to think DP's timing was ill-advised?

[ohdearlord]

I have severe endometriosis (treatment is underway to put me into the menopause and the worst is probably over) and the pain is bordering on the unbearable today. But, DP is away with work abroad and it's DD's birthday tomorrow. I have a treatment plan for acute episodes - but I'd need to stay in which won't fly today.

Texting with DP. We use the 0-10 scale so he can quickly understand where I'm at as I tend to minimise verbally and he can't judge how bad things are.

We established it had been hovering between 7-8 today despite meds. At which point he blithely and insensitively states his thumbs hurt from texting so much because he hasn't got iMessage set up on the computer over there and needs to go. And then got rather irritated when I suggested it was possibly the definition of a 1st world problem, and he could just use his phone as a hot spot.

Am I hormonal and super-sensitive, or was that just dense on his part? Or both?

I have endo & totally empathise your pain, but it's not just pain you have to put up with its the exhaustion that goes along with it - pain is tiring and so is keeping a fake brave face on it all.
Your DPs comment was ridiculous.
He has an iPhone - why can't he use the text dictation function on it?? It's so simple!
On a side note, have you tried a TENS machine? Helps me a bit when meds are not enough meds are never enough .
From your other comments though, sounds like he needs to properly understand how this is hell for you although I'm seemingly too spineless to do this myself with my DP as he's continually clutching at straws (it's because you came off the pill. It's appendicitis. It's kidney stones. It's anything except endo)

The exhaustion is deadening isn't it?

I do like TENS. But, possibly tmi, I get awful pain almost "inside" my vagina/around the labia. Nothing except being admitted and on the PCA or having the anaesthetist from the pain team come and give ketamine seems to touch that.

I've had too many epidurals now, and the last 3 didn't take so they've ruled that out as an option now.

There's never a right time with a chronic pain condition, it never doesn't hurt.

Have they given you opiates other than when you're on the PCA machine?

Thankfully I do have pain-free periods. And on this treatment last year I was "well" and pain free for about 8 months. I'll get there again once this latest round kicks in properly.

I have had oxynorm/oxycontin at home, and co-codamol 30/500. I become opiate tolerant very quickly though and we ended up on v.high doses with dreadful side effects. We decided once we found the GnRH treatment to limit stronger opiates to in-patient.

That's the bugger with opiates, I became tolerant very quickly too.

I was definitely over-prescribed it as a teen/YA before they knew the diagnosis. Often IV. I would be in A&E over and over again in absolute agony and nobody knew what was wrong. We just ended up managing the pain - which had reached hideous levels by the time I was there - and then sending me home again.

yes, it was that it came as the response to my saying the pain was between 7-8. At another point in the conversation I wouldn't have cared.

Ah, I didn't realise it was in response to your statement, I thought it was just within the same (long) conversation, that after an hour or whatever had made his thumbs sore.

In that case, YANBU!

No, we'd been texting for maybe 5 mins. And more or less as a direct response.