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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To want more acceptance for my ds

75 replies

Verycold · 28/07/2013 23:28

My ds is 7. He has a physical disability which is mild but which means he can't fully participate in children's active games. He has mild learning difficulties. He also struggles behaviour wise, his moods are very volatile, he can lash out physically at times when he is scared or unsure of the situation, and he is prone to screaming when he is frustrated. We work on all these things but it is hard. While he has all these difficulties they are all mild to moderate and not "in your face obvious" if you see what I mean.

We are currently visiting my home country for the summer. Ds struggles here more than at home because he only speaks the language a little bit. We have so far met up with two sets of friends (separately) and with my brother's family. I feel increasingly sad because all the children we have met up with have excluded ds and/or have been openly hostile to him. This has been the case in the past but until now I tried not to see it. But now I feel so sad, in particular because the adults seem to make no effort whatsoever to influence the way their children deal with ds. Trying to explain about ds difficulties. It feels like they think as well that ds is hard work and annoying (which he frequently is) so who can blame their children for not wanting to bother with him? But ds is also the sweetest most loving boy imaginable who so wants to belong.Sad The one thing that keeps me going is seeing how his older sisters look out for him. But other than that, I feel so sad and like not wanting to come back.Hmm

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Pigsmummy · 29/07/2013 22:03

I am sure that it's the language barrier? I had a miserable time in France when with French children

sonlypuppyfat · 29/07/2013 22:05

Can't you come back home you sound like you're having a rotten time out there

Beastofburden · 29/07/2013 22:09

I think in the uk they just know him better as a person. I don't think it means that your German family could never learn to treat him as well as we do here in the uk. But they don't know him well enough, and vice versa. Hugs.

Verycold · 29/07/2013 22:09

Tempting, but it would cause a lot of upset.

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stillstanding29 · 29/07/2013 22:10

I have a son with quite obvious sen and I find it's very easy to get sidelined at social events. The other families naturally gravitate towards each other because they are similar and you are left doing the stuff that your kid wants to do (generally a little bit weird) on your own (again - sigh). My advice would be to think about what you want to get out of your trip and try to make sure you do it and enjoy it. Does that make sense? And when the going gets too tough, get away to your own space and chill. And try to remember the good and amazing stuff about your child and your family. Hope that helps.

Levantine · 29/07/2013 22:12

I really feel for you. I think you need to have an honest conversation with someone, and pick someone who will talk to others too - in a good way, not a busybody way.

My DS often looks like a very badly behaved child. The reality is different of course, but it's not that long ago that WE thought he might be badly behaved, or at least had no insight into why he hit and spun round and tried to bite.

I don't think you will get the support you need without being honest with someone. It may be that they are still lazy arses. But at least you know, and you will have done the best for you, and for your ds.

Do it in baby steps though, pick someone sympathetic and start a conversation. I really do know how hard it is xx

sonlypuppyfat · 29/07/2013 22:13

But you are already upset, put you and your child first its no use worrying about other peoples feelings they haven't givern much thought to yours

Verycold · 29/07/2013 22:16

You are all so lovely Thanks

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Beastofburden · 29/07/2013 22:19

tomorrow take something along. Balloons, bubbles, water pistols, probably not face paints as he will yell I daresay, mine always did. Cook fairy cakes, whatever. Be the entertainer for the kids. Tell your family you want everyone to have a nice day so you will help the kids play. You can drop a few words into the kids ears. It may be their parents responsibility, but this is specialist knowledge, you will have to do it as they are so clueless. Show them how well it can go if people make a bit of effort.

Tbh family events where adults chat and kids play have always been the worst format for us. I have always had to be on duty and manage play actively.

Branleuse · 29/07/2013 22:46

i think it might be wise to plan days so that he doesnt get exhausted to that point.
lashing out and screaming is not behaviour that other children will be, or should be tolerant of, and if that happens, you need to have a plan of action.

make sure he doesnt get overtired or hungry at all costs. Make sure hes got escape routes. make sure youre not letting him deal with complex social situations in another language unsupervised

Verycold · 29/07/2013 22:52

Branleuse, you're right of course. What can I do though. Cousins suggest day out at swimming pool, followed by lunch at McD followed by film. Dds and ds hear all these plans and are delighted. All goes well until film finishes, then ds "turns" and starts being horrible for want of a better word. What was I to do? He knew what was planned and wanted to take part. I can't exclude him but I also can't tell the rest to not go through with a perfectly lovely day.

