Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I know I am being unreasonable but ....

84 replies

mumofbeautys · 28/11/2013 19:16

Me again sorry this is going to be a rant.

so I am sitting in hospital with my daughter yet again, who has finally dropped off to sleep ... guess where were going to be spending xmas.

after talking to a consultang about how important a lung transplant will be as in 18 months ago it was said she wouldnt survive 2-3 years without one, I got increasingly upset thinking about how many .. no offence people have died and had capable lungs for transplants but never signed up. I know I aibu and people have there own reasons but its ok to still be angry right ?
Why dont people sign up, what will they lose by signing.

OP posts:
idiuntno57 · 28/11/2013 20:20

I think a lot of people don't sign up because they believe that if they do the doctors wont try to save them very hard.

It is a myth but it is quite deeply held and I've heard it from a few people (including doctors)

IfAtFirstUDontSucceed · 28/11/2013 20:24

So sorry about your DD

I'm pretty sure I've already registered but this thread has prompted me to do it again just to be sure - it took all of two minutes!

littlebritain · 28/11/2013 20:52

So sorry to hear about your daughter and I really hope that a donor is found for you.

You are not being unreasonable at all and I have to say I would feel the same in your position. My son recently filled in his provisional driving licence form and they ask if he wants to be a donor. I felt quite proud when he opted in without hesitation and told me that I must follow his wishes and provide hope for others if anything happened. I think its not always a conversation we are comfortable having but maybe we should discuss this more with our loved ones and make our wishes known. I think the reason why donors are so far and few is because we don't like to talk about the possibility of dying. I have my donor card in my purse.

Good luck to you and your family. Stay strong x

olibeansmummy · 28/11/2013 20:52

I thought we HAD moved to an opt-out system. Obviously I'm ignorant so will go and look up how to opt in, not sure if I can though as I've had a blood transfusion.

ADishBestEatenCold · 28/11/2013 20:58

I am so, so sorry, mumofbeautys. You and your twins are incredibly brave. Of course, you are not being unreasonable for being angry and upset with this situation.

We know and understand that it isn't the individuals themselves (who weren't on the donor register) that you are angry with, but with a system that leaves your daughter waiting in such a precarious position.

You are correct when you say that many will have their reasons for not signing up, and who could ever argue with those reasons, but a lot of people won't have signed up because they haven't got around to it, or they need more information, or they're not sure if their organs would be of use, or they haven't yet discussed it with their family, or they need their fears alleviated, and so on.

The current system does not address the apathy/ignorance/fear of the majority. In fact the current system barely addresses the situation at all, spending just a tiny amount on advertising, information and promotion.

Now I would never be in agreement with a compulsory system, but can easily visualise an opt-out system (rather than the current opt-in system). Strangely enough, I suspect if we did have an opt-out system the authorities would be so fearful of accusations of organ harvesting and inadequate information, they would suddenly find a huge amount of money to spend on on advertising, information and promotion. IYSWIM? Smile

As I type this, a wee voice in the back of my mind keeps saying that it only takes one charismatic individual, to get a successful nationwide campaign going _ and you sound lovely mumofbeautys Grin (no pressure there then).

Will be thinking of your little girl in hospital, and hope you have time to keep us all informed about how she is doing! Thanks

AntiJamDidi · 28/11/2013 21:00

I signed up when I was 17. Dp is signed up, has been for years. Dd1 is 14 and has told us she wants to donate if possible, I didn't know I could sign up on her behalf so I'll do that now. I'll sign dd2 up while I'm at it although she has no concept of it yet.

OP I hope your dd gets her transplant soon.

mumofbeautys · 28/11/2013 22:53

Thank you everyone and I dont blame individuals just the sydtek your right . I guess without being in the situation it is easy to forget .
Me and my daughters do remind people actually one of my twins loves to remind people including the poor guy serving in poundland lol
its not just about my daughter obviously, it just so sad that many more lifes can be saved x

OP posts:
CoffeeTea103 · 28/11/2013 22:57

Oh you poor thingThanks I hope that it works out for your little one. Yanbu.

phantomnamechanger · 28/11/2013 23:01

OP, I am so sorry for the situation you are in and hope your DDs turn comes soon. It is sad, a tragic tragic waste, that more transplants don't happen and that so many viable organs go to waste. Even my children understood from a very young age and asked to have donor cards.

