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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to just not understand this attitude?

290 replies

Livinginaparalleluniverse · 04/03/2012 20:28

Unfortunately my sister is in a wheelchair, the NHS provided wheelchair is functional, but too heavy for her to manovere by herself, and therefore she requires someone to go with her if she wants to go out anywhere.

The wheelchair she can use by herself is £1,000. NHS say they won't provide as they've done their bit and provided a wheelchair. My wealthy mother who for her £1k is a drop in the ocean, has spent 18mths battling the NHS to get this chair. My sister has asked my mum if any chance she could provide the chair, being very dependent is affecting my sister psychologically. My mum's attitude is the NHS should be providing the chair and therefore she refuses to purchase chair on principle not monetary.

Yes in an ideal world the NHS would have the funds to provide the best piece of equipment available, but we don't and that's the way it is.

My friend's son has a severe speech impediment and is waiting for speech and language therapy, but in their area due to staff shortage there is significant delay beyond the recommended 8 weeks. Again very wealthy, funds not the issue.

When I recommended going private, they were horrifed at having to, as why should they spend their money on something that the state should (and incidentally do provide just not in timely fashion)?

I just don't understand this attitude at all.

If you agree with them, please explain.

If you agree with me, thank you.

OP posts:
mathanxiety · 06/03/2012 18:51

The system I was living in didn't fund the equipment, only the diagnosis of the condition that required the equipment. I thought it was absolutely crazy and made no sense from a healthcare pov.

The optimal equipment should be provided and all therapies etc., should be delivered in timely manner. It makes absolutely no sense to call it a health service and not provide what is necessary for each individual circumstance.

TheRealityTillyMinto · 06/03/2012 18:51

OhDo - Paracematmol suitable wheelchair (of course)

but they come from the same pot of money. if we as a country waste the NHS's resources, then there is less left for people who need it/us when we do need it.

mathanxiety · 06/03/2012 18:52

Yes, they are leading it to the guillotine.

EssentialFattyAcid · 06/03/2012 18:56

2shoes its yours that was the "incredibly judgy and nasty post" not mine

OhDoAdmitMrsDeVere · 06/03/2012 18:57

Its an irrelevance on this thread and an insulting one.
You are comparing a lazy arse bludger with someone who needs a suitable wheelchair to allow her to get out.

The paracetamol man wasnt there trying to get painkillers for his adult child was he?

So how has it any bearing on this OP?

Where an ADULT needs a wheelchair and people are criticizing her mother (not her father or sister) for not buying it?

She is an adult with rights and these rights are being denied her by a system that is being hacked to death by this government.

They have prepared the ground well though havent they? When a group of mothers are begruding someone a wheelchair I would say their work is pretty much done.

EssentialFattyAcid · 06/03/2012 19:04

Well evidently the NHS should provide the most suitable wheelchair available.There is no dissent on this as far as I am aware.

The question is what kind of parent watches their child struggle when what they need is not provided by the NHS and could easily be provided by the parennt?

TheRealityTillyMinto · 06/03/2012 19:08

^Its an irrelevance on this thread and an insulting one.
You are comparing a lazy arse bludger with someone who needs a suitable wheelchair to allow her to get out.^

i am saying nothing like that. there is less money for suitable wheelchairs because of the NHS resources being pissed away. e.g. by mr paracetamol

OhDoAdmitMrsDeVere · 06/03/2012 19:09

What kind of person judges a parent based on limited and frankly spurious information in a first time OP?

If this situation is genuine we have no idea how much money the mother has. We have the word of the OP that she can afford it.

As I said earlier my DS is convinced me and his dad can afford lots of things.

Doesnt make it true though.

mathanxiety · 06/03/2012 19:12

If you don't want to believe a single word of the OP why are you contributing to the thread?

And it is absolutely true that free paracetamol adds up.

EssentialFattyAcid · 06/03/2012 19:12

Well what kind of a person judges the OP as a liar on no evidence?
If we have to question the facts as stated by the OP in all posts then why would anyone bother posting anything at all?

TheRealityTillyMinto · 06/03/2012 19:13

I dont understand why this is offensive: These people are content to see their presumed "loved ones" suffer for their own principles. I'm glad they are not my relatives.

saintlyjimjams · 06/03/2012 19:20

How old is the mother? A lot of older people worry about spending large sums because they fear their funds running out. I know quite a few retired people with loads of cash who are very careful with their money as they're aware it's all they have to last the rest of their life. Also anyone who had been living on investment income (as many older wealthier people do) have seen a big drop in income. A grand might not be that easy for them to find. even if they are outwardly well off.

TheRealityTillyMinto · 06/03/2012 19:21

mathanxiety.

  1. the receptionist was hardly going to hand it out. he would have to see a doctor/nurse. its their time/space that is the cost.
  2. friday night A&E is full is of the pissed. there are still dealing with it in the morning
  3. the paramedics in the ambulance (after i was in a crash) complaining about having to visit people who did not need an ambulance.
  4. gps complaining about large number of appointments for colds
  5. missed gps and hospital apointment.

these are significant costs.

OhDoAdmitMrsDeVere · 06/03/2012 19:21

I didnt say I didnt believe a word of it.
And why would I contribute to the thread?

