To ask that you all do one small thing today

[organixeveryday]

Aibu to ask that any of you who have received treatment , help, support etc from GOSH, send a quick tweet, email or even a little letter to show your gratitude for all that they do for the children and young people in the world.
They are being demonised by the C Army , who are getting themselves into an absolute frenzy over something which is just between the parents and the medical staff , and the idea to do a protest outside the hospital is quite frankly disgusting.
There have been many comments on the pages saying that people are going to stop donating immediately and boycott GOSH for the foreseeable future , this is terrible news for the service they provide as cuts and funding mean that they will be even more stretched than usual. So please, if you have a spare moment in your day, just send a quick message over to say thank you or a special memory of the hospital , just
So they know they are not alone.

A very good thought. The ignorant idiots supporting this media shitstorm have given no thought to the other patients and their families who are being affected by this and will suffer from any fall in donations.

Lovely idea ! I'm in. Thank you for posting and for the inspiration. I was in tears at work yesterday as we have an issue concerning sick children and there are often so many people behind the scenes working tirelessly who don't make the rules or policy and in fact those who do and do it for the right reasons.

Last night I was thinking of posting them a card, but now I think perhaps a tweet would be better from a resources point of view.

I'm in tears reading the other thread. So much ignorance and hate. I fear this will be hijacked too. The FB GOSH page has been swamped with evil.

My DD is a nurse at GOSH. I know how deeply the staff feel for their patients. Only this week several of them travelled to a funeral of a patient in their own time at their own expense. The idea of her arriving at work at the crack of dawn to be met by thugs fills me with despair.

Staff cannot speak of individual cases but as she is a cancer nurse my daughter is not involved in this case (and wouldn't be able
to discuss it if she were).

I also know that the hospital and individual staff receive many letters from parents who have been touched by the quality of the medical and nursing care at GOSH and the love.

Well done OP to start this thread. I would also encourage anyone who has experience of GOSH to post on their social media pages as this vendetta is horribly unfair.

Great thread

Have sent a tweet thanking them for all they do. No direct experience (for which I am thankful) but i loathe and despise vicious, sentimental, ignorant mobs.

Thank you all, a few small acts in a sea of wrath

The media storm around this is horrendous.

A decision to take legal action was not done lightly by GOSH. But I don't blame the parents and their family/ friends for being angry and acting on that anger. It's a stage of acceptance. I think it's also a sign of the toll the anguish has taken on their mental health.

I am however disgusted by the people planning to protest and I imagine that should their children be taken ill they certainly won't be boycotting GOSH. It's just people jumping on the hysteria band wagon. And that's what should be shut down.

Tweeted. Am appalled at some of the comments there.

In bed last night I was thinking about this, so thank you for reminding me. I get paid today and I will make a donation.

GOSH saved my brother's life. I will always and forever be a huge supporter. Heartbreaking that one family are going through so much suffering but that shouldn't put other families at risk.
Great post op.

""They are being demonised by the C Army , who are getting themselves into an absolute frenzy over something which is just between the parents and the medical staff""

Well it ceased to be between the Parents and Stafff once the Parents Rights were removed.

At first I agreed with Charlie not going.

What prevented you from calling him by his name and instead reduce him to a Monogram?

The use of 'Charlie Army', given a child is about to die, is disgusting.

If you had written 'refugee army' when a two year old washed up on the beach, you would have been vilified and this thread would be removed.

You have written the OP with more sensitivity.

Thank you for this prompt, Organix. I've set up a monthly donation. GOSH is amazing and the FB comments and general media coverage is just unbelievably awful.

Birdsgottaf1y, your post didn't make much sense, but you do know that the OP didn't coin the term 'Charlie's Army'? It's the self-defined name for a group of people who advocate further experimental treatment, who oppose GOSH's decisions and the various courts' rulings, and (within a vocal minority) are advocating harrassment of medical staff and a reduction of GOSH's funding.

What is gosh, and what is the c army? Honestly, your post makes no sense at all to me.....

Is there a trending positive hashtag we should be using? I'm a bit crap with social media and don't want to get it wrong!

@Birdsgottaf1y I was just using that as shorthand , you know perfectly well what I was referring to.

Can't believe that some people think it's a good idea to go and protest outside GOSH, basically preventing ease of access to the already crowded entrance , there's barely
Space to walk let alone the patient transport etc trying to get in!

@Mumzypopz Great Ormond Street Hospital + Charlie Gard case

Aaaahhh, got it!!! Ta

They should let the poor child go. This circus helps no one.

I had no idea about the media shitstorm, I find reading about Charlie so hard, it's just so, so sad.

These things happen now and again and it's always very sad. I remember various cases over the years. They are always the same: sick/dying child, hospital saying, as gently as possible, that the child was dying and further treatment was not only pointless but actually harmful, and the parents refusing to accept this and launching campaigns and legal action.

Every single one of those kids died, in the end (ie, not reaching adulthood, generally not surviving for more than a few months). One, who lived a few years longer after her family did win a court battle for further treatment, later said she almost wished they hadn't, as the (experimental, unlikely to succeed) treatment had horrific side effects.

I understand that nearly all parents would react pretty much the same way if it was their child - you would want to do absolutely anything and everything to keep your child alive. Sometimes that''s the wrong choice, when the ongoing treatment is painful, offers no cure, and the quality of life basically comes down to being stuck in a hospital bed and just not dead yet.

I do have sympathy for both parents and HCPs in such cases. But no time at all for the mawkish fuckwits who are unconnected with the family but think that sentimentality is a valid reason for aggression, disruption and prolonging the agony. Doctors do know better than these snivelling idiots. You can't keep someone alive with mystic bollocks and appeals to public opinion. People who are not involved should butt the fuck out.

Inspired by another mumsnet chat thread I have just sent them a Facebook messenger message. Thanking them for all that they do for so so many. A desperately sad situation that is not helped by many of the commenters on Facebook/ Twitter et al.

They aren't gathering at the hospital........there are various posts on the FB page telling people not to in respect of his family. People need to leave them alone now and stop whipping up hysteria based on the potential actions of people who don't even know them.

YANBU
I sent a message of support. This must be awful to deal with when this is a working hospital. They released a statement with the parents asking for respect for privacy and the mob is still at it with incoherent hysteria and zero facts which just shows how uninterested they are in the parents' wishes after all.
My next charity effort will definitely be for GOSH.