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AIBU?

AIBU or are CAMHS really REALLY SHIT

239 replies

Anonquestion · 11/06/2016 08:31

I feel like I have been trapped in some sort of nightmare with them. My daughter is now 14 yrs old and was first seen by them 3 years ago when her behaviour started to severely deterioarate with the move to secondary school. We first did brief solution focused therapy with her, 6 sessions over about 5 months due to staff being off sick, on AL etc. It made absolutely no difference, if anything it made herore anxious. This was followed by 'family therapy', which she hated; a lot of pressure was put on us to have it filmed for staff training which made things worse. This was with another 2 members of staff, one was an ex-pschiatric nurse the other had a degree in psychology. We were then told there was nothing more they could do but send us on a parenting course run by the early intervention service, this was absolutely shite, really obvious stuff like 'don't hit your children', 'try not to lose your temper', stuff which we already knew. Me and my husband feel very strongly that our daughter's got ASD and she is now being seen by someone else (another ex psychiatric nurse) who is trying to get her seen by a doctor for a diagnosis and also maybe looking at giving her some anti-anxiety medication. The whole time we have been treated so badly, the first two years as though her behaviour was due to really bad parenting - we're not perfect but I really don't think we are that bad. All of her behaviour suggests to me she has aspergers, I have worked with other teenage girls who have it who are so similar to mine; coped well up to adolescence but now really struggling, meltdowns, routines extremely important, can't change plans, v inflexible thinking, reeling off sentences which are direct quotes from books, lack of eye contact, obsessions with different hobbies then dropping them suddenly etc. I just feel if anyone actually spent some time with her and got to know her it would have been pretty clear. Instead we are treated like Munchausen's parents for even suggesting she may have ASD, treated like we are terrible parents. I'm at my wit's end now and don't know what to do. I can't believe how awful our experience with CAMHS has been. Am I being unreasonable?

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snowgirl29 · 11/06/2016 17:42

Not everyone can afford to go private though.

Quite true. They can't. I was very lucky in the sense that my family helped pay for DSs private assessment, but the past treatment from the NHS services meant even DK was at a loss as to how to move this forward to benefit DS. Why? Because she had hardly any background from anyone, and kept repeatedly saying 'I don't understand how there's not more professionals involved in his care'. But that's because we had had the behavioural therapist from CAMHs on a home visit witness DS at his absolute worst, and still put in a "He's fine" report; or the time when my 6yo DS was repeatedly coming out of school with suicidal ideations and actively trying to carry them out too (wriggling free and running out into the road to get run over on purpose) but CAMHs took his SENCOs words as gospel when told "He's just attention seeking". Hmm or the only paed available in our area covering thousands of patients, that 'DS cant have ASD, because he talks to me okay'. Confused

All of the above is just a snapshot into what happens when you're stuck with absolutely shit services from CAMHs and the like.

These places are massively underfunded but choose to waste resources on inappropriate parenting courses

100% agree with this. I've been sent on several of these courses. One was specifically tailored for children with additional needs. So imagine my catsbum face when the host was telling people that these kids choose to wind their parents up and I quote 'just simply manipulating their parents' Shock My DS don't know his arse from his elbow some days never mind have the wherewithal to create cunning manipulative plans. Confused

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Thornrose · 11/06/2016 17:48

I'm a lone parent since dd's dad died. I'm on a low income because at 16 my dd has no independence so I have a school hours, term time job. How the hell can I pay for private help?

I literally ran away from the hospital with dd on Thursday night and no one rang yesterday to see where we were. I could've driven us both of a cliff and no one would know.

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IHaveBrilloHair · 11/06/2016 17:59

Pay for private?
Ahhhhhahaaaaaa.
With what?

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theyreawful · 11/06/2016 18:03

Thorn, that sounds awful.
It may be worth phoning a couple of professionals in your area to ask if they offer reductions on sessions.
Is your DD entitled to any benefits that would help towards the cost?

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AndNowItsSeven · 11/06/2016 18:09

A suicidal child or teen would be eligible for high rate care dla (as they need checking on night and day) once they have been unwell fir three months. This is £82 a week plus £80 extra a week tax credits and £62 carers allowance if you earn less than £105 a week and are not a full time student.
That money could be used for private assessments/ therapy.

