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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to think that those with disabilities are being hit particularly hard by the cuts ?p

231 replies

BigChocFrenzy · 21/01/2016 22:10

Just 3 of many grim reports:

Because her care package was slashed, Rachel has to sleep some nights in her wheelchair, in pain, cannot get enough to eat and was diagnosed as malnourished.
Is the aim to kill her off, to save money ?

Luke who had schizophrenia and was unable to perform many simple daily tasks, committed suicide after his incapacity benefit was removed and his housing benefit cut.
Well that worked. He's dead now. No more costs.

Nick who has advanced MS cannot walk, feed himself or talk. The DWP said he would lose his benefits if he did not attend an interview.
Since he can only communicate by blinking, he was saved by having a partner who could phone on his behalf.
Curses, the Master Plan was foiled there.
Never mind, the DWP will try again later. He's too expensive to live.

How did we come to this ?
All in our name ?

OP posts:
Dawndonnaagain · 22/01/2016 16:46

Genuine claimants will be able to get PIP easily
Welcome to lala land. My dh had to go to appeal. Despite a good few pieces of evidence. He can't walk, he falls, he can't dress, toilet himself. He is in constant pain and developed prostate problems at the age of 38. It took us nine months. Fortunately we got to tribunal and the dwp were laughed out of the room.
Your Asperger's comment is equally disgusting, what do you know about AS? Not a lot judging from your comment.

Owllady · 22/01/2016 16:46

Yes, it's certainly affected my child who is one of the most vulnerable in society and I imagine this is only the tip of the iceberg :( David Cameron really ought to be ashamed of himself, he disgusts me.

UndramaticPause · 22/01/2016 16:48

I don't know about aspergers because I have no experience of the condition dawndonna how is that difficult to understand?

I'm not saying there aren't failings in the system but I am saying it's not all grim. Perhaps I'm lucky and my area is just really organised.

Vaginaaa · 22/01/2016 16:50

If you don't understand a condition enough to comment on people with it working, then don't comment about it. Aspergers might leave you physically fit to work but surely anyone with a brain can guess it might not leave you mentally fit to work (along with other invisible disabilities). Hmm

UndramaticPause · 22/01/2016 16:52

I asked a question in my post. Can someone explain why people with aspergers need to claim pip. I understand it's a form of autism so presume social awkwardness to a degree??

Vaginaaa · 22/01/2016 16:54

You asked an ignorant question. How do you know if a "physically fit" person with Aspergers is "more than capable of working" if you have no clue about Aspergers. Goady.

UndramaticPause · 22/01/2016 16:55

If a lack of knowledge is ignorance then I'm guilty. How is asking a question about something goady?! Ffs

Dawndonnaagain · 22/01/2016 16:56

Then do some research on it. You maybe are lucky in that your area seems to you to work, but you are one person. The news reports, the reports of deaths etc. are not made up. Your experience is one experience.
Please bear in mind that AS often comes with co-morbids, anxiety, depression, odd, tourettes. My son will be able to work when he finishes uni. He will only be able to work in an uni environment because his physical tics are so violent that he frequently ends up on the floor. That is a small part of his Asperger Syndrome, but it has a huge impact, it means he can't go out for coffee incase he spills it on somebody else. He can't use public transport in case he accidentally hits someone. He can't cook for himself because if he tics with a knife in his hand he could (and has) caused serious damage to himself. He can't cook because he can't lift hot food in a pan or remove hot food from a microwave. He falls over and damages his clothes because his tics are so violent. He's broken three laptops, two 'phones and a a couple of tablets in his time at uni. He is as deserving of PiP as anyone else. He also has other serious difficulties related to his AS. But if you've met one Aspie you've met one Aspie.
I commented because you are doing what this government wants, by commenting in the way you did you appear to be pitting one group of people with disabilities against another. Just because you cannot see the impact of AS doesn't mean it doesn't exist.

seasidesally · 22/01/2016 16:56

agree,when i was first on PIP i didnt have a huge amount to resourse out but as my physical condition has got worse and am a single parent with no father involved im finding it much more difficult to cope

so my pip is now paying for a cleaner every 2 weeks for 3-4 hrs to do the more difficult tasks,my eldest also helps but i prefer to pay somebody to do this and then i know its done,also i will be getting a gardener as its pretty big,i can potter but hedges etc i just cant and with my balance am not safe to

basically my pip is really helping me and my family i have no idea how i would manage otherwise

Dawndonnaagain · 22/01/2016 16:56

OCD bloody autocorrect!

