AIBU to think that thousands of people loving charlie and bradley is some what false.

[Lonelymummyof1]

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

I have a family member who was born with a genetic disease and died just short of his first birthday. It's was the hardest and saddest thing I have personally ever been through and witnessing the distress of my brother and his wife was just truly awful. My pain was just a drop in the ocean compared to what they went through.

His parents were incredibly brave to let him go but in doing so they spared him from further pain, distress and a life of tubes and hospital wards-while also knowing that letting him go would cause them a lifetime of sadness.

The medical staff were the kindest most compassionate people I have ever met. They allowed the parents and extended family as much time as possible to say goodbye. They looked after our every need and were visibly as upset as we were when he died. I was just in awe and eternally grateful for all the doctors and nurses did for us.

Lonelymummyof1 I've been reading your posts from the start of your Op, I just wanted to say you sound like a wonderful mum who is doing an amazing job with your DD and everything you've both had to go through already in such a short time. It's clear that you are devoted to her best interests. Strength and positivity to you both

I got slapped on the wrist by MNHQ for saying similar

Don't worry, I fully expect my post to be deleted

It's not my place to decide of course, but while I absolutely support MN's drive to encourage support - even to the exclusion of all else - it's also hard to ignore that these poor parents have actively chosen to plaster this terrible situation all over social media, to attack GOSH and much else

I understand that they can hardly be expected to be thinking straight in these awful circumstances, but that doesn't change the truth about choices having consequences

Frankly, when all is said and done I just wish peace for them all ... the parents too of course, but most of all for little Charlie

Lonelymummyof1 What a bloody awful situation that must have been for you to put it mildly.

Lonelymummyof1
You are extraordinary. I hope you know that. You'll probably self deprecate and say that anyone would do what you do but you're wrong. Your daughter has a lovely mum.

Thats the thing most people would.
Its what makes this case so heart breaking.
Any parent who loves their children would try to do anything and everything for them.
I do it just like any of you would because she is my entire world and always will be no matter what.
A mum is a mum and I find the labels , cardiac mum, tubie mum etc the most insulting as I am not either of those.
I am a mum not a super hero or mother of the year.
I am good mum like most of the other mums know to.

Charlies parents are no doubt loving parents who also have shown much courage and wanted to save their son.
One of the most heart breaking things as a mother is to be told you will never see them grow up.

However, people keep saying they are doing what every other good parents would do.
That is not true otherwise we would have this daily from all different families.

What is sad is the parents who be left feeling like they never did what apparently what other parents do.
They will feel like murderers.

The parents are emotionally scared and we can not blame them.

The charlies army are uneducated vile and quite disrespectful to hospitals and other sick children in this country.
Thats what breaks my heart knowing that daily children die but to save one they would risk 100s.

It's so sad how he has become such public property and everyone is jumping in to say how much they love him and who can do the most..it's to look at me!

I just hojuawhen the time comes no one tells. That his parents, whoever they want, is there and its peaceful and private. Tell the world the next day.

Hope that when

lonley I remember hoping that my daughter had a while in her heart. I'm sure it was scary at the time but to want money for something that is fixed is shocking.

Momma it seems more likely that there'll post a photo of his little body on instagram.

I can understand a desire to help his parents financially as it is a struggle for anyone who has, or has had, a family member seriously ill and in hospital long term. So donations straight to Charlie's parents for that reason at least make some sense. However, whoever is the brains behind the merchandise, and the people who are actually making it, they need to take a good look at themselves. It's to no one's credit.

Recently on Facebook I saw that someone downloaded a picture of Bradley with the guy from the Sunderland football team, and asked everyone to share it "in honour of our brave little soldier". To me its an empty gesture and done simply to bolster their own self image. Its quite repellant really.

There have been some recent posts on the CA FB page from friends/family asking people not to speak to the press or go on TV in case they "damage Charlie's case" (whatever that means). However, this does suggest that they are losing control of this campaign they created.

HouseOfMouse they are bickering now about it. A couple of people seemed very over excited about appearing on this morning tomorrow. Almost as if it's about them

Protest marches over the weekend in London and Brum

The parents are emotionally scared and we can not blame them.

This is how I feel. I cannot judge them at all.

I certainly judge Trump though

But the parents, well, I have no idea what it's like to be in their shoes and I hope and pray that I never will. So I can't judge.

to the lovely mothers on this thread who have shared their experiences.

Protest marches over the weekend in London and Brum

Wonder if anyone be protesting in their house again

I don't understand why they haven't turned off his ventilator. They know he's in pain and the longer this go in, the worse the frenzied morons will get.

Someone has sent a application to have Blackpool Tower lit up in their colour...it costs 500 pounds! Surley if going to raise money it could be spent on better things! Not that likely to happen but even so

They were supposed to be turning the ventilator off last Friday. Surely they aren't going to let him continue on life support for much longer?

TrollMummy that sounds so hard for your brother and his wife, and for you too, they were very brave.

It just gets more horrific with each day that passes.

At the time I was glad GOSH had given the family the weekend but now I wish they'd stuck with their original plan so that poor babe could be at rest now.

Ellie56 Exactly. It's horrific, but every time the news comes on I find myself hoping he's been able to pass away. Continuing it is in NOBODY's best interests, including the parents

The CA thread about not speaking to the media is interesting.
They're a very obedient lot, reading the responses on there.
Their replies suggest that it would be relatively simple for the circus to be stopped. If they wanted it to stop.

I can't quite understand why they were actively promoting getting the media to go to the small protest in London on Sunday, yet they don't want their followers to talk to the media.