To wonder who david cameron thinks is deserving when people with hospitalised disabled children are not ?

[bumpsoon]

Now i know many of us were fed up about the whole CB being withdrawn from those over the threshold etc , i was ,but if that meant the Rivens of this world got a bit extra then i wouldnt mind , on the news this morning it said that those getting disability living allowance (might of got that being wrong) will not be getting it if their child is in hospital , because the nhs will be providing for the childs needs .WRONG ,WRONG,WRONG . the nhs will not provide toiletries, laundry facilities ,decent incontinence gear or (unless the child is in ITU) one to one care

I think he thinks very rich people are deserving. They inherit create wealth dontcha know.

Its nothing new if your child is hospitalised for a certain length of time you have to inform DWP.

Its always been the case but yet again the Tories get the blame. Child benefit and tax credits can also be withdrawn if the child spends x time away from home.

The child would have to be in hospital for a total of 84 days before DLA was taken away.

The point they made in defense of this was that DLA is calculated on the extra living expenses that are incurred as a result of disability, and when a patient is in hospital those costs are met be the NHS.

I can see that in theory that might make some sense, but unfortunately in the real world, it simply doesn't. Maybe if parking charges at hospitals weren't so ridiculosly high it wouldn't be so bad.

i wanted to do a thread on this as well.
as parents of disabled children do all the care when their child is in hospital it beyond mean that they loose their DLA/cares

it might have always happened but that doesn't make it right

Hospitals don't like admitting disabled kids that's why they do all the care.

why dont hospitals like admitting disabled children?

link to rivens thread apparantly there thinking of dropping it to 28 days

It's always been the case.

It's not very fair though. I know child who has spent years in hospital and it must cost a lot. He needs a parent with him at all times and there are other children in the family as well. Makes working rather difficult. I would say it often costs more to the family than having a disabled child at home.

It would have been good to hear that this had been changed but I don't suppose that will happen.

Bloody hell, the costs of having a child in hospital are immense - unless you just leave them at the door and go back home til they are ready to be discharged. Travel and car parking, canteen food for you, unpaid time of work , childcare for other children left at home....

My daughter (CP, epilepsy, hydrocephalus, etc etc....) was hospitalised a couple of weeks back. It cost us loads in transport, food at hospital (one of us stayed with her day and night) and as my dh is self employed, in lost earnins as he had to turn a job down. Luckily we were only in for 4 days, so didn't lose DLA, but an assumption that life is cheaper when a child is in hospital is total rubbish.
There is a campaign being run by Contact a Family to change this ruling, hence the current media coverage.

I saw this on Breakfast News this morning and was disgusted. I can't believe that there is anyone in the real world who would begrudge this money for the parents of disabled children.

Why don't hospitals like admitting disabled children?

If there's a campaign going on right now, is there a petition to sign? I'd be happy to add my name.

i know that when dd had an operation last year, that I did all the "care" the nurse took obs and that was it, I gave her her medicine(which I had brought in) I fed her, toileted her, the whole lot. I barely saw a nurse(until one took pity on e and watched her for me whilst I popped out for air.)
dd was only in for an over night stay and it was bad enough, I can't imagine what it must be like for parents whose children are in there for longer.

I don't know why but I've had hellish trouble DS being sent home extremely ill GP was disgusted and other parents have had the same problem.
Don't know if it just applies to asd/learning disabled kids but they sent us home at 11pm 3 weeks before he was back to school but not 100%.

www.cafamily.org.uk/dlatakeaway

I have a friend whose severely disabled son was in hospital a short while ago. While there, his DLA was cancelled and his agency carer was dismissed. The carer is now in a huff, which is a shame since she was the best of them. However, with not enough money to go around, how can we afford to pay for care twice over? It will mean less care for something else. Tricky, but then no system will ever be completely fair.

Happens to OAPS as well, don't know what time limit they get - it used to be 6 weeks , not sure if that is still the same.

Not a Cameron/tory thing - it's been this way for a very long time

Not right and should not be the case, but you can't blame this government

It happens to people on pensions too, I know as it happened to my nan about 7 years ago, when she was in Hospital for just under the 28 days (we knew this to be the cut off) but then went back in a week later. We didn't know that there has to be 28 days between hospital admissions or it counts as one admission. My mum was threatened with prison as a result, as once we found out we straight away reported it.

they don't pay for care twice, the parent still does the caring.
if you have a disabled child that cannot talk or do anything for themselves, the hospitals do not provide the care.

We had to pay for a care home for our terminally ill mother - no help for that at all. She needed total care but we didn't qualify for any money off. It was paid out of the money we got when we had to sell her house.

We had loads of costs but there was no help for this.

Some people get help and others don't.