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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To really not understand why people do not join the organ donation register?

276 replies

3littlefrogs · 11/04/2013 22:18

I have been registered since I passed my driving test nearly 40 years ago. If I am dead I won't need my organs. They could save someone else's child, wife, husband, sister, brother.

OP posts:
Mrsdavidcaruso · 12/04/2013 17:02

No Mini read your post agin you actually said and i will copy and paste
Quite why we need lots of people living into their 80/90s is beyond me.

Not all elderly people 'clog up beds' and why if you don't believe that the elderly shouldn't have pensions did you bother to post the % of 'benefits' going to pensioners if you didn't want to make a point about how much its costs todays tax payers ( and that does include my 82 Dad who still pays tax and the 1000s of people over pension age who still pay tax) and BTW are STILL helping to pay for children and families

I am surprised you didn't include the word 'Boomer' in your nasty post

MsBella · 12/04/2013 17:08

Sauvignon this is something I did a lot of years and years ago before I even had DCs, no time for all that these days
Anyway no take a break for me...
If you are interested there are a lot of non mainstream sources to get different theories and studies from, it really is great to build up an opinion from all sorts of theories and stuff it opens your mind a lot, back in my protest and volunteering days I met a lot of interesting people, some had studied different sciences for years and had degrees in that kind of thing, also looking around the internet like putting some key words into google will bring up different stuff about all this

Thurlow · 12/04/2013 17:08

I'm registered, DP is registered, and after the press yesterday we have just registered 15mo too.

I do understand what other posters are saying about wanting their DC to make their own decisions on this, and when DD is much older I will tell her and if she wanted to withdraw from the register then she can. However, until then, as her parent we make choices for her and this is just one of those choices.

Should the very worst happen, I would want anything good to come out of it that could.

SauvignonBlanche · 12/04/2013 17:10

You said your research couldn't be done on the Internet. An enquiring mind is one that is keen to share knowledge.
I'm quite busy on my Masters on the moment so surely you could cite your research?

xigris · 12/04/2013 17:11

Mini organs are not sold by the NHS to overseas recipients! Sadly, there most likely is a black market for organs but not from the NHS!
Evil well done! That's brilliant that this thread ahead inspired you to join the ODR Smile Do discuss your wishes with your family though as under current legislation your next of kin can still decline consent.
MsBella if you cannot back up statements like that without recognised research then I don't think it's wise to air them in this fashion. Everyone is entitled to a point of view, but I think that when it's such an emotive subject and when other posters have shared such personal stories it's unfair to give people the heebie-jeebies without being able to back it up. Smells explained the very rare Foreign Accent Syndrome very well.
All the stories here from people who've been directly affected by organ donation / transplantation have been amazing. SmileSmile and of course Sad for all of you who have lost loved ones.

MsBella · 12/04/2013 17:15

Sauvignon, I'm only speaking from my experiences. And I didn't state that it can't be researched on the internet...
Also I don't understand your last line, what relevence is that...

notyummy · 12/04/2013 17:17

DH and I are both registered, give blood and are on the Anthony Nolan register thing. I struggle to find time to volunteer to help with anything else, so realistically this is the nearest we can get to 'giving back' to society at the moment. It's really not hard.

And as to some of the barking mad stuff being alluded to on here.....

Biscuit

Oh actually, I have thought of one.....

ARE YOU HAVING A LAUGH?!

MiniTheMinx · 12/04/2013 17:20

My father is 82 as well and he is trotting about doing charity work and organising day trips for deprived children.

Why we need lots of people living into their 80/90s is beyond me because society doesn't give a flying fuck about looking after them. THAT IS MY POINT ! unless we can find economically sustainable ways of caring for everyone then we have a huge problem ahead of us. Elderly people are being left to rot, their families are too busy to care, with women out at work full time. A huge percentage of families are in receipt of tax credits & even HB whilst both parents work. How many people care for their elderly relatives ? How can we afford to care for our elderly? why are services being cut? The state pension makes up a huge slice of the welfare budget but it is by no means enough for people to pay for their own care is it? We have a problem. We have an ageing population and falling birth rate, growing dependency upon welfare combined with higher costs, costs that will no doubt spiral out of control once everything incl health is completely privatised.

Titsalinabumsquash · 12/04/2013 17:21

Does anyone on here know how long after having a baby you can donate blood again? Also does breast feeding effect it? I need to get back down the clinic as soon as I'm allowed

xigris · 12/04/2013 17:23

Tits ( great name BTW) it's a year after giving birth

fallon8 · 12/04/2013 17:24

I have been treated for cancer,therefore I am not eligible ,do don't assume.OP that some of us are just bring diffi

musicmadness · 12/04/2013 17:26

Titsalina - 6 months I think. Not certain about whether breast feeding effects the time scale.

musicmadness · 12/04/2013 17:27

Mentions pregnancy here with regards to blood donation.

