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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU re friend 'pushing' cancer 'cure' info at me.. possible trigger

60 replies

alltoomuchrightnow · 09/06/2016 20:51

I'm not sure if I am, too sad and overwhelmed right now.

DP's lovely DSIS is dying right now of terminal cancer (she's also my close friend)
I've also just had bad news re a much loved relative , also with incurable cancer; this came totally out of the blue so everyone's in shock, obviously most of all them (relative was not actually ill but they might only have a short time now)

Friend (more acquaintance really) has been sending me links for months on FB etc to a certain man's site /theories etc . She is convinced that anyone that follows this man's advice can be cured. I asked her for proof and if she knew anyone who had.. no not personally she said but it's true and even the most incurable can be cured IF they believe and follow his diet/ advice
I have lost people to bone cancer and I thought that was incurable , for example, but I am no expert on cancer. My uncle stayed positive but died of bowel cancer. etc etc (and ate healthily, never smoked/ drank etc)

She has been sending me the links for ages to send to DSis in law as she says that she can be saved if she reads it/acts on it. But DSIS is the most positive, cheerful optimistic person I've ever met. She still is even though she possibly has weeks left. Her fighting attitude is sadly not saving her. Cancer too aggressive and a rare form.

Acquaintance thinks if she follows this man's advice it can be turned around still. It's like she's brainwashed.
Anyway I told her the sad news re my relative and lo and behold she's bombarding me with the links again. That if I show my relative., then they has the option to be cured…if they follow the advice…
I keep telling her that my relative is in absolute shock and has asked NOT to be contacted in any way (has asked to contact their sibling only..it was sibling that broke the news to me and rest of family) as relative cannot cope with the phone calls and messages as is just breaking down with the reality of the diagnosis , thought of leaving small children behind etc

I tell acquaintance that I have to respect relative's wishes and that we are there for them if they ask us to be but have to leave them alone in the mean time whilst they try to come to terms
I feel that acquaintance is basically thinking I'm signing relative's death certificate by not forcing them to watch/read the info (and act on it)

But I know acquaintance is well meaning. She is trying to help.
AIBU to think that some things can't be cured (but might be able to buy more time) or just too pessimistic. I didn't used to be like that but I've lost quite a few people to cancer , most recent being a childhood friend (who also stayed very positive and optimistic/ non bitter, to the end)

She does not get that relative does not want to be contacted and is far too broken to read/ watch anything like that. That is their choice, I respect that.
But what if she's right?? But I know I'd really hurt my relative by disrespecting their wishes and would probably find it pointless and patronising. Acquaintance cannot believe that I'm not going to 'make' relative see/ read what this 'curer' has to say

OP posts:
exexpat · 11/06/2016 10:31

Sorry, sister-in-law not sister.

Wolpertinger · 11/06/2016 11:17

I work in Palliative Care. I have seen people do literally every single one of these. And they are all dead.

Some of them do it along side conventional treatments and know it doesn't really work but want to feel into control and like they are supporting their body, doing something natural, whatever. Some people reject all conventional treatment and spend fortunes going to Mexico (bit out of fashion now, the big place to go currently is Germany).

It doesn't matter, the outcome is the same and the pain and heartache they go through when they realise that the certainty they have totally invested often coincidentally spending their lifesavings and eating a nutrient deficient and miserable diet for weeks or months in was complete bullshit is tragic to see.

Every patient diagnosed with cancer seems to attract people recommending they do this or that alternative treatment which will totally cure them usually involving positive thinking It happened to my Dad and my parents found it very upsetting and lost friends over it. Usually we just say 'they mean well and they want to help' but I don't think they do - what I think they mean is 'I am scared of cancer and I want to think it could never happen to me, I have the special answer of thinking the right thoughts which will make it go away'. It isn't about helping you, it's about helping them.

I would tell this person in very blunt terms to back off and that their intervention is upsetting you.

WhatWouldLeslieKnopeDo · 11/06/2016 11:56

Do you actually want to maintain a friendship with this person? I could maybe understand one or two bullshit recommendations. But she has gone too far.

Is it one of the treatments debunked in the Cancer Research UK science blog? If so, you could send her the article. Though she will probably take it as evidence that you are brainwashed.

It is often impossible to reason with people like this. They are very invested in these crazy "cures", usually out of fear or greed.

If someone suggested this sort of thing to me, I'd have difficulty not telling them to fuck off to be honest!

I'm really sorry about your sister in law and other relative Flowers you are absolutely doing the right thing not passing this nonsense on to them.

MrsHardy1 · 11/06/2016 13:58

Flowers so sorry about your SIL. My nan died of cancer and a family member starting posting this sort of shit. 'eat seeds with fruit juice squeezed on everyday, you will be cured. The nhs don't want you to know this!'

I re-posted a link she shared and a comment along the lines of 'why do people post this shit'. Resisted the urge to ask why she received treatment for her ailment if the nhs was such a farce and a 50p fruit was medicine.

Please tell her to fuck off OP, you don't need this. It wont cure your SIL x

Please tell her to sod

CMOTDibbler · 11/06/2016 14:25

I've worked in oncology for over 20 years now, originally in a hospital, now for a radiation therapy manufacturer. I've worked with hundreds of oncologists. And to me the 'nhs doesn't want to cure cancer' thing is so incredibly offensive - why? Because those oncologists, they are people too. They lose friends, spouses, relatives, their own children. Then go to work and everyday tell someone it will happen to them. If they believe something really makes a difference, they'll put everything into proving that and getting their patients access to it.

I'm so sorry about your SIL xx

alltoomuchrightnow · 12/06/2016 22:04

sorry had not been back on here.
On Friday night I wrote that Dsis law was coming home to die but she actually died in hospital later that night. It's not really sunk in yet. DP went home to be with his family.. he's still there
Thanks for the input here and so sorry for all your losses.

As for my relative…. there's both 'good' and bad news (more bad) . It hasn't gone to lymphs amazingly but there's another big tumour found

OP posts:
Skiptonlass · 12/06/2016 22:41

Hi. I'm a scientist and my background is development and genetic/cancer genetics

This sort of thing drives me mad. The assumption that doctors, scientists, literally thousands of people are just sitting on a cure. Doctors, and scientists like me devote our lives to finding and developing drugs. If there was even a cheap generic non patentable cure then believe me, pharma companies would find a way to make money out of it. They're good at that...

Anyway, there isn't right now. Some of the newer immunotherapy research is showing great promise but we are decades away from a cure.

There are a significant number of people who claim they can cure cancer via various quack methods. They range from well meaning and deluded to hard nosed manipulator a who will con the desperate.

I'm really sorry your relatives have this cruel disease and sorry for your loss.

Please keep these charlatans away from them. You may wish to remind your friend that it's a criminal offence to make medical claims that are unsubstantiated, as well as being incredibly cruel. I'm afraid I'm not polite in situations like this. Of people persist in peddling snake oil I go after them scientific guns blazing

Dozer · 12/06/2016 22:46

I'm very sorry about your sister in law, and your relative. SadBrew

flibbidygibbet · 12/06/2016 22:53

I'm so sorry

Willow2016 · 13/06/2016 00:04

So sorry to hear your bad news.

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