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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to be frightened and worried

62 replies

thebigmummabear · 03/05/2016 20:19

Im posting on here for traffic as I'm worried out of my mind. I have had bleeding after sex for around a year. I went to the GP and i was referred for a colopscopy. I had some biopsies done and they came back as CIN 1, so minor abnormal changes and i was told to come back in a year. However, the last 3 months the bleeding has become worse and sex has become uncomfortable at times. I was going to ring and make another appointment with the GP when my routine smear test came through. I went and got it done around 3 weeks ago. I had a letter turn up this morning to say that my smear test has come back abnormal and i have also tested positive for high risk (for cervical cancer) HPV and i have an appointment at the hospital next week for further tests. Im so worried. Last year when i went to the GP the wait time at the hospital was around 3 months for an appointment after the smear test result so I'm now worried that its only a week this time. Iv also had a phone call today from the hospital about the appointment. Im worried about this result, along with my other symptoms and the fact my grandmother had cancer of the cervix/womb and had a hysterectomy as a result. I am only 25, i have two young children one of which is disabled and i haven't been able to stop crying all day thinking the worst. Does anyone have any similar experience or can even just offer me some advice.
Thanks

OP posts:
Justaboy · 03/05/2016 22:39

Just to add to that do not goggle things like this there is very little decent information out there on most all medical subjects except dedicated medical sites and you need a quite a bit of medical know how to interpret most all of it.

That's what me GP says and shes one of the best:) Bless her.

Your best bet is to try to distract yourself and much as possible OK I know that's easier said but I've been there before with a cancer scare and keep an optimistic outlook!

All the best anyway:)

Mishaps · 03/05/2016 22:45

All the right things are being done for you, as you have taken all the right steps. Well done.

Quit googling! - madness lies in that direction!

I am sure that the reassuring posts on here will help you get through the waiting time. Don't panic. Flowers

Ambroxide · 03/05/2016 23:16

I had CIN 3 back in about 2001 and had LLETZ treatment and have never had another abnormal smear test (yearly since then, am now 47). Don't panic. The treatment is highly effective and chances are you will be absolutely fine.

Whattheduck · 03/05/2016 23:20

I had a similar experience bleeding after sex,bleeding inbetween periods and two abnormal smear test results.I was referred for further tests involving a scan and an internal investigation and another smear.It turned out i had a polyp which i had removed last year and was tested and came back clear.since then I haven't had any bleeding and have had a smear test since which was fine.if I remember rightly you have to be seen within 2/3 weeks

thebigmummabear · 04/05/2016 08:56

Hi everyone, thank you all so much for your replies. I am feeling much better this morning and going to stay away from google as it is doing me no good and i know that you are all right, all your positive stories have made me feel a lot better and maybe i got in a bit of a flap yesterday. Thanks so much

OP posts:
gingergenie · 04/05/2016 09:03

I was CIN3 about 8 years ago - was petrified. All a bit of a shock as I had no other symptoms and serious abnormalities resulting the loop thingy. I've had another child since, and all smears since have been fine. The thing with smears is they catch stuff early, so hopefully the fact that you/they are on the case will mean that it is all caught and dealt with before it turns nasty. Best of luck x

dowhatnow · 04/05/2016 09:11

I had cervical cancer and I'm fine now after a hysterectomy so even in worse case scenario, it's a "good cancer" to have, if caught early through a smear test.

How long ago was you last smear? It doesn't sound very long ago so I'd say you are worrying needlessly - but I do remember the not knowing worrying and it's horrible.

Thanks
thebigmummabear · 04/05/2016 17:26

Im sorry you had to go through that dowhatnow, my last smear was a year ago, so not long really, its just my symptoms have worsened since then and now have tested positive for the high risk hpv. Thanks for all your support

OP posts:
Playduh · 04/05/2016 17:28

Just on to say I had all this too. The GP caught it. The op was fine and I've gone on to have kids since.

Flowers OP, I was shit scared when I was in your shoes too. Try not to worry.

dillydotty · 04/05/2016 18:38

Another one who had stage 3 and the letz about 15 years ago. All fine since including one natural birth. Bloody scary at the time though.

AmandaJayne37 · 11/04/2017 13:35

Hi can anyone tell me if this has happened to them and what it was? I had cn3 in April last year, had the treatment, all clear. Called for a follow up in November then cn1 was found I am now due another follow up next month but I can't help thinking why would I have cn1 when I was clear, why would it develope that quick. Sick with worry has anyone had this result? X

joystir59 · 11/04/2017 13:41

Don't you have a friend who could come with you?

BasicBetty · 11/04/2017 13:45

You're in good hands and great that you're being seen quickly. Flowers Take care

AmandaJayne37 · 11/04/2017 13:47

Taking my husband Havnt told anyone else, thanks x

AmandaJayne37 · 11/04/2017 13:47

Thank u x

FairytalesAreBullshit · 11/04/2017 13:49

I think you need to see a gynae as it could be endo or pelvic congestion. Pain during sex isn't normal, neither is bleeding unless DH is super well endowed. I would get on to your GP about a referral ASAP.

DJBaggySmalls · 11/04/2017 13:51

I wish I was better with words and could reassure you. I had exactly the same as you OP, (and a breast lump!) and it all cleared up by itself.

In the worst case, you have caught it early, I have 2 friends who've had a hysterectomy as a result of cervical cancer. They've both made a full recovery.
Please do yourself a favour and stop googling symptoms, it wont change anything and it will make you feel worse. Good luck, and I hope you get a good result. Flowers

twinklehickorymoomoo · 11/04/2017 13:56

I also had bleeding in between periods and went for a smear test and had cin3. I'm an idiot and didn't have a smear test for the whole of my 20s, had my first in my early 30s as I kept putting it off. Had lletz to remove the cin3 and then a smear test 6 months later which was clear and now I'm back on 3 yearly smear tests.

onwardsandbeyond · 11/04/2017 13:59

this thread is a year old

shovetheholly · 11/04/2017 14:08

It is a year old thread, but AmandaJayne is a new poster who wants advice and handholding.

Amanda - I think this can happen - it's why you are on repeat checkups to ensure you are OK. Please try not to worry. CIN1 is very treatable if treatment is needed.

daisychain01 · 11/04/2017 14:09

AmandaJayne37 it would be well worth starting your own thread so people know it's you who needs support and can give you more specific advice/help ongoing.
Otherwise it gets confusing with a thread belonging to the other OP.

Really hope all goes well and keep taking the Mumsnet medicine, it will get you (((better and stronger)))

SydSaid · 11/04/2017 14:10

Try not to worry. They move quickly as a matter of course when cancer is a possibility.

I went to my gp on Thursday about a lump in my breast. She said it didn't feel like a cancer, but would refer me. I got a phone call the next day asking me in for an appointment today to see the consultant. He also says it doesn't feel like a cancer, but I will be sent for a mammogram within two weeks, just to be sure.

Neither doctor thinks its cancer (and they wouldn't say that unless they really believe that), but I'm still getting treated like it is a possibility.

Good luck op :)

BewtySkoolDropowt · 11/04/2017 14:11

Oops, just noticed Zombie thread. Good luck Amanda.

kathkim · 11/04/2017 14:22

I've resurrected some Zombie Threads today but not this one. Don't feel quite so bad now. It happens! Blush

kathkim · 11/04/2017 14:23

Sorry, Amanda please try not to worry. You will get support here. You've come to the right place, if not the right thread. Just my little joke Wink