To think that Neon's Mum, Sally Roberts, definitely displayed Narcissistic tendencies?

[VulvaVoom]

This is for anyone who watched the documentary last night. Maybe it was edited to make her look bad but I felt really angry and sad about her behaviour and attitude.

She seemed more concerned with pursuing a court case that she knew she was never going to win instead of being with her sick son. An example of this is that she didn't see him the night before his brain surgery (even though she could have done) Surely it doesn't really matter what you believe, once the decision was made, she should have been there for him.

She also seemed to be enjoying the media attention a bit too much IMO and spoke to Neon in quite an odd way, when she wanted him to go into a bariatric chamber for some 'alternative' treatment, she asked him to 'do it for her'.

She believes that radiotherapy will affect his DNA and change him - well isn't that better than him dying ffs? The poor bloody kid.

That child would be dead if she had got her way. Make no mistake. Dead.

If we had refused treatment for our daughter we would have been, quite rightly, taken to court, and the delay would likely have killed her.

Expat, I'm so sorry. What a heartbreaking experience. You sound like amazing parents. My heart goes out to you.x

I watched this last night and was truly

How can any mother not see their child before a major operation?!

It all seemed to be about her and how Neon's illness affected her

Agree with others, that the twins father (and his sister) deserved a medal. The bit about the weetabix and the juicer was frankly ridiculous.

Ahhhh. Just posted a long reply and lost it!

My husband is in hospital at the moment. The immediate cause is the treatment rather than the cancer and it is a constant balancing act by the doctors. On a very simplistic level he would probably feel better on a day to day basis without the treatment, but it is saving his life. 5 years of this and no end in sight. It can be very draining at times. However the doctors do the best they can and not having treatment is unthinkable.

I didn't see the program, so can someone tell me why she didn't see her son before the op?

So sorry for those who have suffered like this and not had a positive result.

Is a £200+ juicer better than a cheapo bog standard Argos one? I didn't understand why it had to be such an expensive one.

But yea the mothers behaviour was strange, but then I can't begin to imagine how I'd feel in her situation. Hurt,aangry, scared? Maybe it was all a cover up.

There was a lot of control going on there as well. Even though Neon wasn't with her she had timetabled his day down to the minute.

Fireside - she had just lost the court case to stop the operation going ahead. Because previous to this she kept delaying the operation, they (medical team) wanted him in hospital that night.

The father rang her and told her (left message) they were going to the hosp that evening and she could visit etc. She never got in touch.

Forgot to say sorry about your DH Fingers X for him...

I've just watched it. Dad is all about Neon and doing his best for Electra. But even when we saw mum with Electra, she seemed to be getting ignored as mum battled to prove she was right.

It can't be easy at all but hoping mum realises she has a son who has a lovely nature and make the most if every minute with him and his sister.

What a bizarre women. If you truly believed that your child needed 5 juices a day to survive wouldn't you be making them every day and bringing them round rather than demanding that someone else buys an expensive piece of kit that they may or may not use?

She is a control freak, fire, that's the only reason I can see for why she didn't go and see her son.

I hope your husband does well, fire.

My daughter died of pneumonia as a complication of treatment for acute myeloid leukaemia last year.

Yes, Wahla, and no restaurant food. WTF? You would deny a little boy undergoing cancer treatment a fucking pizza from a takeaway?

I don't understand why he couldn't go to the cinema?

Unless its all about control. That timetable she had drawn up for the dad to follow was mind boggling.

I saw her on daybreak and i dont think she came across very well and didn't have her sons interests at heart but was worried for him but some of the things she was saying was way out there, I decided not to watch the documentary as protons seem in very early stages,

she said on daybreak that he looked sad and drained (or something like that) she seems to live in cuckoo land,

Proton beam therapy is not an option for the type of cancer her son has. Anywhere.

simpson and expat thanks for the replies.

I am so sorry expat. It is hard enough with my husband, but I would be devastated if it was one of my children.

Our case is slightly weird, in that he has spent very little time actually with cancer as such. It is aggressive and if they don't do regular check ups and treatments it will keep coming back and get out of control. It has come back twice so far. The investigations etc are unpleasant and as soon as he recovers from one then they are on to the next. Having said all that we are very thankful that these treatments exist and the consultant and nurses have been amazing.

I am very interested in the Neon story, but it would be hard viewing for me at the moment. I would want to throw something at the television.

I am with Expat. She came across very badly, as she has on any TV interview I have seen.

I would have hoped that, given her actions, she might have been an authority on the side effects of his treatment and on the benefits she believes alternative therapies can offer, but the opposite is true.

She didn't appear to have a close relationship with either of the twins from what I saw.

Neon's dad seems lovely; full of love for his son.

Proton beam therapy is not an option for the type of cancer her son has. Anywhere.

she just seemed obsessed by it suppose that is what it is all about I just dont know why she didnt see past the therapy and want her son well, she kept going on about immunity suppressed I just watched the segment with a face on me, that is why i didnt watch the documentary , I was speaking to a friend whos dd is in remission and she was very upset by the whole case as it happened when her dd was having her treatment

The scary thing is that she wasn't obsessed with proton beam therapy. She was obsessed with complete and utter quack shite like the oxygen chambers.

I posted on the thread in telly addicts about the programme itself, and on there I said I thought Sally was deluded and wrong in her beliefs about treatment, and has been preyed on by charlatans.

I don't think its actually helpful to consider what personality disorders, if any, she may or may not have. She's the mother of a child with cancer, as such whatever her failings, and however wrong we may think she is, she deserves compassion, or at least objective refuting of her claims rather than attacks on her personality which are speculative at best.

I would say that IMO, the incident where she tried to persuade a reluctant little boy to undergo an unnecessary 'oxygen tank' procedure, when he is already probably feeling dreadful from conventional treatment, made me very uncomfortable.
And in this situation, much as I feel compassionate towards her, I believe Neon is safer and will receive the treatment that gives him the best chance of recovery, if he stays with his father.

I find the whole situation extremely sad, and I hope for the very best for Neon and his family, he is a lovely little boy.

I would add, from my own experience, that people I have come across who advocate these unproven alternative treatments, are scarily blinkered and usually beyond all sensible discussion of the topic.
The ones I have met become quite hostile if you challenge anything they say. Most have a very limited grasp of how cancer cells behave and how conventional treatments actually work.