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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To have these thoughts about Autism?

87 replies

MrsCantSayAnything · 26/10/2012 09:13

I know so many people now who have a child on the spectrum. About 6 children in DDs school that I know of because their parents have told me....so obviously there will be more whose parents I am not on chatting terms with....my best friends son is showing strong signs and my own nephew is being assessed.

There must be some reason for this? So many children being affected. Another friend of mine says she thinks her child is on the spectrum and talks about poisoning from mercury.

I haven't learned about why she thinks this...but I do notice that there has been a growth in cases...why? Is it due to some kind of Mercury thing or can it really be that the professionals are better at noticing the symptoms now? If that's the case then why didn't we have all these children on the spectrum in the past...or did we?

There are threads on here about ASD all the time....I just feel sad I guess....so many DC that I know are affected and I feel there must be something to blame.

OP posts:
aufaniae · 26/10/2012 10:05

It's quite obvious that my uncle (now in his 60s) is on the spectrum. He's never been diagnosed though, as few people were in his day. He was just considered a bit odd and left to get on with it.

These days all schools have SEN coordinators and teachers receive training about conditions such as autism. That was certainly not the case in the old days.

I have a lot of time for the idea that chemicals in foods and household goods may be harmful to us in ways we don't yet understand. Bisphenol A for example was banned recently as you may well have heard (a widely-used chemical added to plastics such as baby bottles and tins of food, which is, it turns out a "hormone disruptor").

However there is a whole lot of quackery and bad science about such things, and I must admit I am particularly suspicious about claims to do with autism since the dangerous, media-hype and bad science circulating vaccines and autism.

Autism is a known condition, and there is research happening into it already. I'm fairly confident that if there was a link to something like mercury it would come out through the mainstream channels.

What I think is more of a risk to us, is chemicals used in industry, which maybe affect us in ways which are not so obvious, so which do not cause recognisiable conditions such as autism, but which could be responsible for causing bad health is less easily recognisable ways (perhaps contributing to heart disease or raising the risk of cancer or whatever). To find out about them, there would need to be large-scale research into the affects of such chemicals. No one is funding such research AFAIK. Who's interests would it be in? (apart from the public good of course!). If the effects of the chemicals are not immediately obvious, then they may go under the radar for generations to come.

Who knows, perhaps the risk from widespread use of chemicals is negligible (although personally I doubt it!). Or perhaps not.

We only starting using chemicals in such a big way relatively recently, so we are all effectively participating into a massive experiment as to what they do to us. But with incredibly unreliable results gathering, so it may take some time to come to any conclusions!

RichManPoorManBeggarmanThief · 26/10/2012 10:09

I wonder if the fact that modern life is so 'in your face' has anything to do with it? Even 30 yrs ago, life was much quieter and slower. Now communication is non-stop and everything is much faster and more hectic. Perhaps this makes life harder to cope with for some people with mild ASD traits.

Kleinzeit · 26/10/2012 10:12

I did know kids with autism and related conditions when I was a child in the 1960s, I just didn?t know they had ASCs. Autism was somewhat recognised during my childhood but the other related conditions weren?t recognised until much later, e.g. Lorna Wing?s pioneering work on Asperger?s in the 1980s. But the conditions certainly existed. There?s even a schoolboy with signs of Asperger?s in a Scott Fitzgerald story from 1928 (Basil: The Freshest Boy ? Bugs Brown who grows up to be a successful lawyer). And I know people who after having a child diagnosed start to re-evaluate the behaviour of some of their older relatives, people who previously they just thought of as ?odd? or ?difficult?.

Some people do want to find something to ?blame? for autism but other people think it?s part of the natural variation in human abilities and personality and can get quite offended by talk of causes, cures etc. It?s up to you but I prefer to keep well out of that debate.

And whatever the label may be, the child behind it is the same and has the same difficulties and strengths; and the label brings the help and understanding and support that previously these kids ? kids like mine! - didn?t get.