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papayasareyum · 11/06/2016 18:17

We've been referred to Camhs for my 13 year olds anxiety, but the private help we've sought (counsellor and hypnotherapy) is helping her lots and I honestly want to phone Camhs and tell them to take us off their bloody never ending waiting list. Will they mind? Will they think we're not trying to help her enough or be happy that we're saving their funds and going private?

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AndNowItsSeven · 11/06/2016 18:19

Just to be clear its only the carers allowance that you have to not earn more than £105 weekly or be a full time student.

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AllegraWho · 11/06/2016 18:27

papayas , if my experience is anything to go by, they are all to delighted to get someone off their lists. It's really good that you have found someone to help Smile



AndNow, I'd applied for DLA when my DD was in that situation. Computer said no.

This is no reason for anyone not to apply, btw. You might actually get a human being assessing your claim. Just don't bank on it, that way you won't be as disappointed as I was...

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SealSong · 11/06/2016 18:29

I'm a CAMHS worker. I'm so sorry for all of your poor experiences with CAMHS and the awful difficulties you have had.
I'm not going to sit here and try and justify poor services...CAMHS needs to be better. Poor practice needs weeding out. It needs MUCH better funding....but CAMHS alone cannot cope with the sheer scale of the problem. Schools need more support to cope, and lower level supportive services need re-investing in (having been decimated in the cuts, which has had a terrible knock on effect).

There is a national tsunami of mental health problems in children. The numbers of highly risky and unwell children we see in the service these days is many many more than a few years ago.

I really don't know what the answer is.

I am despairing myself, and wonder how much longer I can continue in this job.

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AndNowItsSeven · 11/06/2016 18:32

It's important to fill dla forms in such a way that your child's needs are evidenced. Also need to provide supporting evidence, medical reports etc and be prepared to take it right to tribunal if need be.
w3.cerebra.org.uk/help-and-information/guides-for-parents/dla-guide/
Is useful.
Allegra is crap your dd didn't receive an award.

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Crusoe · 11/06/2016 18:42

YANBU OP CAMHS are shite here too. So much so I have refused to have anything to do with them, they have only added to our problems.
Don't get me started on the appalling parenting course...

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Herschellmum · 11/06/2016 18:51

Crap here too, in fact the whole system is. We have waited over 18 months for an appointment and was told it was another 12 month wait. As for the system, everything says ASD, I have numerous reports all saying ASD, he has an ADOS scoring him moderate, then another 2 weeks later which scored him one point under ASD and then discharged him. All the go on about is no money but it's the fact they are being unethical and dangerous with us they Treat our kids. So fed up with it all.

Hugs OP ... you're not alone and it's no right nor fair. These people need held accountable!

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Anonquestion · 11/06/2016 18:52

I suspect that closing cases is really important, same as in sock. servs. It is absolutely not on though, to close cases when you think you can get away with it, rather than if you think they actually should be closed.

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starry0ne · 11/06/2016 18:55

I kind of feel really guilty but my Ds is currently CBT from CAHMS..For problems far less severe than anyone else on this thread. I realise reading these threads how lucky we are..
I have had a really positive experience so far.. No suggestion these things are my fault or a parenting course.

Also my DS also got diagnosed this year through school ( not relating to CAHMS issue) but he is a much happier little boy with the diagnosis and it helps him understand why some things are different for him.

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Anonquestion · 11/06/2016 18:56

I have no idea about dla and I daren't ask the CAMHS worker as I'm sure it will just make them suspect me even more... can you apply for it before a diagnosis of asd? Could you get it if your child has depression and anxiety? Because then I could use it to pay for private treatment.
Just realised how absurd it is that I'm too scared to mention benefits advice in front of my worker... how fucked up is that....?

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Anonquestion · 11/06/2016 19:00

I really feel that a lot of the good workers have left... the first one we dealt with was quite nice but went of long-term sick... the one we have now is a horrible cold dispassionate butch, I cannot stand her. She shows no empathy at all and treats us with such disdain. I would dearly love to complain about her but am afraid if I do we will have assessments delayed even further.

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AllegraWho · 11/06/2016 19:03

SealSong, I've heard many MHand education professionals say that the number of MH problems in children and teens rose immensely in recent years.