MiniTheMinx · 12/04/2013 17:27

"Organs from British NHS donors are being given to private foreign patients ahead of desperately-ill Britons, it was revealed last night.
Some 50 livers were given to patients from Cyprus, Greece and other countries last year, even though 259 British patients were waiting for life-saving transplants.

The figures, uncovered by freedom of Information requests, triggered outrage. Professor Peter Friend, president of the British Transplantation Society, said: 'While there is a surfeit of UK residents awaiting transplant they should have a priority" 2009

"Scarce donor organs meant for NHS patients are being sold to wealthy foreigners for tens of thousands of pounds.
A leading hospital has confirmed that 19 private overseas patients bought donated livers in the past two years.
Such organs are in short supply. Of the 550 NHS patients waiting for a liver, one in six is expected to die before they can get a transplant" 2013

"The shortage of an indigenous ?supply? of organs has led to the development of the international organ trade, where potential recipients travel abroad to obtain organs through commercial transactions. The international organ trade has been recognized as a significant health policy issue in the international community. A World Health Assembly resolution adopted in 2004 (WHA57.18) urges Member States to ?take measures to protect the poorest and vulnerable groups from ?transplant tourism? and the sale of tissues and organs?.2 Despite growing awareness of the issue, the reality of the international organ trade is not well understood due to a paucity of data and also a lack of effort to integrate the available information" www.who.int/bulletin/volumes/85/12/06-039370/en/

Are people happy to donate organs when many of the services are being privatised. Would you be happy to donate organs to a private hospital as an NHS patient, knowing that organs can be "sold" to paying recipients?

notyummy · 12/04/2013 17:28

Fallon - of course there are vairty of perfectly valid reasons why someone why not be on the register. I think most people who ARE on the register would completely understand that.

LadyBeagleEyes · 12/04/2013 17:28

MsBella 'I'm only speaking from my experience'*
So you've actually met people with donated organs that have started speaking in a foreign language?

MsBella · 12/04/2013 17:30

Ladybeagleeyes if you read what I said you'd know what I was talking about..
my experiences include ha

MsBella · 12/04/2013 17:33

And whether I'm right or wrong it shows the different opinions people have which can explain why people choose not to donate their organs, its their choice what they do with their own body. Also it goes against A LOT of peoples spiritual beliefs

goodygumdrops · 12/04/2013 17:33

PSEUDOBADGER - where did you hear/read you can't donate if you have had melanoma?

xigris · 12/04/2013 17:35

Tits it is 6 months after giving birth that you can donate blood. My bad Blush

SauvignonBlanche · 12/04/2013 17:35

Sorry MsBella, I ment to say a Healthcare Masters, the relevance being that you would know I meant proper medical research not this sort of rubbish.

Talking to 'interesting' people on your travels is not research. Hmm

MsBella · 12/04/2013 17:42

Sauvignon, I don't read the sun. I have met people who have studied sciences just like you who's research has formed their evidence that all cells are concious etc.

MsBella · 12/04/2013 17:43

Also mainstream science isn't the only science, there is a lot we aren't told

PseudoBadger · 12/04/2013 17:45

Goody - taken from this document: www.organdonation.nhs.uk/about_us/professional_development_programme/pdf/assessment_donation_after_brainstem_death.pdf

"In addition, it is highly likely that donors with the following conditions will also be declined, although there may be occasions when organs are accepted if the alternative for a specific recipient is imminent death (e.g. from fulminant hepatic failure):
? melanoma (except local melanoma treated > 5 years before donation)
? treated malignancy within 3 years (except non-melanoma skin cancer)"

When I was stopped giving blood, I looked into whether organ donation was also likely to be an issue. I found something like the above, and there are several scientific papers along this line.

clucky80 · 12/04/2013 17:49

Hi sauvignon, sorry I have just seen your post as I have been at the hospital all afternoon (not related to my transplant though). I am so pleased to hear that your husband is well now, organ donation really is one of the most fantastic advances in modern medicine. I wish him many years of good health.

Re the age thing, my kind of transplant is restricted to patients under the age of 55/60 as it is such a massive surgery with quite a few risks.

msbella I can assure you that I certainly haven't picked up any traits from my donor and unfortunately my language capabilities are still the barely conversational French and German I had prior to transplant. In terms of me as a person, I have changed - I appreciate every day of good health I have; I count my blessings every day for the massive increase in my life expectancy and I try not to sweat the small stuff.