TheBigJessie · 26/10/2012 10:16

Modern life may be more challenging. That's possible. Still, at least these days it less likely for a struggling teenager with ASD to get misdiagnosed with schizophrenia and put on anti-psychotics for years. Swings and roundabouts. Sad

aufaniae · 26/10/2012 10:23

If you look back in time to some of the people we celebrate for being geniuses, people who have genuinely moved forward humanity by making scientific breakthroughs, many of them show classic AS traits.

Here's a BBC article for example suggesting that both Einstein and Newton had Autism.

I'm not suggesting that being on the spectrum is a necessarily a good thing for those individuals, to do so would be deeply insensitive to people who suffer because of the condition. But more that it seems it is part of humanity, and has been with us for some time, and may well have had a significant role to play in human progress.

DameMargotFountain · 26/10/2012 10:27

i agree about the apparent 'rise' in autism being partly related to the rapid change in our lifestyles and the use of technology.

going through assessment and DX with DD, i recognised many traits in my own family, and DH in his.
i come from a family of farmers and animal workers, DH's family are all engineers and 'hands on'.

none of us have been to university, would never win Mastermind (unless the specialised subject was canals/steam trains/dogs teeth or Hello Kitty Grin ), and would probably seem very boring to most of the rest of the world, but get together and they talk about the most random subjects for hours on end, it's a revelation!

anyway, what i mean is, left to their own devices, they are brilliant and kindhearted. but they never want from anyone. only to be left alone to pootle along at their own pace.

modern life, for the main, is not like this. and they all struggle

FangsGoForTheMaidensThroat · 26/10/2012 10:28

we do need to be wary of defining people with autism as "super humans" and "gifted" etc..for some people (my DD) it is extremely disabling!

FangsGoForTheMaidensThroat · 26/10/2012 10:29

not all people with autism fit the stereotype of seeming a bit "odd" and talking about trains for hours Wink

FangsGoForTheMaidensThroat · 26/10/2012 10:30

child in my DD's class screams all the time through noise sensitivity..she is not a new breed of "super human" with wonderful talents but a wee girl that suffers greatly.

Ephiny · 26/10/2012 10:31

Yes I agree we need to be wary of stereotyping, and also of glossing over the real difficulties many people face in the (usually well-meant) talk about genius savants etc.

FangsGoForTheMaidensThroat · 26/10/2012 10:32

Yes, my DD may be wonderfully gifted in some way but it's quite hard to tell when she can't really function because of the autism.

DameMargotFountain · 26/10/2012 10:33

Fangs exactly, when you've met a person with autism, you've met A person with autism

cuillereasoupe · 26/10/2012 10:33

There's an interesting article on the question here (only the abstract is free online):

"The Social Construction of Asperger Syndrome: The pathologising of difference?"

www.tandfonline.com/doi/abs/10.1080/0968759022000010434

mummytime · 26/10/2012 10:33

Just to add, when a friend of mine from Oxford's sons were diagnosed we did talk about how many people we worked with were obviously high functioning ASD, just undiagnosed. Also the diagnosis of girls is only just picking up, it used to be that they thought there were far more boys than girls who were Autistic, its increasingly becoming evident that its far more equal. Girls just tend to be better at coving it up; and among adults quite a few were mis-diagnosed as Depressed (actually I wonder about my own MIL, DH's step mum, that could have been the real cause of her issues and even her mothers and adopted mothers).

1 in 100 seems too low to me, as in DCs school of 390 ish pupils, there are at least 3 diagnosed children in each year group.