Why the hell wouldnt I?

To attempt at least to challenge the attitudes on it for a start.

No Tilly - I can quite see that you wouldnt find that statement offensive.

And ha fucking ha to paracetamol adding up.

Well he didnt get any did he so it added up to nothing.

AND he DIDNT need it.
And he was trying to get it for himself.
And he could afford to buy it for himself.

Which makes it a pointless anecdote but one that is no doubt retold and retold to prove some sort of 'people are so entitled' point.

TheRealityTillyMinto · 06/03/2012 19:26

www.bbc.co.uk/news/uk-england-surrey-16678731

an average missed appointment costs £126.

TheRealityTillyMinto · 06/03/2012 19:28

"Epsom and St Helier NHS trust said funds lost from missed appointments in 2010-11 could have paid the salaries of about 226 nurses for a year.

The total cost of missed outpatient and surgical appointments was £5,664,836."

TheRealityTillyMinto · 06/03/2012 19:29

www.drfosterhealth.co.uk/features/outpatient-appointment-no-shows.aspx

"Missed outpatient appointments cost NHS hospitals in the region of £600m a year, data from Dr Foster Health and the NHS Information Centre have revealed.

Men in their early 20s are the worst offenders for appointment no-shows, while patients of both sexes aged 70 to 74 years are the most conscientious about keeping an appointment."

EssentialFattyAcid · 06/03/2012 19:31

MRsdevere perhaps you could explain what attitudes are you offended by and why , as this is totally unclear to me

nobody has said that the NHS shouldn't pay for a suitable wheelchair the thread is about what to do when the NHS don't pay but a relative is easily able to afford to pay if they so choose

OhDoAdmitMrsDeVere · 06/03/2012 19:31

Has a large chunk of posts been deleted?

You are trying to prove your point about a bloke trying to get paracetamol with missed appointments on a thread about a mother not buying her adult daugher a vital bit of equipment that should be provided by the state?

Tell you what.

Someone give me a shout if the OP ever returns.

I wont hold my breath

EssentialFattyAcid · 06/03/2012 19:33

what point are you making though?

OhDoAdmitMrsDeVere · 06/03/2012 19:50

Once last time.

The OP has made one post and scarpered.
She has told us her mother has lots and lots of money and that her unfortunate sister is suffering for want of a 1k wheelchair.
Wheelchairs that allow someone to get about on their own are generally far more expensive than 1k.
There is no 8 week window.
The sister is an adult and should not be dependent on her possibly elderly (and at least middle aged) mother to provide her with suitable (not fancy) equipment that meets her needs.
Disabled adults are people in their own right and should not be dependent on relatives to meet their needs.
We do not know if the mother does indeed have a spare grand lying about.
The sister has made no mention of why she has decided to absolve herself from any responsibility for assisting her 'suffering' sibling.
She shows great concern for her sister but somehow has no other solution than 'mummy should buy it'
Lots of people have criticized the mother and much has been made of families not helping etc yet the sister remains blameless for some reason.

So it seems that the OP is designed to get people foaming about how entitled people are, expecting their burdensome children's needs to be catered for by the state.

HTC

Livinginaparalleluniverse · 06/03/2012 20:11

OhDoAdmitMrsDeVere

I have not made one post and scarpered. I posted on Sunday and responded to the posts on Sunday.

As I stated in earlier posts I work full time, this thread seems to have kicked off today during my working hours. I've only just had the opportunity to log on now.

At the moment I've not had the opportunity to answer all of your questions. Let me post this and read some of the comments.

OP posts:
lainey8 · 06/03/2012 20:14

It's a cliche but true that the British expect European healthcare provision at US taxes. We quite simply do not spend enough on the nhs to provide the highest quality in everything. We have one of the most cost effective services in the world but you get what you pay for. It's likely that in somewhere like the us your sister would be paying £1000 a month for insurance and significant co-payments for the chair itself. Healthcare is hideously expensive.

saintlyjimjams · 06/03/2012 20:16

EFA - for many items the NHS initially refuses to pay (or SS or whoever) but if you kick up enough they will. Or they agree to pay but then take a year or two and threats of legal action to get them to deliver.

It can be hard sometimes knowing when to give up and when to carry on kicking up a fuss.

I still say the sister should get SS to provide some PA's to move her unsuitable wheelchair if she cannot be provided with one that actually does what it needs to. It will strengthen her case for being provided with adequate equipment.

KalSkirata · 06/03/2012 20:17

you are right about missed appts adding up. Which makes it especially annoying spending 45 minutes this afternoon trying to get through to outpatients appointments to cancel an apointment. Thats my phone bill that is.
Or the wastage that is the constantly new computer systems that dont work. Last week I recieved a letter cancelling dd's appointment for next week and moving it to 18 Janruary 2012. Which will be tricky without a time machine....

Wastage is not sick and disabled people being given the correct and suitable equipment. A wheelchair for mobility is as essential s prosthetic limbs yet it seems to be looked on as something cheap and easy to obtain. They are not.
And now come the mother is totally to blame for the OP's sisters situation. Not other relatives.
Women bashing, disabled people bashing, feckless scroungers (aparcetomol man) all in one thread. Its like the Daily Mail in here today. Add immigrants and we shall have a full house....