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Im pretty sure im on my way out 🙁

287 replies

EachandEveryone · 27/03/2026 14:49

Ive been in hospital for nine weeks rushed in with massive infection. Every time the try to reduce the antibiotics or change them to oral I spike temperatures and they have to restart. I obviously have an untouchable infection,

I have squamous cell cancer with unknown origin. Its been three years two years of chemo kept it in place but now its growing in my lymph nodes. Surgery not possible as i would bleed too much. Immunotherapy was supposed tonsave me but Ive never really had. chance to give it a go due to my bad luck,, vascular surgery, then taking my shin skin off then colitus! Infeel cursed!

my consultant is willing to try immuno again but he honestly doesnt think my temp will stay down long enough.

the other option is home on profilactic antibiotics and a care package. I feel like this is the only option really. I miss my cats. I feel so well in myself its so unfair. What started off the size of a peanut is going to kill me and god knows when that will be. Judging by the whispering and my consultant telling me to start smoking again it must be soon.

I feel sick!

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Vinorosso74 · 25/04/2026 15:36

@EachandEveryone so sorry ro read your update. It is really shit.
PM me if you need any support with the cats. I still volunteer for Cats Protection (at the centre in Harrow). I can speak to the staff and see if there's anything that can be done.

Wish I could help with the medical side of things for you too.

EachandEveryone · 02/05/2026 12:23

Did I tell you I’m back in hospital? Infection again. The antibiotics are working slowly. I feel but there is no good news really. The surgeons won’t touch me as it’s too vascular. If the infection goes the question is whether o can go home on profilactive drugs or not. This will rule out immunotherapy’s I’m between a rock and a hard place. It’s so
unfair I feel so well and no one who meets me can believe it. The cancer hasn’t grown.

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Allisnotlost1 · 02/05/2026 12:31

EachandEveryone · 02/05/2026 12:23

Did I tell you I’m back in hospital? Infection again. The antibiotics are working slowly. I feel but there is no good news really. The surgeons won’t touch me as it’s too vascular. If the infection goes the question is whether o can go home on profilactive drugs or not. This will rule out immunotherapy’s I’m between a rock and a hard place. It’s so
unfair I feel so well and no one who meets me can believe it. The cancer hasn’t grown.

So sorry to hear you’re still in this limbo, I can’t imagine how horrible it must feel. It’s good that you’re feeling well but then even more frustrating to be in hospital. Are there any second/additional opinions or options available to you in a different setting?

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MissMoneyFairy · 02/05/2026 12:40

Have you seen the vascular surgeon, would radiotherapy help at all. It sounds really frustrating for you.,

ChillWith · 02/05/2026 18:14

I'm sorry to hear that. Do you have someone who can help you ask questions of your team with the aim of getting you home? It must be so frustrating to be there for infection treatment when that could possibly happen at home. Is it intravenous? Big hugs x

tryandbepositive · 02/05/2026 18:18

Oh no, sorry to hear you’re back in hospital. Hope a positive outcome can be found.

Dewdust · 02/05/2026 20:52

I think sometimes they call you in and out of hospital just to keep an eye on your progress.
The good news is that you feel well in yourself. Thats a very positive sign.
It really depends what the infection is but at least youre responding well to treatment.

Dewdust · 02/05/2026 20:58

Maybe its not the time for immunotherapy...maybe all you have to do is to get the infection sorted.
Then the cancer treatment etc will be more effective.
Do you sleep with your room mate ie as a boyfriend/ girlfriend thing?
And do you carry any infections from that?

Peony1985 · 02/05/2026 21:02

It’s not over until it’s over.
You’re posts reflect the kick ass woman you are.

Sorry you are going through this. Hope you get some better news.

Lougle · 02/05/2026 22:55

@EachandEveryone it's all so frustrating for you. I can understand why the surgeons won't touch it, why the medics want antibiotics, etc., but that leaves you flapping around, waiting to see what's happening next. Have you asked if there are any radical options that you haven't been told about that could be considered? Would you want radical treatment?

EachandEveryone · 03/05/2026 12:22

Well I wouldn’t want to lose my legs if that’s what you mean radiologist said the same as the vascular surgeon there will be too much blood loss. I asked about a second opinion but they said my man is an expert there’s no point. I was crying and told them I’d try anything. They took me off ab last night and straight away my temp shot up.

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MissMoneyFairy · 03/05/2026 12:29

Do they know the source of the infection and the bacteria, it sounds so frustrating and distressing for you.

Specialneedsnightmare · 03/05/2026 12:54

So sorry @EachandEveryone it must be so distressing and awful. I don't have any answers but I'm thinking of you so much right now.

CleanSkin · 03/05/2026 14:05

I’m so sorry you’re not being treated as you should, in your hour of need.

If you don’t mind me asking, where in the country are you? There may be some on this thread who are close by.
(apologies if this has been mentioned already & I’ve missed it)

Owlmoonstar · 03/05/2026 16:33

Sending love.

EstherGreenwood63 · 03/05/2026 17:23

Thinking of you OP. You're amazing. Wishing for some good news for you very soon. 💐

Dewdust · 03/05/2026 21:37

It must be unnerving not knowing exactly what the correct treatment is. Has anyone suggested that you have sepsis and removing your legs would be an act of kindness in their opinion?
Why worry about the cancer that hasnt grown when you have an infection of the blood to get rid of first?
If you hang on in there you may get better!

Dewdust · 03/05/2026 21:40

Is your mum still living in this world and does she know you are ill?

Lougle · 03/05/2026 21:45

EachandEveryone · 03/05/2026 12:22

Well I wouldn’t want to lose my legs if that’s what you mean radiologist said the same as the vascular surgeon there will be too much blood loss. I asked about a second opinion but they said my man is an expert there’s no point. I was crying and told them I’d try anything. They took me off ab last night and straight away my temp shot up.

Completely understandable. I know some people do have that sort of surgery but it's so radical. I hope they come up with a plan quickly.

Vinorosso74 · 03/05/2026 22:24

Oh @EachandEveryone sorry you're back in hospital. I really hope they come up with a plan that works for you. So frustrating for you

LifeOnTheVeg · 03/05/2026 23:36

I’m so sorry to read this, and sending you my best.
I hope you get all the help you need 💐

EachandEveryone · 05/05/2026 13:49

I’ve started more antibiotics and I do feel quite rough.

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MissMoneyFairy · 05/05/2026 14:39

Sorry to read you're feeling ropey, I'm not surprised with everything that's going on and all the different antibiotics don't help.

dontcallmelen · 06/05/2026 09:29

Hope you are feeling a little better today 💕

EachandEveryone · 06/05/2026 14:09

I’ve slept until now! Anyway medical doctor said it’s a UTI and the drugs are working but they need a plan for home from the microbiologist. My oncology consultant rang about five minutes ago and said that if I get out of hospital this week I can have treatment next week. I’m so shocked because I will probably go home on antibiotics and he always told me it wouldn’t work being on the two

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