MaryBS · 26/10/2012 10:34

I was only diagnosed after my DS was diagnosed. It just wasn't recognised when I was growing up, much less amongst girls.

pigletmania · 26/10/2012 10:47

Since my dd has started SchOol for Autism in September we are nt seeing the behavioural problems that were apparent in her MS school, as a result she is really doing well on an academic level as she hasent got those other stresses to contend with. Love Temple Grandin, she reminds me so much of dd when Temple was a little girl in the film

pigletmania · 26/10/2012 10:52

Come to think of it I think that dh and his dad might be on the spectrum. Dh preferres his own company, tolerates social situations, very intelligent works as a computer programmer. Can be rude when visitors come, stayi g in his study and not really wanting to meet them. He does not have many friends, the opulent that he does have never makes an effort to contact thm. I have to do all the social type stuff, his dad who is a GP is the same

DameMargotFountain · 26/10/2012 10:53

MaryBS that is also another huge factor in the apparent 'increase' in autism.

it is now recognised that girls present with far differing outward 'symptoms' and issues than boys.
as young children, girls with autism are very fine mimics, they learn very early in life how to 'fit in' for social acceptance, they are far more likely to become self-absorbed, withdraw and not present with anything until they hit puberty - which historically was written off to hormones and hysteria related Hmm

as they grew into adulthood, they would have very poor mental health, have abusive relationships and abuse substances by way of self medication

hopefully, early intervention will prevent more of these tragic happenings

pigletmania · 26/10/2012 10:54

Ment he never makes an effort to contact his friends, or phone anybody, does not see the point as he is happy with and mine company. We're all he needs he says

PropertyNightmare · 26/10/2012 10:56

I agree that more awareness is the key point. Kids who were branded 'slow' and put in bottom sets in school are now hopefully identified and specifically assisted at an early point.

chummymummy · 26/10/2012 11:01

my ds who is in Yr2 is in the process of getting A a dx. I have always suspected something as he is very diffrnt to the other 3. It was a huge relief when the school approached me with the same concerns. I am not interested in the label, I just want to understand him better.Above all I want him to be happy. I want him to be able to cope and not be so anxious all the time because of things that he cant control. I want him recognise his talents know that it is ok to him.

aufaniae · 26/10/2012 11:02

"we do need to be wary of defining people with autism as "super humans" and "gifted" etc..for some people (my DD) it is extremely disabling!"

Fangs, I didn't mean that autism = gifted, and I'm really sorry if that's how it came across.

I tried to use the example of high profile people who may have had autism to point out that it's been with us for a while at least, and may be part of humanity rather than a disorder as such. That's not to say that many AS people don't suffer greatly because of it.

cuillereasoupe put it better then me with her link.

The abstract she linked to says

"This article poses the question 'Is Asperger Syndrome (AS) a disorder or a neurological difference that has been socially constructed as a disorder?' AS is currently defined within the medical paradigm as a developmental disorder. Alternative conceptualisations of Asperger Syndrome have largely been absent within the academic discourse on AS. Drawing on the emerging field of disability studies we examine how the diagnostic category of AS has been socially constructed.

Our contention is that Asperger Syndrome has been readily adopted as a category because of its value as a category of special education. In other words, the school is a pivotal institution in the dissemination of AS as a category. Within the framework of special needs AS is viewed as a social disability and the aim of professional interventions is to help to rehabilitate or 'normalise' the child. In attempting to re-frame this conceptualisation of AS it is important to shift the emphasis from issues of diagnosis and evaluation to examining the social implications of representing children as having AS."

almapudden · 26/10/2012 11:06

I'm pretty sure my dad is on the spectrum. He's 57 and obviously easily diagnosed as a child - but he displays so many of the 'typical' signs (am aware that these can vary hugely from person to person).

He was miserable at school and university; I wonder if things might have been different if he'd grown up nowadays with a diagnosis.

FangsGoForTheMaidensThroat · 26/10/2012 11:11

aufaniae..I didn't specifically mean you :) I have just seen these threads before and they usually end up about high-functioning or gifted people is all :)

ProbablyDoingTheWrongThing · 26/10/2012 11:28

Fangs my ds is extremely severely autistic, but i still think he's a better person than I could hope to be.......that said i'd take away his condition tmw if I could, because it does bring a lot of distress with it. And then there's the whole not being accepted by society thing.

But the good parts of the autism, to be able to see such wonder in something most people wouldn't even glance at, it must be amazing to have that.