Just like you really i suppose laura:
DS5 was always a sicky baby, and sometimes difficult to feed. I was sure at 4wks there was something wrong and he only had breastmilk at that point. I swapped him to formula at 8wks (if id have known what the probs were id have kept up the breastfeeding!).. and things went from bad to worse! every formula seemed to make him worse, sicky, gassy, crampy. the GP assured me all babies were like this. I knew they werent after all this was my fifth baby and none of the others were like that!
anyway we ended up with C & G comfort which was the best of a bad bunch.
weaning came and went and he got worse and worse. Egg made him throw violently, as did bananas. Then things got even worse - he had regression, stopped pointing, stopped waving, he never babbled anyway, but he stopped smiling and interacting at all .
By this point he had very little energy, was practically grey, had constant alternating diarrhea and constipation, and we were avoiding certain foods that made him hurl.
the dietician advised to remove ALL milk, which we did and i couldnt believe the difference in him! looked healthier more energy, and started looking at people again - he even started to answer to his name after a couple of months! Because we removed milk, we put him on soy milk - the diarrhea remained, but we didnt realise we had swapped one intolerance for another!
After 8wks of milk removal, we removed gluten as well. OMG it was horrendous!!! his behaviour was even worse - he self harmed more (scratching his face, nipping hiself etc) and he started headbanging too . he screamed for a week practically non-stop - but i had been warned that if his behaviour got worse, then it was working and he had an addiction which was causing withdrawal symptoms, it was heartbreaking. that lasted about a week, before he started calming down again.
He still had diarrhea, so we were still missing something. so we swapped the soy milk to rice milk, and it ALMOST stopped. so we removed wheat and it cleared up overnight - no more 'blips'.
DS5 is 3 next month and is still non-verbal, but he has learnt to do some basic makaton and he is full of life now, very loving, and happy. he probably is autistic in some way - but we will have to wait and see.