I wonder if that really is the case or if it's down to the way these things are percived now. When I was growing up, we did not have AS, ADHD, or.depression in children and young people. We had "retarded" children, "naughty" children. "manipulative" children and "unmanageable" children. It would not have occured to anyone to seel psychiatric help for any of these kids, there.was.a huge stigma about MH problems. The accepted treatment was a good spanking, and if it didn't work, the concensus was that they were beyond help.

And the sucidal ones succeeded more often than not and if they didn't, they'd be locked up for a while and medicated into oblivion. Or electro shocked.

Now we know that these children can be helped... But haven't got resources in place to do so.

On balance though, it is progress. It's just that we have ways to go yet.

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knittingwithnettles · 11/06/2016 19:03

CAMHS offers a lot of false promise, but the truth is, apart from a diagnosis (which we WERE lucky to get - that was a quite smooth process, although it ultimately took a year) they offer no actual, direct help.

That responsibility is usually passed to the school or Family Therapy. Which is not much cop really Hmm

So, read up, put any strategies in that you can think of (Thornrose - what changed my life was reading Non Violent Resistance book which made me realise that I was the most important person in ds2's life NOT school or a therapist or bloody CAMHS) My strategy was to home educate ds2, and make new friends with those who had different approach to children's learning. Not for everyone.

I think there is a stage where you believe someone out there can help but it certainly isn't CAMHS Sad Mumsnet is much much better at giving advice.

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knittingwithnettles · 11/06/2016 19:06

I've met a lot of people who have recommended CBT for anxiety. Luckily ds doesn;t have anxiety anymore, but I still use a lot of the strategies when he occasionally gets worried by things. I don't know whether he would have ever engaged directly with a therapist though. But the method has helped ME frame things to Him.

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AndNowItsSeven · 11/06/2016 19:11

Anon yes you don't need a dx of Asd or an actual dx of anything. You just need to show your dd has more needs than an average teen and there is a medical reason for it.
Discharge summary from hospital will be fine plus any camhs or Gp letters you have.
Please Pm if you need help, if your dd is 16 it's pip not dla.

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AllegraWho · 11/06/2016 19:20

Knitting, we tried for a long time to get CBT for DD, but our CAHMS was vehemently opposed to it, because they saw it as a "sticky plaster" that does not deal with root causes of anxiety.

This root cause (once they decided that there might be one other than AS) was, of course, poor parenting, especially the fact that I "did.not facilitate DD's relationship with her father." Her father ceased all contact with her shortly after us splitting, and we had, and have no idea where he is. I did the next best thing by ensuring she had a relationship with his parents, but apparently, I shpuld have tried harder.

Anyway, I then managed to get enough money together for private CBT, which lasted one session, after which I was told the therapist (the only one in our area that would work with under 18s) could not continue because of her sucidal thoughts, and she had to go back to CAHMS.

So I did the only thing that was left and DIYd it, and that actually helped - because it helped me frame things for her and actually achieve some success.in reprogramming the way she thinks.

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mummytime · 11/06/2016 20:23

The reason the young person's mental health Tsar was sacked was partly because she said the increase in mental health issues in young people was linked to exam pressure. Which of course is not something you can criticise.
Even if my DD and I are seeking alternative ways to get to Uni, as her mental health has improved exponentially since she had to step off the exam treadmill.

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snowgirl29 · 11/06/2016 21:58

but CAMHS alone can not cope with the sheer scale of the problem

Agreed. But I don't think CAMHS would have such a sheer scale if patients were assigned off to the right department properly in the first place. For example, everyone knows what's wrong with my DS, it's more than evident to anyone who spends 30minutes with him, but we have an arse of a paed, the one responsible for the dx refusing to entertain any of it. Not only is it unhelpful to my DS, it's also unhelpful to a child who urgently needs a CAMHS assessment but can't get one because they're too backed up with unnecessary referrals from useless professionals.

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Gide · 11/06/2016 22:30

Does your dad's school have a decent SENCO? I think that's the way forward if you do. Our SEN lot are fabulous. In nearly 15 years, I've never seen CAHMS do anything of any worth. They drive me crackers.

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Anonquestion · 11/06/2016 22:38

Thank you Herschellmum x
I can't believe all these horror stories, I thought my family had just been really unlucky.

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