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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To feeling guilty not spending time with DS who has SEN?

32 replies

Notgivingin789 · 19/09/2015 18:06

Hi all,

To give a bit of background.

I had DS very young, I was 16, and since he has been born, I have continued on with my education. Whilst I was doing my A- levels, I noticed that DS speech wasn't developing at all and after me obsessing ( I was literally obsessed) and chasing doctors, he was diagnosed with ASD ( they want to reassess him again for this sigh) at 3, and oral motor dyspraxia at 5.

When I was 18, just starting my first year at University, I made myself a vigorous timetable, so that I can support DS with his communication/ speech skills. So as soon as I got home from University, I will spend 3 hours ( with breaks of course) working on DS speech and communication skills, and take him out on weekends, for some quality time. However, due to this, I spent much longer on my university work and wouldn't go to bed, on most days, at 5am, if I was lucky, I would go to bed around 2.30am- 3.00am.

I did this routine for two years, whilst at University. However, in my final and third year at University, (the most intense year) the lack of sleep that I wasn't getting for the past two years, was taking a toll on me. I wasn't motivated, I was sleeping ALOT and I worst of all I was highly involved (and stressed out) in my son's SEN tribunal appeal to put him into an independent special school. My tutors knew of my struggles, and could see that my work was suffering as a result and strongly persuaded me to repeat my final year. I strongly resisted as there was no way I was going to spend another year at University whilst DS still needed my attention. I was determined to finish my final year so that I could spend time with DS, whilst his still young. So I deferred my coursework/exams till the end of August, so I can still complete my work at my own pace but manage to focus on this SEN appeal.

Even though my SEN appeal was successful and DS is now going to a specialist school that will help his speech/ communication needs. I sadly wasn't able to complete my work, even right up to the end of August, though I managed to complete my dissertation module (which was a 2.1 Smile). Worst of all, the job I really want to go into, as my undergrad degree is irrelevant to the job, I need to do a Masters and I will need a 2.1 or above, overall, to do the MA. The MA course wouldn't even consider someone with a 2.2 or with relevant experience.

So in the end, I decided to repeat my final year, which I will be taking again this year.

I'm very sad that it had to come to that as I really wanted to spend time with DS and work on his speech/communication skills at home. His 5 now and I don't want him thinking that his mum spent all of his childhood studying at school. Maybe I should quit University and forget about the job that I really want to go into and just focus on DS. But I don't know. My friend has suggested, that if I decide to repeat my final year, that I should put DS into full time after school club, so I have the remaining hours just to focus on my studies and when he comes home, spend time with him till he goes to bed. When he goes to bed, focus on my studies for a maximum of 2 hours, then go to bed.

She recommended me this timetable, in hope I don't study in the early hours of the morning and so I can sleep well.

Does this sound like a good plan? I really would like to spend time with DS and to work on his speech/communication skills as his only saying 20 words.

Or should I just quit Uni.

I'm so confused. Sad

OP posts:
Notgivingin789 · 19/09/2015 18:19

Anyone?

OP posts:
FuckYouBitchImWellClassy · 19/09/2015 18:19

Don't quit uni. Your friends plan sounds like a good one. You will be no good to your ds or to your studies if you're exhausted.
You sound like you need to relax a bit. As the parent of an ASD child sometimes we can immerse ourselves in what we think our child needs but really all he needs is fun with his mum. Maybe think of it as a year for creating memories with him.
I wish you the very best.

Notgivingin789 · 19/09/2015 18:21

That is so true Classy. Thanks for your response.

OP posts:
Notgivingin789 · 19/09/2015 18:35

bump :)

OP posts:
PeppasNanna · 19/09/2015 18:38

I went back to uni when I had 4 dc.
It tool me 6 years to get my degree but I got it.

2 of my dc are ASD. They both attend Specialist Autism schools. When they get home, thry really need 'down' time. Your ds wont need or probably want to engage for hours after being in school all day. I know neither of my boys, even at 7&10 could cope with going to an after school club. There is slmost no childcare available for ASD dc & im in London.

Do not give up uni. Its only 9 months not even a full year. It will benefit you & your son in the long run. It would be such a waste to give up now.

Keep going, you can do it...you know your made of strong stuff!!

Notgivingin789 · 19/09/2015 18:42

Aww thank- you Peppas. I guess my worries are that I'll still be in education till DS is 8, as the masters, if I get in, takes two years to complete. I partly don't want DS to miss out on the early intervention and I still want to enjoy his childhood with him. It's so hard.

OP posts:
MedusaIsHavingaBadHairday · 19/09/2015 18:45

Don't quit Uni.. what would be the benefit long term?

You've got your son into the right school..and he's starting to gain language.. you've done the biggest battle and he will not remember whether you spent an hour a day quality time or 6 hours, when he is older.. seriously he won't. I say that as both the parent of a child with autism (also special schooled) (4 kids total) and as someone who has studied while they were little..they don't remember!

It would be such a waste to quit now, ... you can do this! Your son doesn't need hours and hours of intense work every day.. he's going to get a lot of input throughout his day at school (I also work in a special school with children who have severe autism btw.. we do work them hard!) and you can carry out his speech and language programme, or suggested input in an every day way.

Your friend's plan sounds excellent.. you need to be able to balance home and Uni life and you are in a position to do so ... go for it!!

