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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I am sure that there is a problem with my baby somehow but aibu to try to ignore it

64 replies

ithinkitstimeforanamechange · 29/04/2016 14:47

My baby is 6 months posted about half a million times about my worried on here so won't go into huge detail again but basically she gets lots of marks on her legs (and some on arms) little non blanching spots and larger areas (although still small) that look like bruises.

I have taken her to see three gps who tell me to ignore it and she must mark easily but she is my 6th child and I am convinced that is not the case there must be something causing it.

However, I also have PND and am on medication for it, feeling a lot better but it's obviously relevant background !

She has more of the little spots today one side of her leg has little bruises. I'm ignoring it even though I think it's a problem somehow .

Aibu to do this because there is nothing else I can do?

OP posts:
ithinkitstimeforanamechange · 29/04/2016 16:21

Ah kiwi yes that was the thing that was mentioned on the last thread! But my gp dismissed it because she's hD it a few months without it getting either worse or better. Not sure if that's right or not!

OP posts:
ithinkitstimeforanamechange · 29/04/2016 16:22

I think the issue is it not covering her or even her legs its maybe 20 spots around , but the the next week those will face and the same number will be back but in slightly different places!. So you couldn't say she's covered in a rash it anything!
So maybe I am just overthinking it!

OP posts:
KiwiLemon · 29/04/2016 16:23

Hmmm if you have the time or patience maybe ring 111 so you can see a hospital doctor? Any mention of rashes under skin in a 6 month old will guarantee an immediate referral. It was hell staying over but at least we got a diagnosis. Hope you get things sorted X

Fourarmsv2 · 29/04/2016 16:27

My son had ITP and a platelet count of zero for some time. He had little red marks (the type you get on your shoulder from carrying a heavy bag) and bruises. He had the red marks in his mouth too. He bled a lot from his nose.

Ask for a referral for a blood test. My son was seen in A&E several times (meningitis / septicaemia symptoms when described to 111) before I turned up at OOH GP with a printout of ITP symptoms.

Did she have a virus before it started? DS got it after chickenpox.

scaryteacher · 29/04/2016 16:27

The acronym stands for Ideopathic (or Immune) Thromocytopenia Purpura, and it means that you have a low platelet count. It is usually acute in children (will appear and then go), and chronic in adults. I've had it for 20 years.

I would insist on a blood test just to see. My ds was born with it, as I got it whilst pregnant, and it resolved itself after 6 months or so.

I also thought there was something up with my son at the same time, but kept getting the fob off from the doc (over anxious mother etc), until I had a melt down, and got referred to the paeds. They took one look at ds and diagnosed the rather large hole in his heart, which according to my GP, was me being daft. I got Rolls Royce treatment at the GPs after that!

The ITP website is here: www.itpsupport.org.uk

It is very informative, and has a section on child ITP.

Fourarmsv2 · 29/04/2016 16:31

My son always has some marks when his platelets are low, bruises mean very low.

ithinkitstimeforanamechange · 29/04/2016 16:35

She had been in hospital twice once at 5 weeks once about 6 weeks ago with chest infections she had iv antibiotics, oxygen and feeding tubes. They tried to get blood but it was really hard they only got a few drops in the end (after trying for an hour which is ingrained in my mind). They did a test for an infection in her blood

? Would that measure these platlets?

OP posts:
ithinkitstimeforanamechange · 29/04/2016 16:37

I have been trying to see how many marks she actually had its hard because she's s very mottled skinned child! So it's trying to distinguish between a mark and just her skin!

OP posts:
ithinkitstimeforanamechange · 29/04/2016 16:38

Should add she has a cold again atm and cough so hoping that doesn't turn into yet another infection.

OP posts:
ithinkitstimeforanamechange · 29/04/2016 16:42

See on this leg she only has maybe 5 little marks on the front which you can see but her skin is so blotchy it's hard to tell if they are just part of that. Argh

OP posts:
Fourarmsv2 · 29/04/2016 16:47

I'm sure for an infection they'd have done a FBC. Did she have the marks then?

ithinkitstimeforanamechange · 29/04/2016 16:48

They only got literally to or three drops of blood in the end. They just about managed to get the antibiotics in at one point they were saying they might have to inject it in her muscle or something .

The said they were testing for bacteria

OP posts:
squidgyapple · 29/04/2016 16:49

if gp really won't refer could you afford to pay privately to have her checked out by a paediatrician?

greybead · 29/04/2016 16:50

My ds had bruises as a baby because he had a deficiency of a clotting factor. I think they should do a blood test. Keep asking them.

ithinkitstimeforanamechange · 29/04/2016 16:51

Sorry before that she had them - but only maybe 2-4 at one go since then she's had allt more at one time.

OP posts:
Atenco · 29/04/2016 17:09

My dd had the Mongolian blue spot when she was born, it's a racial thing and disappears very quickly.

Could you change gp?

cabbagewhite · 29/04/2016 17:10

Ehlers-Danlos syndrome can cause bruises and marks, in fact, they are often the only sign in a small child as the hypermobility is 'disguised' by a child's natural bendy joints. There are several recorded cases in the U.S. of children being removed for physical abuse when in fact they had EDS - it can be as bad as that. It is classed as a rare disease but is not that rare, it is just rarely diagnosed. The symptoms vary from person to person and also can change as a person ages.

5minutestobed · 29/04/2016 17:25

Tbh I would take her to a&e, say she has a non blanching rash I'm sure they would do a blood test for you. When DS had ITP the GP sent us straight to a&e just in case. I'm really shocked that your GP seems so un phased by it. In such a little baby you think they would want to check it out.

ithinkitstimeforanamechange · 29/04/2016 18:18

Aten - I could buy I would have to travel to another town I'm not sure if I'm allowed to do that?

OP posts:
ithinkitstimeforanamechange · 29/04/2016 19:15

Can I take her to a and e if it's not an emergency Blush

OP posts:
NeverNic · 29/04/2016 19:31

Does your local minor injuries unit have a GP?

Janecc · 29/04/2016 19:37

I wouldn't unless you subsequently decide it is an emergency. You'll be there hours and hours now, it's Friday night. They'll be focused on the people on drink and drugs shortly and as a non emergency, you'll be way down the list. We went to a and e with DD last week during school hours. She was in, monitored and checked all in 2.5 hours. She came from school in an ambulance with a head bump from a seizure. A baby was there who hadn't poo'd properly for 9 days. The mother and baby were there before we arrived and still hadn't seen a dr when we left. So if you go take plenty to eat, drink and read etc.

Janecc · 29/04/2016 19:41

I would ask your GP for a second opinion from a GP from a different surgery. You can register with a GP not in your catchment under the patient scheme but they won't offer you some services such as some out of hours services I think and home visits - but then you have to be practically dead to get a home visit.

shonasybarbaric · 29/04/2016 19:41

Also really shocked your GP is so unwilling to refer her. I would be very very firm with GP that this is nothing to do with your PND (and if anything, if it's not investigated it could make you feel worse I imagine), and that you want a second opinion. It might not have got worse, but she's had it for 3 months and it's not going, so she needs seeing by a paediatrician. Can you take anyone with you to the GP for moral support? I can't see why they won't make a referral. It's not on Angry.

CuntingDMjournos · 29/04/2016 19:44

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