My health went downhill at 15. I was healthy before then, a normal weight. As my mobility decreased, and pain increased, my weight crept up. When I finally started seeing consultants about these strange body pains, plus a huge list of other symptoms, they very much focused in on my weight. I explained over and over the pain began before the weight increase, but still every consultants letter began with a line about me being overweight, and that seemed to be my diagnosis for years.
They didn't look into anything else, apart from a test for Arthritis. So there I was, a previously healthy teenage who had been doing ten mile hikes just months previously, now needing to use a walking stick, then a wheelchair, wracked with pain, unable to get through a whole day of college, often bed bound for days on end. And they would shrug their shoulders, and mutter about weight and posture.
Finally 8.5 years later I was diagnosed with Ehlers-Danlos Syndrome, a genetic connective tissue disorder. Nothing to do with weight.
Jorah - as with your experience, I've heard repeatedly of people with Ehlers-Danlos Syndrome/hypermobiity getting worse as they lose weight. Also weight increase seems so easy and common with the condition for a variety of reasons. My consultant did say our stomachs are Hypermobile too, and we will often feel hungrier me often, and take longer to feel full - which is certainly true for me.