MatildaTheCat · 19/09/2015 18:51

Now he's at a specialist school he should be getting far more help with his SALT there, surely? Of course continue to help and support but whilst having fun together, playing and reading etc.

Really good luck with your degree and masters.mi used to work as a midwife for teenagers and your story fairly makes my heart sing ( obs not son having Sn).

You've pushed yourself too hard, though. Take your friends advice and work at your degree but not at the risk to your own health. We do actually need sleep. Smile

PeppasNanna · 19/09/2015 18:52

My oldest 2 remember me being at uni. When my son went to uni it really hit him how hard I worked. He never realised, why would he?

They remember that time as positive.

When your child is Autistic its very difficult not to put your own hopes/dreams onto thst child. My boys are oblivious to birthdays parties etc. I remember thinking how sad thst they missed out. But they have no interest & get no enjoyment from parties so they didnt miss out... IYSWIM?

Your obviously a bright person with a good future. Flowers
Best of luck.

mummydarkling · 19/09/2015 18:57

Keep on at the degree. This will mean a better life for you and your son long term. You have done so well to overcome difficulties.

GloGirl · 19/09/2015 19:04

Can you defer for a year?

Notgivingin789 · 19/09/2015 19:06

Thank you Mesuda Your post gives me hope. I won't quit, I will not give in.

Yes Matilda He gets very intensive one to one speech and language therapy. But I've always been a firm believer that I wouldn't leave my child's education to the school, that I should be working with him at home. But I am over working him and could do your suggested idea.

Thank you Smile, I had a midwife (who worked with teens) and she was really nice, really supportive.

Thank you Peppas.

OP posts:
Notgivingin789 · 19/09/2015 19:08

Glogirl, I don't think I will defer for another year. When I'm out of study for a long period of time, I lose motivation and I know I won't go back to Uni. So, I'm just going to have another go and see where it takes me.

OP posts:
orangepudding · 19/09/2015 19:15

I agree that your son will need down time after school. My son has asd and really needs time on his own to unwind, in my view home should be a happy relaxing place.
You can manage to continue your studies as your son won't need so much input from you once at school.

AllThatGlistensIs · 19/09/2015 19:28

I have two sons with autism, one of whom the same age as yours who is very severely affected.

I completely understand your desire to help him in every way that you can, but trust me, he will be coping with so much sensory and language input in school every day that he will absolutely need the downtime at home to recover and process the information he's received throughout the day.

The danger is he that he might stop engaging if you try to push much more onto him.

Let him relax, he will need it, and don't give up on your studies!

You fought the hardest battle in getting him the specialist education provision that he needed (I do understand, we went through it for both boys).

Focus on your studies, let the specialists work with your son, and enjoy your time at home together without pressure or stress Smile

summerainbow · 19/09/2015 19:38

He won't remember that you studied all his baby hood years .
But he would remember if you did when he was 10.
Get all your studies out of the way now.
Congratulations on getting the diagnosis and special school . Your son is very lucky he is going to special school.
Don't worry about them checking the ASD there maybe others things conection with ASD that they can find out about as he grows.

Notgivingin789 · 19/09/2015 19:39

Thank you Allthat I completely understand what everyone is saying. He will need to get some down time after school.

Thank you, I won;t give up, I will keep on going with my studies.

OP posts:
SnozzberryPie · 19/09/2015 19:45

Do you definitely have to repeat the whole year, including the modules you passed? I would have thought that you only need to redo the modules you failed so the next year will be less intense, especially if you don't have to do the dissertation again.

You could also look into doing the masters part time.

Alittlecurious · 19/09/2015 19:57

My dc with sn can't do breakfast club or after school clubs. There is not the support and close supervision they need so they were not allowed to attend and they wouldn't cope with it either, especially when they are tired after the school day. Check this is an available option for your son.

I do agree that you should continue and do your final year. It's not really a year is it and it will set you up for the future.

Notgivingin789 · 19/09/2015 20:16

Snoozyberrypie. I don't have to repeat the dissertation module. But the other module (That I couldn't complete) has the most credits and will take a year to finish it.

The universities that do the masters I want to do don't offer part time.

Alittlecurious DS Special school offers after school, but I see the point about the tiredness.

OP posts:
ShiningWhite · 19/09/2015 20:23

This may have been said before but is part time study an option? Could you do the final year over two years?

I would try to enjoy your boy rather than spend all this exhausting time working on his communication etc. try to do it more naturally whilst doing things you love with him. Enjoy your relationship with him and the rest will follow xx

Petradreaming · 19/09/2015 20:24

Can I just say that I think you are pretty damn amazing. Having a baby at 16 and returning to study is a fantastic achievement never mind dealing with your boy and his needs. Don't give up University. You, more than most deserve the benefits this will bring. I am in awe.

winewolfhowls · 19/09/2015 20:28

I really admire your hardworking attitude your son is very lucky to have you.

Francoitalialan · 19/09/2015 20:31

I've nothing to add but you sound AMAZING. I'm in awe. You should be so proud of everything you've done. Don't quit. Star

totalrecall1 · 19/09/2015 20:37

You are doing an amazing job. Total admiration for you. your son will be incredibly proud of his mother. Keep going. You are doing whats best for you both