yesterday we were at a carnival. We walked past a group of people who heard ds3 speak, he has autism and associated speech disorders, and laughed at him calling him a few names like diim.
They didn;t know I can hear.
I feel I let him down by not saying anything.
DH feels I did as well (he wasn;t tehre).
It's not just that- I won't appeal for a blue badge becuase I am scared of being confronted by people who can't see his disability having a go; I won;t even use a P&T space despite having 2 (nad one being dx'd ) asd kids with me becuase I don't 'qualify' for P&T now ds4 is a pre-schooler. DH got very annoyed saying I was placing their safety below my embarassment at potentially being faced with a 'mumsnetter who thinks she has a bigger right'.
We get no help with respite of any kind and I almost handed back teh taxi SSD provide to pa[lyscheme (a palyscheme available to NT kdis as well) becuase I found out that for us to get it, a friend with an asd child and who is a single mum lost hers.
AIBU to think I am really letting the boys down? I read about people having a sense of entitlement- I seem to have the opposite. I ahven;t been able to do any work for 6 months and instead of closing my (incredibly tiny) business I still pay NI (I checked with HMRC that this is OK, it is) becuase it amkes me feel less guilty about teh help we do get (some disability support and SNU places).
Please or to access all these features
Please
or
to access all these features
AIBU?
to think I let ds3 down?
46 replies
Peachy · 04/09/2011 14:09
OP posts:
kerrymumbles ·
04/09/2011 16:32
This reply has been deleted
Message withdrawn at poster's request.
Don’t want to miss threads like this?
Weekly
Sign up to our weekly round up and get all the best threads sent straight to your inbox!
Log in to update your newsletter preferences.
You've subscribed!
Please create an account
To comment on this thread you need to create a Mumsnet account.