to be fucking fed up of this

[cjt110]

I am exhausted ALL THE BASTARD TIME!!!!!!!

I am 29. My son is 2 next month. I have a 9-5 Mon-Fri desk job. I go to bed at 10pm and get approx 7-8 hours a night (wake ups dependant). I have an underactive thyroid which is level and fine.

I am exhausted. I feel so titred all the time. It is bringing me down and making me feel worse. I have had reams of blood tests and it shows nothing amiss. I am fed up of feeling like this and have been for MONTHS.

I have a GP appointment tomorrow for a mole removal but feel it unfair to take up extra time to discuss this. But they have no pre-bookable appointments for 4 weeks.

I can't handle this anymore.

I think I'm your husband's female twin Catanddogmake6 with how you describe him.

I did ask about upping from 50mg to 75mg trafalgargal and was told it wasn't needed because I am within range.

Discuss B12 too...I have pernicious anaemia which means I can't absorb it through food or supplements, so have to have injections.

He suspected if he referred me to an endo, they would say I was fine as my TSH is within the normal range.

Well, maybe time to put his "suspicions" to the test.

You have known thyroid problems and you pituitary gland is abnormal.

Plus you are symptomatic for being hypothyroid, despite "normal" bloods.

Did you ever have you TFTs done when not symptomatic? To indicate what your normal range is?

This type of lazy refusal to diagnose or treat based on reading numbers off a chart bpils my piss.

RubySparks No Ruby. I have hydrocephalus controlled by a third ventriculostomy (TV). As part of routine MRI scans when I was 16 they discovered I had an abnormal pituitary, Tested for various things bar fertility and all was fine. Have since had my son some 11 years later without any trouble so not fertility issues - I fell pregnant within a month of trying to conceive.

As part of the TV, they had to allow my ventricles to swell. When I had this op I was only the 25th person in the UK to have it so side effects were unknown. I haven't grown since then (I was 9 - a tall 9 year old thank goodness) and they now surmise that the pressure onto the pituitary gland during this process may cause growth issues but nothing concrete.

My thyroid issue was diagnosed 4 months post birth. I had always been low but normal range prior. Familial history of thyroid issues - my Dm has graves disease, also brought about by having a baby (me) and went undiagnosed for many years.

That sounds quite complex! I have been on 50mg of levothyroxine and that just wasn't enough - it was only raised by me seeing a different GP who 'liked to see TSH close to 1.0' she put me on 75 and that has been much better, also been on 100 and started to feel anxious and jittery on that so too high.

Check out B12.org - NHS basic blood tests for B12 not that revealing so suggest you check your symptoms (poss are others you may not have quite clocked yet IYKWIM) on here just in case?

Also, Levythryroxine (sp???) doesn't work for some people but NDT does, suggest the StopTheThyroidMadness.com site.

Lastly, I'd be taking a good multi-vit, B-spectrum, and Co-Enzyme Q10 as well as vit D (number of folks deficient in VitD is actually pretty astounding) if I were you.

HTH & for that godawful fatigue.

With that history, you really should see an Endo.

Insist on it.

As previously mentioned: B12 is more successfully given as an injection. Supplements will only do so much.

for you.

I have exactly the same thing. It doesn't matter how much sleep I get, I NEVER feel refreshed. Any time of the day, any day, I could lay down and nap. I've had tests and sleep studies and everything you can imagine but nobody knows what's wrong with me.

This has been going on two years for me (yes, really) and... it's become the new normal. I don't remember what it feels like to not feel tired. That's about all the comfort I can offer.

I was like this last year due to low iron levels. I felt like i was swimming through treacle every day even though i was taking iron. The dr doubled my dosage and i was good after a few months so stopped taking it.

I'm back to treacle and back on iron.

Long story short - i empathise.

This was me. My vitamin D levels were very low (the only thing that blood tests picked up) so I now take a vitamin D drops (with K) and ended up seeing a naturapath who prescribed me lots of herbs to help restore my energy levels. I totally overhauled my diet so had no wheat, sugar, cows' milk or cheese, chocolate or caffeine. Yes it was difficult at first but after about 6 weeks I lost over a stone and my energy level shot up.

I remember feeling so exhausted I wanted to be diagnosed with something which would put me in hospital so I could just stay in bed and be looked after and not have to care for my DD, or go to work or do anything.

You have a toddler AND a job, if you weren't tired that would be strange Hopefully you can find something to make it easier!

You need to see a good Endo as your case sounds very complicated and I am less than impressed your GP hasn't sent you. However don't give up - if its thyroid they should be able to help you feel so much better. If you are his twin - you will need Vitamin D as well! I can empathise - I have CRPS (healthy household) and feel awful all the time. It's why I get quite so cross about underactive thyroids not being managed when they can be. Why would you suffer this is you don't have to.

