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Allergies and intolerances

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desperate need help - 11 month old on such a restricted diet, no idea what to make anymore

43 replies

mad4myboys · 23/10/2009 18:29

11 month old ds2 has a few health issues. Firstly he has very bad reflux and is on medication. He has had alot of problems with certain foods and for a little while (under paediatrician) we need to keep dairy,soya,all protein foods and wheat. Today i took him to see a lady who does biochemistry screening, allergys etc and it has come to light he has candida. Showed he is also intollerant to banana, bakers yeast (marmi0te) yeast & mushrooms (because of cadida) grapes/raisins.

Im REALLY struggling. I can make some sort of cakes with wheat free flour and use brown sugar but all he is eating is either wheat free pasta or rice with vegetables blitzed up in it. Obviously he is now getting bored and wont eat alot of it.

The lady thinks that 2-3 weeks with avoiding these extra intollerance foods and with the bifidus stuff we should see a difference and MAYBE he will then be able to start eating protein foods and things that he isnt intollerant to but is having problems with the digestion side of things.

ANYONE??

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foxinsocks · 23/10/2009 20:02

no and they are designed to appeal to you when desperate unfortunately

what have the doctors said about teh constipation issue? Is it possible that neocate could be the problem? Have you tried other hypoallergenic formulas like nutramigen?

mad4myboys · 23/10/2009 20:05

he has said the constipation is 'functional' and that he will grow out of it

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mad4myboys · 23/10/2009 20:06

he was on nutramigen for a while and there was no improvement. He has been constipated since birth so i guess the neocate cant be blamed as been on it since he was 2/3 months old?

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Gumps · 23/10/2009 20:12

Hey Mad4myboys. Sorry to hear your little one is still struggling. Take it the increased dose of omeprazole has made no difference? We are dropping the dom peridone here but it has lead to much puking...
Anyway S doing better and has now accepted wheat and egg (MIL gave this and I was so but at least he was ok).
No idea abut the cadida but we too were put on a restrictive diet by paed and introduced things very slowly. Wheat was a nightmare to start with but then we left it and tried again 4 weeks later and it was much better. I kept a record of when I gave things and any symptoms, e.g. eczema, irritability, red nappy area.
I find waitrose good for food. They do a great bread which has no egg, dairy, soya or gluten in it. It has an ortiental looking label, sorry can't remember the name. The annabel carmel free from pasta is quite good too. We also have pure spread which is dairy and soya free.
I also found finger food the way forward, things like sweet potato wedges, baby corn, broccoli. Had to persevere though as found S reflux made him gag quite a lot at first. Also rice is great, quinoa, millet. I also gave spelt first as although it is wheat apparently it is easier to break down.
Sorry a bit waffly but hope it is of some help. Stay positive. I cried when I took S out to dinner for first time and had to request the ingredients book and check everything. But he is doing better every day and hopefully your little one will get there too.

foxinsocks · 23/10/2009 20:14

did he have meconium issues?

re the food, I found sweet potato a life saver. Most babies like it because it's sweet (obviously!) but it's quite a nice bulking food (same with parsnips).

Gumps · 23/10/2009 20:15

Foxinsocks can I ask what are the symptoms of reflux in a 9 yo? How much has it affected her growing up? Really interested to hear a further on story if you have time.

Gumps · 23/10/2009 20:17

Sorry also Fox did you give any probiotic or such to your lo to help them cope with the medicine. Have been recommended it by others but I am loathed to put another 'medicine' into him ifswim.

mad4myboys · 23/10/2009 20:23

hi gumps, yes we use all that you mention! Pure spread already due to ds1, annabel karmel pasta is the only one as 'grown up' wheat free are a bit slimey and he gags. What else can i do with sweet potato? What snacks can i give him? Oh and the double dosing of omeperazole havent made a difference.

mecconium wise, he didnt pass alot of it. I remember with ds1 it wend everywhere and was at least for a whole day or 2. With ds2 it was a very small amount. midwives at the time didnt think anything of it..

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foxinsocks · 23/10/2009 20:27

well I hope I'm not boring anyone by telling the story and I may get things a bit out of order due to me forgetting a lot (I KNOW, believe me, you can get to that place!)

well she was born and was a screamer straight away. Was pretty clear there was something wrong in the first hour. Midwives totally unhelpful . She was breast fed but was dreadfully dreadfully sick and in pain. She had hideous eczema, especially on her face. Doctors didn't help at all and just prescribed gaviscon and told me to get on with it. I had to go back to work when she was 4 months and it was when I tried to get her onto the bottle that the problems started.

