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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To fake having a disease, just because what I do actually suffer from is unheard of-even with doctors?

375 replies

XoticEngram · 01/10/2015 18:31

I suffer from a sleep disorder which in itself isn't/shouldn't be a big deal. In the grand scheme of things compared to cancer, or some progressively deteriorating mental condition I am lucky.
However it does limit the work that I can do. Basically it is genetically impossible for me to fall asleep before 2-3 am so if I have to wake at 7am for a job that starts at 9am then its unworkable. If I was in a big city, this would not be a big deal but I live in Cornwall-a place with much reduced work opportunities.

As a consequence of this condition I have been claiming job seekers allowance for a long time. I have repeatedly tried to talk to Drs about it but in this country GPs are useless for sleep conditions and do little other than dole out platitudes about good sleep hygiene.

Now my job seeker advisor-who knows that I suffer from this condition- has rail-roaded me onto a 6 month work program placement which demands that I get up at 7am at the very latest.

Basically I have been put into a situation where I will have to endure 6 months of 360 degree hell with no respite whatsoever. I do not compensate any sleep I miss in the same way as other people. Being exhausted does not mean I fall asleep earlier.

Best case scenario- people on this work placement think I am belligerent and have an attitude problem.
More likely scenario- I incur damage to my health (in the form of excema like rashes-to start with) and succumb to alcoholism (something I have abstained from for over a year) and become a danger to other workers due to concentration problems. And end up receiving benefit sanctions on account of failing to meet the requirements of this program.

If I lived in USA and had easy access to a fire arm I might just turn my self off and experience Peace Perfect Peace.

Ive made an appointment with the Dr. It is unlikely that will be able to help me with what I actually suffer from so I am thinking strategically it might be better to say I am suffering from depression/psychosis in order to try and get myself on the sick. If I am forced to do this program this will probably be the result anyway as constant cortisol has a negative effect on any ones brain.

Please by aware-I WANT TO DO THIS PROGRAM. But the people who run it are unable/unwilling to work with me, refusing to acknowledge that the problems that cause unemployment are intrinsically complicated preferring to insist that a 'one size fits all' approach can be used for everyone. I think one of the people who runs it have an RAF feel about them, so they are probably full of militaristic virtue and belief in a regimented application of a hegemonic schedule in the curing of all of societies evils.
BTW- the name of my disease is Delayed Sleep Phase Syndrome. I doubt you've heard of it, but its a real thing

OP posts:
ImperialBlether · 01/10/2015 19:14

Tons of people have asked whether you've looked for afternoon/evening jobs and you haven't answered.

I think dogwalking could only be a job if you could manage on very, very low wages, eg if you had a partner who earned a good income. It's the sort of thing people take on when they've retired and have a pension as a back up, surely?

XoticEngram · 01/10/2015 19:15

to the poster who said im ignoring questions- im reallt=y not, im going as fast as i can and some answers are really complicated

OP posts:
wonkywheel · 01/10/2015 19:15

Although I massively sympathise with your condition I think if you make a huge push to find evening work you could end up with something only afternoon/evening related quite quickly - it's always the hardest sort of shift to fill as so many people want child-friendly hours (or don't want to disturb their own sleep pattern), or start your own business - either immediately gets the jobcentre off your back and gives you more time for a proper diagnosis.

IsItMeOr · 01/10/2015 19:16

I cannot sleep when I need to Why not?

I appreciate that you're being asked to do a work placement that doesn't fit with your sleeping pattern, but you haven't started that yet, have you?

ilovesooty · 01/10/2015 19:16

Sorry but even with an official diagnosis I think you would struggle with an ESA claim.

It doesn't seem as if you're unable to work.

XoticEngram · 01/10/2015 19:17

ImperialBlether- yes I have looked-constantly-for afternoon/evening jobs....but this is Cornwall. There are not that many to choose from and 99 percent of the time they depend on having a car. Local transportation here is a joke.

