a Diagnosis doesn't change the world though, or make it easier to live in.
My DD1 has behavioural problems. She is 4.7. She doesn't have any understanding of social 'norms' or boundaries.
She doesn't have any inhibitions about displaying her less desirable characteristics whereever she is. She needed 1:1 at all times at preschool, and needs constant supervision at home.
Our home has to be modified, and the modifications regularly updated to keep her safe. Stair gates everywhere, including the front door to stop her escaping.
She starts school in Spetember, and will go to a SN school, because a MS one couldn't keep her safe, and even if they kept her in the site, they wouldn't be able to keep her in the classroom, because of the open plan nature of Primary schools.
She does have a diagnosis. But the diagnosis doesn't make her behaviour easier to deal with, her lack of danger awareness easier to overcome. Our lives don't get easier, they get harder.
To see her clamp her hand over her mouth desperately to stop herself saying something when she has been asked to be quiet, for example, is quite heartbreaking. She knows that she can't control herself mentally, so she tries to physically stop herself.
She has a brain malformation, it turns out. Her CT scan was fine, so we were relieved, but then she had an MRI and it showed on that.
The dx is really no consolation a lot of the time. We asked the paediatrician if there were any more opinions about her brain, and he said "Well, to be honest, we picked up the images, looked at them, mumbled that we didn't really know much about it, and put them back in the pile."
Her brain malformation is widespread, it affects everything, but the best thing of all is that to the outside world, DD1 looks like a child who needs a bit of discipline and structure 