Tried her on sma and the minute it touched her lips, her lips swelled up and she became covered in welts. Health visitor advised we tried Wysoy and the same happened. Went to the doctor and he prescribed nutramigen. A week on the nutramigen and her eczema completely cleared up (was unbelievable - it was red raw on her face).

She still had dreadful reflux and we couldn't put her down until an hour after every feed! And even then, she barely slept.

Then we started weaning and it was a disaster. She reacted to so many things and I went back to the doctor and begged for help. The doctors had a right go at me for cutting milk/soya out of her diet with no proof of allergy (grr) but thankfully, referred her to a paediatrician who did allergy tests and found she had milk/soya/egg allergy and bad reflux. She had other allergies that popped up but were put down to immature digestive system.

She went to nursery but they fed her milk and she ended up in hospital. By now, I had ds and he had reflux and was in hospital with breathing problems and I gave up work as they needed full time help!

I had to stop weaning and go back completely to the start. So at something silly like 9 months, we cut everything out and started again with carrot!

Her reflux still hadn't improved and all that happened now was that her sick was full of food and milk rather than just milk. Her teeth that came through were totally ruined by all the vomiting (enamel eroded).

As she started moving around, her stomach started strengthening and at about 15 months, it started improving and she started sleeping (hooray!).

Roll forward, we had the milk allergy tested (food challenge) at 1 (still there), 2 (still there) and finally at 2.5 she outgrew it. They said if dairy had gone, soya would be fine. Egg was still there and potentially looking a lot worse so we had to be careful with that.

As she has got older, the reflux affects her in that she can vomit at the drop of a hat. Any cold or congestion results in vomiting. Her teeth are a mess and she gets a v nervous stomach (probably because she can get nauseous v easily). But we don't make a big deal out of it.

I have reflux too and am on omeprazole permantetly so we are a house of refluxers! I make sure she doesn't over eat...if she ever has a glass of something like chocolate milk she will immediately feel sick because she can't bear (nor can I), the heavy feeling of heavy liquid (like milk) in her tummy!

shockers · 23/10/2009 20:29

My son used to have terrible stomach cramps. One of the main culprits was milk ( couldn't BF as he is adopted) We tried soya milk, rice milk, the only one that has stopped the cramps is goat's milk. He can't take porridge but can take other oat based cereals and bananas are a no-go area!

foxinsocks · 23/10/2009 20:30

sorry, should have said she is 9 now and ds nearly 8.

mad4myboys · 23/10/2009 20:32

fox, my goodness! What a journey! I had probs with ds1 he had bad relfux but he projectile whereas ds2 relfuxes the acid up and then swallows it (silent) and therefore more pain. He had allergy tests done the other week.

ds1 the only milk he could tolerate was nanny goat formula from 3 months old. He still has to have goats milk now.

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Gumps · 23/10/2009 20:34

Oh thats so much Fox. Only ever hear of babies with reflux and not what happens later on. So sad about her teeth. Hadn't thought of that but know about it from bullemia (not me a friend). Cruising has def made a differenc here and whispering, incase it never happens again, he slept until 6am for the first time in his life. PLease go let it be the start of real sleep.
Interesting to hear your ds has it too. My ds1 is fine but thinking of dc3 and really worried that they might have it too and whether we could cope with it al again. Is there any research into what causes it or how you can help prevent it?

Gumps · 23/10/2009 20:36

Sorry that should have said thanks Fox Mad S is silent too. My paed said its worse as they don't expel the acid and it just keeps going up and down, causing pain.

foxinsocks · 23/10/2009 20:42

yes I wish someone had told me about the teeth and maybe I could have done something to help

what made it worse were the dentists accusing her of having too many sweets and she always had such a good diet poor child!

silent reflux horrible - if she wasn't vomiting at night, it was definitely doing that (going up and down). That's what it does for me and it's very painful.

We never did probiotics but don't forget, dd was born 9 years ago and things have moved on so much since then. They didn't regularly prescribe omeprazole for babies at that time either!

Gumps · 23/10/2009 20:48

Oh for us omeprazole is drug of choice! It made a huge difference.

mad4myboys · 24/10/2009 11:39

really wish it was for us

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mad4myboys · 24/10/2009 15:37

anyone else any suggestions on food??

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