God knows - they have it to me on the basis of THEIR OWN medical officer's assessment. Then they took it away based on the 'evidence' of a GP who re-prescribed (after a 2yr break where I was off meds as seizures went away while I was pg & bf) epilepsy meds in Feb 2012, then didn't see me again till Mar 2013. But the letter he sent to DLA was dated 16/01/13 - before he saw me, 11 months after he had last seen me.
Hasn't seen any other GPs there either. Long story, surgery was negligent, only just coming to light, I just carried putting in my repeat prescriptions until recently...
I'm waiting on a witness statement from my Gynae consultant who witnessed me having 10 seizures in a 1hr period (he has agreed to do this). It's the ONLY evidence I will get in time to give in for the DLA appeal.
If it works, I get my DLA, any backpay owed, plus any backpay of severe disablement top up on IS owed plus I'll be exempt from the cap.
If it doesn't, I'm lumbered with a very heavy debt to repay 5 months worth of DLA plus 5 months of severe disablement top up on IS to repay (it took them 4 months to make their decision in the first place, how the fuck can they get it so wrong they make an about face 4 weeks later?!). This is around £2,000. PLUS then, I wouldn't be protected from the cap.
I have to send in all new evidence I wish to be considered by 17th April. Like I can get a Neuro appointment by then.
.
Then DLA get 11 weeks to 'consider' the new evidence they give me just 28 days to collect.
Because we all know the NHS works that fast, don't we. Especially when my last Neuro appointment was 5 years ago, out of PCT area, because my PCT didn't have a Neuro at all back then...
There's nothing I can do except hope that a witness statement from the top Gynae consultant in my PCT will hold some weight.
He, btw, is disgusted...