UndramaticPause · 22/01/2016 16:57

Thank you for explaining that to me dawndonna

Owllady · 22/01/2016 16:59

Autism is a spectrum disorder. From my understanding those with aspergers are at the higher end of the spectrum because they have a higher IQ but that doesn't mean they won't have complex needs. No two people with autism are the same. I'm not an expert but I've worked with people who have aspergers who are extremely vulnerable for all sorts of complex reasons but the in particular just couldn't read social cues very well, he ended up trusting people he shouldn't, which ended up in him getting hurt physically etc. He definitely had a disability. I had to manage his schedule and his behaviour at work but I could only do this because I live with someone who also has autism (and a whole heap of other shit going on)

UndramaticPause · 22/01/2016 16:59

It's the lack of uniformity in the system that's so shocking. My experience of PIP is genuine and the possibility I could go to another part of the country for assessment and wait years and be turned down is appalling. If I get it in one part of the uk I should get it in another.

Darvany · 22/01/2016 16:59

A ten second Google and a bit of common sense would have answered your question.

We don't just live in a physical world. It is populated by people. So someone who struggles with communication and understanding social behaviour is disadvantaged.

When my son was diagnosed there was a study which showed that future success was determined more by a person's interaction abilities than by intelligence. Very interesting.

UndramaticPause · 22/01/2016 17:00

Thank you owllady

Vaginaaa · 22/01/2016 17:00

It's goady because you didn't ask why someone with Aspergers gets PIP. You asked why someone with Aspergers who is "more than capable of work" gets PIP. If you know nothing about AS, how do you decide they are more than capable of work? Hmm

Darvany · 22/01/2016 17:01

X-posts with everyone Smile

Owllady · 22/01/2016 17:02

Dla and pip are 'in work's benefits :)

Twirlywoooo · 22/01/2016 17:04

Undemocraticpause if you have no idea just how debilitating having Autism can be, then I suggest you educate yourself on the subject before commenting on DLA or PIP eligibility.

Here's a heads up, ASD is a lifelong Neurodevelopmental disability. My ds has Aspergers. He receives DLA. AS affects him both physically and mentally. He has poor muscle tone, joint laxity, loud noises cause him physical pain, he has a very restricted diet and associated gut problems requiring regular medication. He has crippling anxiety, sleep issues, he chews everything. He struggles socially, has little danger awareness, cannot cope with change. His routine is almost sacrosanct.

Don't let the fact he is very intelligent, can walk, talk and is in mainstream education fool you. He spends his days trying to fit in. It exhausts him. He comes home and hides in his room to cope. He is 7.

ChampaleSocialist · 22/01/2016 17:07

YANBU. I am disabled with a permanent, progressive but not life threatening neurological condition. Its like Parkinsons but not fatal.
I need a carer for at least 12 hours a week, and am not entitled to any help with the cost. I'm not entitled to PIP. (the old DLA).

Thank God something went right for me and I was recently put on to top rate ESA, so I no longer have to look for work.
That means I can if I want to (I do) but if I have a bad day and cant do it I dont get penalised. Its going to make life a bit easier.

Samcro · 22/01/2016 17:12

'people having a whinge."

When people post stuff like that( yes I left out the rest as it was goady)
you can see why there isn't a big hue and cry about this,
we are seen as wingers !!

tizzylittle · 22/01/2016 17:13

The nazis created a climate of fear in their relentless persecution of the Jews. This government is doing the same. God help the poor, the disabled, the sick and the vulnerable. The heartless bastards in government do not give a flying fuck. Yadnbu.

BeckerLleytonNever · 22/01/2016 17:18

Have a look at 1930s Germany - all the same is happening, before they started on the Jews they Nazis killed of as many disabled people as possible

This^^ and

^He was awarded DLA for life. I consider this government (and the previous Coalition one) to have betrayed him, and everyone like him. If ATOS/whoever it is now/David Cameron has discovered the cure for autism - he should feel welcome to share it with the rest of us. Ditto all the other conditions that are suddenly not so severe as they were.

I currently feel like I am undergoing a slow painful death by assessment - and I'm not even disabled. My adult DD has severe disabilities and I care for her at home. A large part of my day is taken up in meetings, phone calls, chasing e-mails. She has just undergone an interim re-assessment for Continuing Healthcare (yes her disabilities are that severe). One of her HCPs had a questionnaire to fill in about DD and even she was tempted to just write "She is NOT cured" on it and send it back. My DD was born disabled, she is never going to get any better - in fact she is deteriorating as she gets older. We haven't had anything cut yet but we have to fight for everything we do get and nothing happens quickly. I htink they are trying to wear the carers into the ground as well as killing off disabled people^

^^this and

^I am so disheartened that someone who had a son with disabilities shows such a lack of compassion
In my naivety I thought he would use his power to increase the quality of people's lives not cause more grief
Money is his God and may he remember this when he needs help^

EXACTLY.

UndramaticPause · 22/01/2016 17:51

I used this site to help with my application. Hope it helps others it also shows how the points are allocated

UndramaticPause · 22/01/2016 17:52

how the points are allocated