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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

AIBU to think that thousands of people loving charlie and bradley is some what false.

999 replies

Lonelymummyof1 · 01/07/2017 07:29

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

OP posts:
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MommaGee · 04/07/2017 20:48

On behalf of the lady in yellow dress, ODFOD stupid CA person

Birdsbeesandtrees · 04/07/2017 20:52

I've just tried to talk some sense into one of them. No good. Absolutely will not accept anything other than the narrative they have been fed. Not interested in the court transcripts or anything else. Just that he hospital are lying and if Charlie could go to the US he could be treated for free. Hmm

EB123 · 04/07/2017 20:53

They are awful, so aggressive and their behaviour disgusts me.
One told me earlier that I must want all disabled people to die because I agreed with the judgement. I asked several times if she had read it but she avoided answering and just kept on about how he could be cure so I assume she hasn't read it.

JaneEyre70 · 04/07/2017 20:56

And the longer that GOSH give in to the parents, the worse this is going to get............. it's appalling Sad. I know it is a life, a precious life but not turning Charlie's life support off last Friday was a massive mistake for GOSH. This is becoming a very distasteful circus now. I'm torn between heartbreak for the Gards and fury.

LetsGoFlyAKiteee · 04/07/2017 20:59

It's daft trying to reason/talk sense. They're all in this little bubble where everything is lovely and the Pope and Trump will come in and save the day...the hospital are the bad guys and they are Charlie's angels who will win..not sure what theyll win as some have even said if the treatment doesn't work that's fine as the parents have at least tried...

Have to say find the organising a protest/all find a date they can do strangely funny.

SilverLining17 · 04/07/2017 21:02

Can other people reply on the CA page? I can't. It doesn't have the option. Have they blocked me because I suggested earlier that GOSH had no reason not to want the best for Charlie or to falsify any test results? They deleted that post.

chupsmelad · 04/07/2017 21:04

There's a separate US FB page and a rally organised in NYC for Sunday?!?

I have to stop following this now. I can't do anything to help and I feel like a voyeur perving on other people's pain.

This is just insane. I really feel for Charlie's parents and the GOSH staff, but there's nothing I can do.

Birdsbeesandtrees · 04/07/2017 21:07

No my conversation was on another Fb page.

The group is moderated and Charlie's family is involved. Only "supportive" comments allowed.

MrGrumpy01 · 04/07/2017 21:07

No I can't post. I presume you have to join to post.

I want to cry at that page though.

JonSnowsWhore · 04/07/2017 21:10

The people on that CA page are absolutely vile: "This isn't meant to be unkind in any way, but the lady in yellow dress said about her adopted child could've passed away, and she would have let that decision be allowed, I cannot help feeling if it was a child she had physically carried would she have said the same??? I'm Not saying adopted children any lesser of value, but it came across to me like because she adopted she'd have let her go!!"

I've only been reading with interest until now, but they fucking said what??? This group was started with good intentions but they are truly showing themselves to be the most uneducated, ignorant, rude group of fuckwits I've come across in a long time. I hope Great ormond street or any of its patients don't suffer in any way because of this circus. Do people honestly think that Doctors at a children's hospital came into work one day & said 'see that baby over there, can't be bothered treating him any more, let's just not bother' Hmm

And by the way, whatever is said about Bradley's family sharing stuff online, I absolutely cannot slate Jermain Defoe for his role in this, he's made a terminally ill little boy so so happy & become a really good friend to Bradley & his family, someone's cutting onions here!

Alittlepotofrosie · 04/07/2017 22:32

The lady in yellow was saira khan who adopted a baby from an orphanage in pakistan. There was a documentary on her, the baby hadnt been fed for days and was am hour from death when saira collected her. You could see how much she loved and cared for the baby, of course it doesnt make a difference that she was adopted.

ChishandFips33 · 04/07/2017 22:52

Another donating to GOSH - they deserve better and so does Charlie

Ellie56 · 04/07/2017 23:28

Looks like a lot of CA have had their Facebook accounts blocked or disabled. Is common sense beginning to prevail?

Then again, lots of protests being organised for Thursday and Friday and somebody has also had the bright idea of contacting councils to light up buildings in blue for Charlie, so perhaps not.

GinSoakedTwitchyPony · 04/07/2017 23:36

Ellie56 have you noticed they're now accusing FB and Twitter of 'censorship' and using this as further 'evidence' of a huge conspiracy?
You really can't make this stuff up.

I wish I knew enough about FB to know how to report those who are blatantly admitting they're banned and have made a second acccount! I tried the Report button but it doesn't cover that scenario.

IrritatedUser1960 · 04/07/2017 23:41

I keep thinking that there is a precious intensive care bed that has been occupied for 10 months and maybe now indefinitely at the cost of another sick child who could recover. I've never heard of bed blocking intensive care before - now I have.

Ellie56 · 04/07/2017 23:42

Ellie56 have you noticed they're now accusing FB and Twitter of 'censorship' and using this as further 'evidence' of a huge conspiracy?

Yes I noticed this is all part of the Great Conspiracy. GOSH must surely be regretting not turning Charlie's life support off last week.

MusicForTheJiltedGeneration · 04/07/2017 23:45

I know it is a life, a precious life but not turning Charlie's life support off last Friday was a massive mistake for GOSH

From memory the Supreme Court judgement mentioned a stay until midnight on 10/11 July, so unless that has been superceded then technically life support can be continued until then? Perhaps that's the extra time that GOSH have given his family.

MusicForTheJiltedGeneration · 04/07/2017 23:54

20. With considerable hesitation we direct that the judge’s declarations be further stayed for a period of three weeks, namely until midnight on 10/11 July 2017

www.supremecourt.uk/cases/docs/charlie-gard-190617.pdf

Lonelymummyof1 · 05/07/2017 00:03

They are going to shred me to pieces.....help

OP posts:
stopfuckingshoutingatme · 05/07/2017 00:07

Who Lonely ? What !?

Doubledottvremote · 05/07/2017 00:07

On CA fb soon called Michelle has posted photos of Dr's looking at scans in relation to a post about her dd at gosh. Not sure how to report that. Surely you can't post photos of Dr's on fb?

FlyingElbows · 05/07/2017 00:15

What on earth possesses anyone who can't manage sentences or words of more than one syllable to go on This Morning to discuss the law? They'll be eaten alive. The utter naivety of that bloke if he genuinely thinks they're going for a nice chat is mind boggling.

That's the first time I've looked at the ca page and it seems to be a mix of the kind-hearted, the pitifully dim and grief vampires.

MommaGee · 05/07/2017 00:18

Lonely what have you done??

Seeingadistance · 05/07/2017 00:19

Lonely? What's happened?

MommaGee · 05/07/2017 00:25

I really need sleep Lonely, come back and talk to us!

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