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Beastofburden · 29/07/2013 23:19

What I would do is stay until say just before the film, then peel off and ask someone else to bring dds home for me after they have seen it. Tell him that you and he are having a different treat, and going for an icecream. Or stay for the film, but agree that you will go straight home by yourselves and dds can follow. Pace him. He just doesnt have the stamina for all that.

Get out before the trouble starts. He may still yell but only you will see it.

NeoMaxiZoomDweebie · 29/07/2013 23:35

Verycold my DDs aged 9 and 5 would find that day unbearably busy and they are both NT with no issues at all! It's far too much in my opinion.

What's planned tomorrow? Can't you just take DS for part of the days out? No way would my two cope with swimming, lunch out and a cinema. Maybe mine are delicate flowers but they need a rest after swimming and lunch!

BlackeyedSusan · 30/07/2013 00:14

tough isn't it?

that was an awful lot for one day. no suprise he melted down. mind you, I got it wrong with ds today. oh he had a humdinger in the supermarket.

willyoulistentome · 30/07/2013 00:31

Verycold, I do feel for you and your ds. Kids can be really horrid and in my experience is the kids of alpha parents who can be the meanest. I don't think these types of parents have any idea how hard it can be to fit in. My DS1 has AS. I will never forget the day he first responded to another boy a couple of years older than him who had asked his name. DS who was only little told the boy his name and I was filled with joy. What did the kid want to say to my DS?
"YOU can't PLAY with us"
I still hate that boy for the way he made my son's smile fade.

Verycold · 30/07/2013 06:52

The film was a DVD at home which is why I thought it wouldn't be too bad.

There is no way ds would let me "remove" him part way through without being extremely upset. Today we have a quiet morning then a trip out with some adults and two 13 year olds who are extremely tolerant of ds Smile

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Verycold · 30/07/2013 06:53

Listen that's horrid Sad

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Beastofburden · 30/07/2013 11:49

All very difficult but I think the quieter day will go better. Good luck!

ArtVandelay · 30/07/2013 23:08

Hi, me and my mate Bettina were just talking about this tonight and she was saying its definatly a German thing. So educate your friends and family but ultimately you live in UK and your son will be accepted in UK society. Germany is good in lots of ways but not in this way. Wish you and your son all the luck and love x x

Verycold · 31/07/2013 08:20

Amazing that you can reach my ripe old age and still learn things about your country... 10 years ago I would have said Germany was exactly the opposite!

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Beastofburden · 31/07/2013 08:30

Me too. What you may also be coming across is something that affected us at around that age. The formats for holidays and social events that suit other families are a disaster for my ds2. If I tried to fit in, he used to become very distressed. That made him behave worse than usual, in front of people who didn't know him already. That made those people less accepting of him than they would have been if they could have seen him at home and have got to know him. So a vicious circle, and one that I only broke by changing the format and being very protective about joining in play, modelling good behaviour, and steering round triggers ( which for us are loud noises, getting over tired, and being put on the spot to say or do something without enough warning). I didn't feel I was excluding him, more protecting him.

I am sure, long term, that your ds will be able to have a relationship with his German family and you will get through this. Might help to recognise that this particular holiday has been bloody awful. (Hugs).

formicadinosaur · 31/07/2013 09:23

Maybe you need to model the behaviour you want the adults to have. You could explain to their children about your son. I do think children become more aware with age and you can help them understand.

Verycold · 31/07/2013 20:14

Result! Met with cousins but kept a closer eye on things, therefore things went much better. Not perfect by any means, but far less upsetting. Smile

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ThreeBeeOneGee · 31/07/2013 20:33

I'm glad things went better this time. Smile

Beastofburden · 31/07/2013 21:57

Excellent, well done

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