suddenly that person has a desirable skill. I suspect, too, though this is my own observation of two very different kids, that if you aren't that interested in a lot of things people usually are, and if you miss a lot of the emotional and social games people play, then you have a lot more time, energy and focus to dedicate to say, lego. Which is endlessly diverse while remaining wholly logical and predictable. And this may mean you end up with a startling capacity to think and design in three dimensions with all sorts of media, and with an enhanced STEM abilities, because you've done a lot less of the usual early years interests. Narrowing can mean specialising.

I don't think autism is a blessing. My son first said he wanted to kill himself at the age of five. His life is a hard one. And I can't tell you the extent to which I hate and resent my own ADD - it feels like the evil fairy at the christening, frankly, because I come from a very academic family and was successful academically myself, but I can't organise my own housework on any sort of consistent basis. It's frustrating to a level I can't describe.

But if this mother is using neuro-diversity as a life-raft right now, then that's what she needs to do, and my heart goes out to her.

deckoff · 02/07/2017 23:23

This reply has been deleted

Message withdrawn at poster's request.