Thank you for all your helpful suggestions. I will give the links a read. I have asked the receptionist to ask my GP can I alternate between 75 and 50 mg. I was previously on 75 and reduced as it was problematic. Wondering If I am an inbetween dose kinda gal.

YY to wanting to be able to lay in bed and do NOTHING Xena I have also, coincidentally, decided yesterday to eliminate meat and dairy from my diet following my Aunt's successful but accidental weight loss. We are mostly df anyway as my son has a cows milk protein allergy. I had wondered about sugar and wheat too. How did you go about that?

Having a toddler and a job does not make a healthy adult feel permanently fatigued.

I know people mean well when they say that, but when you feel unwell it is so infuriating to have your symptoms belittled in that way.

Go back to your GP and ask for a referral to an Endo based on your family and personal history and your ongoing lack of wellness.

lots of sympathy, you sound like you're at the end of your rope. i've struggled with feeling drained, here's what helps me: 50 mg b6 (gives me energy and motivation), spatone iron supplements, iodine drops. i also had 'normal' blood tests but they were vague about both the iron and thyroid - said my numbers were 'normal but a bit on the low side' so i decided to try to tackle these things by myself. i've read that for some people, taking the active form of folate - i think it's called methylfolate - helps, too.

Have you been tested for vitamin d deficiency at all? My mum is like you (although twice your age) and has recently been diagnosed with it. She's taking vit d now and feels a lot better. Might be one to ask about if you haven't been tested for it?

I used to be in your shoes. Levo did nothing for me, I couldn't absorb it properly. I ended up so tired I was crawling from room to room. I now take T3 which works f much better for me. I also second supplementation. Mixed supplements are better than nothing, but some of them cancel each other out. B12 is the big one. Jarrows is my favourite.

it unfair to take up extra time to discuss this.
I think it is more unfair to make yourself feel shit for another 4 weeks whilst waiting for another appointment.

I was like this for years. Doctors would see me coming into the surgery with a baby and toddler in tow and just tell me it was normal to be tired or offer me anti-depressants. After testing thyroid, iron levels, glandular fever, and so on I was told it must be normal and I should get more sleep.
I was getting 8 hours and usually an hour's nap too.
Nothing specific was ever found but I know there WAS something as it is now better, years later.
I went to a dietician to lose a stone and started eating more healthily, cutting out wheat (which I do not miss) eating low carb in the evening and no refined sugar, (apart from odd glass of wine, ahem) and I take a multi vitamin and mineral supplement. Good luck OP. It won't be forever.
I remember feeling exactly like you: "I hope the doctor sends me to hospital tomorrow so I won't have to get out of bed ever again". I wished I'd told my doctor that. Zoloft (an anti-depressant) helped me.
I wouldn't say I was depressed as such - I had plans for the future, ideas about things, just no energy to do them. I had strange patches on my skin which would bleed. If you're too tired to do anything, your mood will come down very low.

Could you get a complete break for a few days? That's what you're craving if you want to go to hospital.

OP, do you enjoy your job?

I have no kids so cannot imagine what toddler stage is like. However, I do have a DP with anxiety (on citalopram - tiredness can be a side effect) and he sleeps A LOT! He hated his last job and it was worse then, but even now he sleeps more than I do (same at night, but he'll nod off on the sofa in the evening, during the day at weekends), though the quality of sleep isn't necessarily good. I understand it's common with anxiety: life becomes so mentally exhausting that you end up feeling tired all the time. Combined with a toddler and a full time job I'm not surprised you are tired.

Maybe it's worth looking in to slightly reduced hours (4 days a week maybe?) if financially viable, just to relieve some of the pressure.

I have 2 young children, don't get much more than 6 hours sleep a night and work 50 hours a week. I do not feel as tired as you sound. Don't get fobbed off by the gp. Chin up!

CheesyWeez I am on Zoloft - or a variety of - Sertraline. And I've had nothing but hot flushes and triedness since changing to them from Citalopram

Acatcalledjohn No, not right now. I have recently come through the other side of bullying but am still reeling from it's effects. I wish I could do 4 days a week, or even a day a week from home but the role I have is only done by me and I need to be there to man the phones etc.

Comtesse thank you.

Am starting to wonder if it's perhaps something like chronic fatigue syndrome

If I'm honest I think it's a combination of a busy and stressful life, and depression/anxiety. It may be good for you to look for a new job if you've experienced bullying. Your wellbeing is more important. Before looking at chronic fatigue syndrome, reducing your stress levels in daily life will make a difference. DP hated his old job (boredom, not challenged, undermined) but although his new job is more demanding, he feels empowered and I think that has helped his anxiety and in turn this has reduced the tiredness.

(And I should have added: I'm sorry you've had to go through bullying at work. I find it staggering that even today some adults are unable to behave in a workplace setting.)