I am a mum, two kids, married with a wonderful, supporting husband. He works very long hours with absolutely no scope to change at the moment, so away about twelve hours every day. I am disabled. I had to give up work recently as my illness is progressing rapidly, I have always, my whole life been very independent although suffered a chronic condition from birth. Even during my long hospital stays as a child, I would come out and it was like I had never been ill.
Things have been different the past eight years, there has been a drastic, progressive decline and I am being investigated for a progressive disease of the nervous system. My parents and a sibling live away and I have one sibling that lives in the same city. My parents moved away when I was a 21 (I had no relapses after age 14) so we all thought my condition was stable besides a couple of infections. My parents who moved for work, always promised to come back home when they retired. They did two years ago and have now bought property in the city they moved to with my sibling and her child living with them. My sibling here, has been very distant ever since being married, although I have tried to keep communication going as much as possible.
My friends take me to the doctors even though they themselves work long (I cannot drive anymore). (We are looking into a new adaptable car and motorised wheelchair) I have a fantastic MIL who would help once or twice a week to get me out the house, spend time with the kids etc but she has recently been bereaved and struggling herself. I cannot walk anymore and use a wheelchair. I just feel so let down by my parents who are still young and my sibling. They bought a house for her and her son years ago and she sees them every day. They go abroad on large holidays to Disney together, which we don't even get invited to because "you would not manage it."
I am sorry for the long post, but is it wrong of me, when I am feeling so depressed and needing support to be annoyed with a couple of phone calls a week. AIBU to feel like they are ignoring my requests for emotional support and also them having missed my children growing up, yet still facilitate and enable my sister to be dependent on them? I want to stop feeling this way, but I can't. I feel bringing us presents home from trips is like they are assuaging their own consciences because they are not here.