HeartsTrumpDiamonds · 28/11/2013 23:05

How does one sign up to be a donor if not via their driving license?

I am just renewing my license (medical reasons) and have opted in for everything except for lungs (no one would want them! Smoker for 20 years, stopped 6 months ago) liver (again no one would want it due to meds) and corneas (just can't stomach that one). Now DH wants to opt in too (good for him) but this thread has made me realise I haven't a clue how he would do it.

OP I am very sorry about your poorly DD Flowers

HeartsTrumpDiamonds · 28/11/2013 23:08

If anyone can help me get over the corneas thing I would be very grateful - I want to donate them but without being too morbid I have a hard time with the idea of being an eye-less corpse. Windows to the soul etc.

I'm sorry OP, I don't mean to hijack.

mumofbeautys · 28/11/2013 23:23

1 sec hearts I will get you the link x
I am not sure about the corneas if I am honest I guess you should just think of it as like donating any part - your corpse won't be using them - sounded v morbid sorry lol

OP posts:
mumofbeautys · 28/11/2013 23:26

www.organdonation.nhs.uk/

actually according to this corneas have had an increase in donations and over 2000 people since april have have received the gift of sight :)

OP posts:
steppemum · 28/11/2013 23:51

so sorry to hear about your dd mumofbeautys. How old are your twins?

mumofbeautys · 29/11/2013 00:07

they will be 5 in January. x

OP posts:
Thatisall · 29/11/2013 00:33

I think it should be opt out too. But I'm told that many people don't realise that their loved ones have opted in and that on the shock they often say no to organ donation despite their wishes, that's why it's important to talk about it. A while ago a few of us posted our organ donor cards as our Facebook profile picture. It was a great way to promote discussion.

OP I hate that you are in this position. I hope things are better soon x

Jaynebxl · 29/11/2013 07:26

Hearts I seem to remember you can opt out of a particular organ so you could donate the rest and optnout of corneas.

Op yanbu. I totally agree and have always been uo for donating. Really hope your DD gets a transplant soon.

Groovee · 29/11/2013 07:34

Thinking of you. My dad had a liver transplant in 2002 and we're very fortunate to still have him. He was called in twice and both times let down. Then he became really ill one night and while we were at his bedside the Professor told us they thought they had a donor but that because of the previous experiences they didn't want us to get our hopes up. (The livers weren't suitable when the donor was operated on).

It was a genetic disease which caused my dad's problem but people promptly think of George Best and think he is the same when he isn't.

I do think an opt out service is better. I was 15 when I chose to carry a donor card and made my mum and dad aware that should anything happen to me that I wanted to be a donor.

My biggest concern is my next of kin saying no. I think they would say yes. But I always worry that my wishes won't be carried out.

What I do need to do now my children are older are ask their feelings on being a donor, should the need arise.

diddl · 29/11/2013 09:11

Another big problem is surely that NOK can say no even if the person has said yes?

Goldenhandshake · 29/11/2013 11:47

OP I am so sorry you are going through this, there needs to be much greater awareness and nationwide campaigns about signing up.

I have just added myself to the NHS register as I wasn't wholly sure what I was signed up for, and your daughter's plight inspired me to be certain.

pointyfangs · 29/11/2013 12:09

I'm signed up and so is DH. The DDs aren't, but we have discussed it with them and they want their organs donated should the worst happen. I can't see why anyone wouldn't sign up, I really can't.

MatryoshkaDoll · 29/11/2013 12:14

This reply has been deleted

Message withdrawn at poster's request.

HeartsTrumpDiamonds · 29/11/2013 22:01

Thank you. I have decided to stop being precious and donate the whole shootin' match. Thanks for the link.

mumofbeautys · 29/11/2013 22:13

no worry hearts. and thank you to u all x

OP posts:
PansOnFire · 29/11/2013 22:17

YANBU, at all. I hope a donor is found soon, I'm sorry you are going through this.

I've signed up now using the link, my DH will be signing up too. Thank you for the link.

Best wishes to you and your family OP.

Swipe left for the next trending thread