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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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Original poster

speech would you be concerned?

90 replies

ohdeaeyme · 13/05/2017 21:02

dd is 2.5 tomorrow and can say

herro (hello)
aye (bye)
ine (mine)
share
no
og (dog)
choochoo (train)
cheese
shus (shoes)
mama (mummy)
two
yuck
mac/ma (max)
ow
juju (for a drink whether its milk/juice/water)

she can do animal sounds
oooo for moo
aaaa for baa
monkey noise
lion noise

she has been referred for SALT but no one will really tell me how behind she is or how much i should be worried or if i should even be worried at all. HV also said she makes an unusual 'ck' sound all the time but didnt expand on this either. have 18 weeks of worry ahead :(

OP posts:

TeenAndTween · 14/05/2017 19:53

If she has been in a high stress environment for most of her little life it is no wonder she is behind. Now you are in a better place she will learn to relax and then should begin to learn.

If she's not ready for colours then don't test her. Just talk naturally, and when she says things say them back clearly with a little extra info. So if she says 'tar' you say 'Yes that's a Car. A blue Car'.

hazeyjane · 14/05/2017 20:10

I think, because of your concerns, it would be a good idea to explain your concerns to the gp and ask for a referral to a developmental paediatrician. Yes, it may be that she is just a little delayed, yes it may be that her life up until now has affected her development (if it was this then she may still require some support and intervention) - but it would be a good idea for her sake, and the sake of your sanity, to get it checked out.

When we first had concerns about ds, as a baby, I started a 'hand hold thread' on the sn children board, I found it very helpful and supportive whilst waiting and worrying.

Original poster

ohdeaeyme · 14/05/2017 20:32

i am definitely concerned enough that i will be pushing for refferals.

Is it a myth that ASD has genetic links? We are fairly sure my dad has ASD and most of my cousins do, the process was started on me being assessed as a child but my parents divorce meant they never carried through with it.

OP posts:

User06383 · 14/05/2017 20:57

My DS is 32 months.

He has gone from a few words to short sentences in a very short space of time, he's always been a babbler but now the babbling makes sense 80% of the time. He doesn't stop talking from the moment he wakes up, to the moment he goes to bed.

He was way behind his peers a few months ago and now much closer than before.

Children all grow and develop at different rates, I no longer compare mine to his peers but just to himself, as long as he improves from where he was a few months ago I'm happy.

Original poster

ohdeaeyme · 14/05/2017 21:06

she has never ever babbled

OP posts:

coffeemachine · 15/05/2017 07:18

Autism ist often genetic but not always. It is not a myth but a well established fact.

Hope you are taken seriously and that you get referred.

FlossieFrog · 15/05/2017 08:00

Having seen your updates I would push for a developmental assessment through HV/GP. Maybe she needs a diagnosis, maybe she's behind due to circumstances, maybe she'll catch up fine. Whatever, you want to know what you're dealing with and to get early intervention if possible. The sooner she's "in the system" the better to access that help.

One thing you can do that may help is to do a running commentary of what she or you are doing. This helps to build vocabulary and sentence structure. Also, as others have said, when she says something echo it back correctly and add an extra word. We were also advised to play intensively with DD for 5-10 mins at a time so she can build those interactions and opportunities to practice speaking. Don't tell her what she says is wrong, just model correctly.

Good luck OP!

Original poster

ohdeaeyme · 16/05/2017 08:33

inadvertantly after a febrile convulsion yesterday she ended up with a blood test which showed she is moderately anemic. apparantly anemia can cause development delays!

OP posts:

hazeyjane · 16/05/2017 09:31

Sorry to hear about the febrile convulsion, ohdeaeyme, I hope she is ok.

I would still push for the referral, as sometimes these things can be interlinked (the anaemia and febrile convulsions could be symptomatic of something else, or could have affected her development), and sometimes they can be separate issues.

teapotter · 16/05/2017 11:19

My HV told me that they refer a lot of 2yo kids and most of the time they would have been fine without SALT. However, for those that do have problems it is important to catch them before they are 3. It's better safe than sorry and all that.

Original poster

ohdeaeyme · 17/05/2017 18:23

She has been referred for further assessment as when i spoke to health visitor today she admitted asd had crossed her mind a few tjmes and she was waiting to see how things settled after getting rid of the violent home environment.

what can i expect now in terms of assessment? will it be a long long process?

OP posts:

coffeemachine · 17/05/2017 20:55

glad you got a referral.

the assessment processes vary hugely from area to area.

Once we were referred, we saw a developmental paed for initial appointment. then wait and see. then sever months later another appointment and again wait and see. Eventually DD was out in waiting list for ADOS (autism assessment). Then a few months later the ADOS and dx of autism. took all together 1 year.

Original poster

ohdeaeyme · 17/05/2017 22:55

blimey! hoping it wont take that long as when i talked it through with the health visitor there is a lot of concerns that she really needs help with asap

OP posts:

Coffeemachine · 18/05/2017 07:10

OP, I don't think you will be getting a lot of help. DD is severely affected and we had in about 10-12 sessions of SALT and 2 sessions of OT. That is is and it is standard. DD is almost 10 now and we haven't NHS help since I she is 4 You pretty much left to your own devices. everybody talks about 'early intervention' but it really doesn't exist on the NHS, not for unfixable conditions like ASD.

A diagnosis though will help you with other things if she were to need a lot of extra help e.g. getting extra help and support at nursery and school (my DD has full time 1:1 support).
I would also look into applying for DLA. We use the DLA money to fund a therapy privately as we don't get anything on the NHS anymore. Pop over to the special needs board for children. lots of posters in the same boat over there.

Witchend · 18/05/2017 07:22

Don't worry too much about her not knowing colours. Dd1 didn't learn colours until she was 3.6yo. By that point she was reading fluently. How can a child read blue, red, yellow etc but not be able to identify them?
I thought she was colourblind.
She wasn't. It just was letters (and numbers) were something she was interested in, but colors weren't.
When she learnt her colours though it took her about a week and she the knew all sorts of odd ones too like beige, turquoise etc.

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