OP posts:
Sirzy · 01/10/2015 19:17

So do you really think the job centre should listen to someone saying "sorry I can't get up early I have a medical condition..... No I have no diagnosis .... No not undergoing tests.... Dr google says... I take medicine though I got it online"

They probably hear every excuse under the sun so aren't going to make exceptions unless they have proper medical evidence not just dr google and self diagnosis.

FarFromAnyRoad · 01/10/2015 19:18

I'm sure it's no fun for you OP but seriously - no official body is going to recognise a self diagnosed condition or everyone would be at it wouldn't they?
What website did you use to diagnose yourself?

bessiebumptious2 · 01/10/2015 19:18

How bloody stupid to self diagnose then go as far as getting medication on the internet!! You have no idea what you're taking. Presumably you watch TV late into the night, so surely must have seen all the documentaries on this kind of stuff and how lethal it is?!

What do you do all day, out of interest?

wonkywheel · 01/10/2015 19:18

What part of Cornwall are you in? (just roughly)

Sirzy · 01/10/2015 19:18

No bar work in the whole of Cornwall?

Is moving out of Cornwall a possibility?

yorkshapudding · 01/10/2015 19:18

Melatonin is available on the NHS. I work with several children and young people who have been prescribed it.

XoticEngram · 01/10/2015 19:19

Isitme-my body will simply not permit it, no matter how tired and usless I am, I am not able to switch off until a time determined by my condition

OP posts:
IsItMeOr · 01/10/2015 19:19

Really, you would be best off putting your effort into pursuing an official diagnosis and treatment. Why don't you try contacting the centre that a previous poster mentioned for an assessment?

LunchpackOfNotreDame · 01/10/2015 19:19

Like seven I have fibromyalgia (we skip a sleep phase, the restful one,think it's stage 4) which is why we are constantly exhausted and in pain. You can learn how we feel if you want, deprive yourself of 3 hours sleep a night,every night for a week-10 days. That bone crunching painful screaming tiredness is us.

I don't go in for self diagnosis. Either get a diagnosis and treatment and get a job. Or. Get a job that fits your sleep cycle.

My view is if I can work you can

IsItMeOr · 01/10/2015 19:20

I understand that you can't sleep until a time determined by your condition. What I am confused about is why you're not sleeping at that time at the moment, as it sounds like you aren't currently working?

Whatthefreakinwhatnow · 01/10/2015 19:20

No restaurantit bar work anywhere in Cornwall?!!Confused

XoticEngram · 01/10/2015 19:20

wonky wheel- St Austell
To the poster who said about bar work- I am not what that type of employer usually gos for- I am not bright, breezy, smiley or attractive

OP posts:
ilovesooty · 01/10/2015 19:21

In fact you don't even have a disability entitling you to reasonable adjustments under the Equality Act 2010.

The DWP aren't going to listen to anything you put forward quite honestly.

LunchpackOfNotreDame · 01/10/2015 19:21

St Austell is tourist central isnt it? Any hotels need night porters etc?

The hospital will probably need night staff too.

potap123 · 01/10/2015 19:22

This reply has been deleted

Message withdrawn at poster's request.

iamaboveandBeyond · 01/10/2015 19:22

Sorry but yabvu to suggest faking a mh problem, yabvu to think it is that easy to claim/get allowances for illness.
And yabqu to call a sleep disorder a 'disease'.

cleaty · 01/10/2015 19:23

Fake having a disease? In effect you are already doing that. You have no diagnosis, and do not meet the diagnostic criteria from what you have said here. Go to a sleep clinic and see what they say. It was foolish not to take up your appointment.

wonkywheel · 01/10/2015 19:23

Ok, so if not bar work then evening/nightshift in a care home or late shifts in a supermarket or fast food place? If there's nothing in St Austell you're only a train ride from Truro which is pretty reliable (if there's no leaves on the line and they don't keep hitting the brake after Launceston!), usually stuff on offer there. Try Indeed.co.uk or phone the big places directly.

LunchpackOfNotreDame · 01/10/2015 19:23

The more I think on this the angrier I'm getting

You're basically saying you want a label for your sleep cycle being wonky. You don't want to work and don't want to get better.