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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if you would consider joining the British Bone Marrow Registry

70 replies

BoysAreLikeDogs · 07/01/2012 11:22

click here for info

Thank you so much

OP posts:
ivykaty44 · 07/01/2012 15:32

I am on the Anthony Noland list - to old to join anywhere now but A.N keep you on the list even when you get to old to join.

yellowraincoat · 07/01/2012 15:33

I don't think I can do it as I can't donate blood for a couple of reasons. I wish I could, especially as my brother had leukaemia. They tested me to see if I could donate bone marrow to him, but I wasn't a match :( Luckily, they found another person to donate.

I'll ask my partner if he will, though.

longjane · 07/01/2012 15:37

it is 49 if you do when you give blood

LordFlashheart · 07/01/2012 15:38

I am on the Anthony Nolan register. You only need to be on one as they are all checked.
You can sometimes give stem cells or bone marrow even if can't give blood.
I got called after only being on the list for a year and was a good match, but unfortunately the patient got too ill to have the treatment so I didn't have to donate :(

TeWihara · 07/01/2012 15:46

I can't seem to see where it says if you can donate BM when you can't donate blood?

(Can't donate blood as don't weigh enough, DS is also only 2 wks old, but gather it's only 6mths post childbirth you are disqualified for?)

yellowraincoat · 07/01/2012 15:50

Looking for that too TeWihara.

Sheepling · 07/01/2012 16:16

I wanted to be a blood donor, but I can't due to having tattoos in the last 2 years - this was when I got my first one anyway. Have the rules changed? I dont really know the rules around giving blood, but I'd be up for it if I was able to. We get a leaflet thru our door telling us when the next time they are doing the giving blood thingy (whats it called? is it a blood drive or is that just american?) so the next one I'll call up and find out if I can do it.

IheartmyPanda · 07/01/2012 17:04

I live in Ireland but am willing to be on both lists (I am British). Unfortunately I can't even give blood in Ireland which is a shame as I have an uncommon type.

IheartmyPanda · 07/01/2012 17:04

Meant to say I can't be accepted as I live in Ireland.

TeWihara · 07/01/2012 17:08

I was just looking on the blood website and it said you can donate blood 4mths after tattoo's/piercings.

LordFlashheart · 07/01/2012 17:13

If you are not sure if you can donate if you contact them they will be able to tell you. I just know in the AN literature it says that sometimes you can donate bone marrow even if you can't donate blood.

LordFlashheart · 07/01/2012 17:14

you only need to be on one list as hey check all the lists worldwide to check for a match.

MollieO · 07/01/2012 17:15

Already registered and have been for years (since the first time I gave blood).

confusedpixie · 07/01/2012 17:17

An old school friend of mine has recently donated marrow. I can't donate blood at the moment (hopefully will be able to in a couple of years time) so am wondering like some of the others if those who can't donate blood can donate marrow? If I can't sign up now I shall as soon as I get the go ahead to give blood :)

Will get DP to bug the people about this when he next gives blood, he was working on the donation calls for AN a short while ago and is interested.

confusedpixie · 07/01/2012 17:18

Crosspost with Lord, I will give them a call on Monday morning then :)

IheartmyPanda · 07/01/2012 17:44

Is there an Irish list does anyone know

ReindeerBollocks · 07/01/2012 17:56

Lord flash - I joined the AN register and phoned them beforehand as I couldn't donate blood due to low weight. They went through some things with me and eventually I was allowed on the list.

Not sure about now but, I think I will ring AN on Monday to see if I can be reactivated on the list.

boredandrestless · 07/01/2012 17:59

Well it says you must be a blood donor, and as I'm not allowed to be a blood donor anymore it seems they don't want my bone marrow either.

DartsAgain · 07/01/2012 18:10

I am on the register, and also a blood donor.

mumofbumblebea · 07/01/2012 18:16

ok my father had a bone marrow transplant (although he sadly died due to complications with infections a few months afterwards).

i am all for people signing up these things who are serious about it, but please be aware that if you are called it is a big commitment! to donate bone marrow in the first place i believe it takes a couple of days and you have to travel to london, and then afterwards you may be called upon to donate to that patient again (this happened to my dads donor a couple of times, can't remember exactly what for). i would say to anyone only sign up to be on the register if you can guarantee you will be able to be there if needs be. i wouldn't sign up whilst having young children and a full-time job as it is not a commitment i can make. it also costs hundreds to sign people up so you have to be sure it's the right thing for you.

it is also not something to do if you want to be a hero. people who have bone marrow transplants do not go on to have the easiest lives and for the first few months/years they are constantly in and out of hospital fighting infections and complications which arise. many people (including my dad) die from these infections as their immune system is so low. not an easy thought.

despite the outcome of the fathers case, i am extremely grateful to the donor for giving him a chance. without it my father's cancer would have returned and it was likely he wouldn't have another 10 years. as it turned out, not having the transplant would have been the better option, but no one could have known that and in my dads case he had to take the chance on a transplant. it is a great thing to do if you have the time, but please only register if it is something you are serious about doing.

mumofbumblebea · 07/01/2012 18:19

my personal thoughts from my experience are not to nag people about registering, it costs a lot of money to register people and it is a big commitment. it doesn't help anyone if people are forced into it.

AKMD · 07/01/2012 18:31

YANBU to ask and I have considered doing it but haven't for the exact reasons that mumofbumblebea gives. I'm not in a position to make that commitment yet but will reconsider when I am. I d give blood and I am on the organ donation database though.

alongtimeago · 07/01/2012 18:46

I don't think there's any question of people being forced bumble - it's about raising awareness of something that people often mean to do, like giving blood, but don't get around to doing.

For those that aren't aware Expat's dd Aillidh, aged 8 is currently being treated for AML and will need a bone marrow transplant. Her siblings aren't a match so she will need someone from the register.

If you feel able, please sign up. Thank you.

himynameisfred · 07/01/2012 18:55

Hi guys,
I don't think I can give blood either, although I have wondered.
I'm moderately anemic which probably means no, lol
Have IgA deficiency (immune problem)
+Anti-M in blood

What are your problems with giving blood?
It would be interesting if you don't mind sharing.
(I've never met anyone else with my weird blood ishoos)

On bone marrow, they have to stick a needle into the bone don't they?
Are you sure you're all so cool with that?
Very herotic if so!

mumofbumblebea · 07/01/2012 18:55

alongtimeago i agree with raising awareness about it (i currently don't think there is enough awareness). i think that nagging people about it (as someone mentioned, can't remember who) is wrong.

i really hope the little girl you mentioned finds a successful match and recovers. fingers crossed for her