To be massively unimpressed by the Autism Speaks adverts

[CommunistLegoOoOoBloc]

Come on, MN. Why are you displaying adverts from such a hateful, ignorant organisation? One that advocates a cure, eugenics, is hated by so many people on the autism spectrum and fervently believes in the anti-vax movement?

Urgh.

Elsa: "Maybe the chelation didn't work for your friend Fanjo but my syster has done extensive treatment on her oldest and you wouldn't even tell her kid has Asd. It's naive to think that these kids have no hope"

That sentence implies that your sister 'treated' her child with chelation. But then naturopathy really is not much better.

I have been diagnosed with high functioning autism.

I can't even describe how uncomfortable the idea of a 'cute' makes me feel.

I am who I am, yes it has it's different challenges and yes it doesn't easily fit into the 'normal' model of existence.

But I'd rather everyone involved concentrated on maybe changing the world so that people with autism (and any disability) can live a life worth living.

Rather than trying to change a fundamental part of who I am.

I'm aware there are more 'severe' forms of autism, my daughter falls in to that category. I still say the same thing.

She doesn't need to change, people's expectations do.

When my two older sons were 5, to all intents and purposes they were pretty much NT, they could just about cope with the demands of school, and just about keep up,socially with their peers.
As they got older they stopped coping (ds1 was 8, ds2 6), but they carried on looking like they could cope in the public eye. This stopped for ds1 when he was 15, and ds2 when he was 11. Neither is at school now because they couldn't cope.

It doesn't go away, it goes through peaks and troughs. I hope for your nephew's sake that it's not assumed that how he is at 5 is how he'll be forever. He may be going through an easier time of it at the moment, but please don't think that these treatments have cured him, or that he won't go throu trickier periods in the future, when he's really going to need his mum on his side, advocating for him, supporting him through those times.

JustAnotherSilentOldNumber what you on about again, where did I say she did chelation? I actually said she didn't do chelation! Can you read?

JigglyTuff nope she didn't do any chelation you misread. I did specifically mention on a later post afterwards she didn't. And I specifically said she had a doctor as well as a naturopath no need to be selective on my posts

elsa
Maybe the chelation didn't work for your friend Fanjo but my syster has done extensive treatment on her oldest and you wouldn't even tell her kid has Asd.

[ I've never seen anything from them before. How disgusting.

Sun 14-May-17 14:03:39

JustAnotherSilentOldNumber
Yes extensive treatment part of which I mentioned later not extensive chelation - mind you I re read it and yes it's confusing but nope she didn't do any, she was with a medical doctor who wouldn't condon anyway

I understand you barged into the thread, hadn't a clue what chelation meant then were suprised at the negative reaction when people told you it was dangerous.

No, you worded it really badly.

Yes I did I don't dispute that!

I have known of someone putting their child through dangerous and harmful chelation treatment in attempt to "cure" their autism. Unsurprisingly it didnt work.

Maybe the chelation didn't work for your friend Fanjo but my syster has done extensive treatment on her oldest and you wouldn't even tell her kid has Asd. It's naive to think that these kids have no hope

along the lines of what... drinking diluted bleach and dicking around chidlrens diets and using suppliments with dangerous levels of Zinc and Iron...

Nope! Along the lines of having a healthy non processed non gluten or dairy diet, getting their thyroid tested and treated as well as some gut infections.... There you go! Who talked about bleach?

"Several years ago, the National Council Against Health Fraud concluded that chelation therapy is unethical and should be banned and that chelation therapy of autistic children should be considered child abuse. "

I agree about chelation and I am not talking about chelation!
And no my sister's kid wouldn't improve with time he was severe case - within a year and a half he's pretty much NT with the help of doctors, naturopaths and a forums of fellow parents..

Dafuq? "I know someone who did dangerous treatment (a) on their kid and it didn't work." "My sister did extensive treatment on her kid and it cured him!" "Wow, that's... a bad idea. Dangerous." "HOW DARE YOU! Random treatments (b) (c) and (d) for assorted other conditions cured the kid's autism! And yes treatment (a) is bad!"

You have since back tracked. But are still acting suprised at the intital reaction.

But it is dangerous I'm not saying anything against it, why are you so obsessed with it! I must have mentioned a million other things why the obsession with chelation?

So Elsa, do you agree with Autism Speaks' ethos then?

Yes I did I don't dispute that!

nope... well, Only 5 or 6 times telling people they should learn to read.

why the obsession with chelation?

Becuase that is the subject of the thread.

Why would I agree? I agree on treatment though doesn't mean that I agree with them. Why are the two related?

Apparently only some of us can see this 'offensive' advert - I can't on PC using Firefox.. Maybe someone deliberately had this banner ad placed knowing that it would provoke a furore as there appears to be a deep anti-Autism Speaks faction on MN.

I still believe that we shouldn't censor/ban views we don't agree with unless they are extreme and I have yet to see some evidence of such extremity. S far I have heard rhetoric and sound-bites.

It is so unhelpful to polarize and even politicize autism. For us it is about acceptance - no we don't fight autism, we are autism - but if others feel they must fight it in order to get by in life I don't have a problem with that.

Your main contribution to the thread was to condone treatment and tell us that we (many of whom are autistic ourselves) should want more for our children. That sounds like an autism speaks success story, or have I got that wrong?

My son is 22. We too have had peaks and troughs. Come back when your nephew is a teenager Elsa. Things will be different. I just hope as a family his autism is acknowledged and that the coping strategies he requires are put in place for him at school.

Plan, if you can't see that Autism Speaks both holds and spreads extreme views, from the content of this thread, then I despair.

Cloud I'm not allowed to 'contribute' cause I don't agree with what's been said?
If autism speaks supports proper medical treatments I don't understand what the issue is about? I looked at their website and all they refer to is ABA speech therapy etc. Nowhere did I see chelation.. So other than the shitty video why is it been said that the subject of this thread is chelation. Why is autism speaks been linked to chelation?