What are you up to today if you have a chronic illness? Thread 7

[MewithME]

Last thread 🧵

https://www.mumsnet.com/talk/_chat/5490534-thread-6-good-griefwhat-are-you-up-to-today-if-you-have-chronic-illness

Fill up last one first 😁

I'm sure a bit of extra vibration through the feet would be quite nice @Gettingbysomehow

I have unexpected sawing and drilling going on as a man has come to fix my garden gate. I knew he was coming at some point as my landlord had accepted his quote, but nobody had actually told me it was today. Feel like I can't relax until he's done!

Not a lot. Weird brain issues this morning so had to take it easier than had planned. We are heading out for a bit later now that the feeling that a seizure might happen has passed - I’m sure once I’m out it will be nice but at the moment I feel like staying put whilst equally feeling like that would be an epic fail. Ate some protein which hopefully will help with the energy!

Ooh yay, the weird dreams are back (had a few days of less weird) - last night I was running away from someone through a big university/ museum building with lots of spiral staircases, trying to help my friend start her car when it was full of water, on some really busy buses, and having a discussion with an ex about what we would do now we're divorced (in real life we split up nine years ago and were never married).

Anyway! Fairly quiet day today - waiting for delivery of my shower seat which could come at any point during the day. Am working my way through the list of resources the LC clinic sent me - some sort-of useful videos, and a load of links to leaflets that don't work any more...

Sunny this morning so will try to get some time in the garden. I was looking at zero gravity recliner chairs yesterday which are quite tempting.

Gosh @martha79 they sound like anxiety dreams. Hope you are ok and can relax a bit this weekend. I woke early and dozed with a podcast. When I woke up I realised my dream had sort of muddled with the podcast and I was visualising some weird landscapes. It's about North Korea (BBC sounds...Dictators...v interesting!) so dreamt of very weird park with purple grass and white steps!

It's sunny here too. I might read a bit if I get chance and feel up to it. Still sat in bed. My back is twingy today. Not sure why. I've got nerves twitching in my legs. Somewhere between the usual vibration feeling and pins and needles with the od big twitch. God ME is a right annoying thing (understatement!).

Going to have an epsom salt bath and plod through some laundry. I said I'd take DS for lunch which will be nice. Probably not the wisest decision for me but I can rest after.

Morning

I've just gotten up as pre menstrual stuff is exhausting me. I actually quite like having weird dreams as most of the time I seem not to dream anymore. Love that weird have awake half asleep type dream.

Plan is to take DD swimming, let her paddle about while I do some gentle stretches and movements. Muscle fatigue level is ‘good’ at the moment so enjoying it while I can while trying not to go mad and throw myself into PEM.

Suns out. Have a lovely day all xx

@martha79 Your dreams would exhaust me!

Weird dreams here too. Last night I had a dream that I had a baby, quite a big baby that I was lugging around and trying to put in a baby carrier but it was a struggle, and I was complaining that no-one was helping me and DH had buggered off somewhere, we were on a holiday and there was a pool but couldn't go swimming due to the great big baby!

I think this might have been prompted by the discussion on here about having tall DC but being short ourselves- and that DS (17) was on something like the 92nd centile when he was a baby!

Quite a relief to wake up and find I didn't have this new 'baby'!

Quite a nice sunny day, was feeling in a good mood so took MIL out for a cuppa in the local cafe and got a new purple top from the charity shop nearby.

Now back in bed with a cuppa as usual. Hoping for a good weekend for all

@Orangesandlemons77 I quite like dream bible. " Negatively, a baby in a dream may reflect new responsibilities or new problems that require constant care. Babies may also reflect people in your life that you feel the need to look after closely such as the elderly."

Hmmm?

Hope we all sleep well tonight. I'm in bed now. If only I could stay here and not bother with dinner!

I'm glad you didn't actually have a surprise giant baby when you woke up @Orangesandlemons77 🤣

I did a bit in the garden first thing and managed a walk to the nearest shop (about ten minutes). Did not enjoy the brief bit of shopping but got it done. Otherwise been on the sofa or in bed. My shower seat arrived and is now sitting in the spare room until I have my visit showing me how to use it safely!

V slow day today, mostly in bed with my knitting and a brief interlude in the garden pointing at branches for DH to cut down. Take away for tea and early night 🥱

@Orangesandlemons77 that was quite a dream!.
Had a lovely afternoon. Dd1 & partner have just bought their 1st house & we went to see it. Had a chap in doing the flooring before they move in next week. You know how a house just has a nice atmosphere? Felt nice even though only some of their stuff is in. Dh then did a rather nice chicken salad for tea.

Hope everyone is well, had a busy week with a suprise visit from my eldest who had moved down south in January so mostly been working and spending time with them before they got early train back today.
went to collect my prescription sunglasses today and out for lunch with DH was a bit sad though as my visible band showed me exerting myself by walking from the table to the loo 😞

anyways plans for resting tomorrow for me

Evening! Hope people are coping.

being back at work is kicking my butt. I won’t know how much for a few weeks, but I’m not looking forward to the next two weeks which are five full days. Bank holiday week I’ve got uni for a day so only in work proper three weeks. I’m holding on to that.

I’ve got to go and have a 24 hour heart monitor fitted on Monday; then hand clinic and then physio Tuesday. I’m not used to being out and about so much.

we got through mil funeral, it was awful. My heart broke for my kids who were devastated in very different ways.

@FurForksSake you have so much on your plate just now.

I was dreading my 24 hour ECG but it was fine. They didn't warn me about not wearing underwire bra btw. The metal can interfere with it apparently. She didn't explain it too well though. They give you a log to keep. I thought it was only for when you noticed something like a palpitation but it was mean for most activity I think. You have to go back the next day to drop the monitor off but I expect someone else can do it for you.

I was worried about being itchy with the sticky pads but she said if I was very uncomfortable I could just take it off myself.

Quiet day here. We nipped to Tesco's first thing and then back to sit in the sunny garden with a coffee ☕

I have pottered and watered but nothing more ☀️

A restful afternoon ahead and then soup for tea. I do need to wash my hair though 🚿

Have a relaxing Sunday all 💕

I have had a nap 💪🏻

That is my dull update for today 😊

Afternoon all. I spent from 8pm to 10am in bed last night, apart from getting up briefly for a cuppa and something to eat at 6am. Braved going to my first orchestra rehearsal since December this afternoon - only managed half of it but that's definitely progress compared to last month (this group meets around every 3-4 weeks) when I would have struggled. Feeling achy and headachy thanks to the uncomfy chairs and general volume - although I found my Flare earplugs were good without blocking out too much. In a taxi home now for some quiet and snacks.

Managed to get out today! Dh drove me to the woods and we sat in a bird hide and ate a picnic. Then he set up 2 hammocks between the trees and we lay in those for a while watching the river and listening to the birds. It was lovely! Home now, have spoken to my mum on the phone, and am now planning what to eat next week with dh so we can order a shop.

Weighed myself yesterday and im a few lbs down again, I can't seem to keep my weight up without conscious effort. So I've made myself have a mid afternoon oat bar. Sigh!!+

@FurForksSake sounds really hard, you've got so much going on at the moment. Sending lots of love.

That sounds lovely @bedfrog! Wish I could send you some of my spare weight, I'm quite shocked at how much I've put on in a short time but have been told not to even try reducing what I eat at the moment.

It struck me today how difficult it is to explain some illnesses to people quickly - people I don't know that well asking where I'd been. I got one "so you're just really tired?" and one "Long COVID, so you're still coughing?"... I settled on a "my system is broken and overreacting to everything"!

@bedfrog next time you’re able to do that, the Merlin bird app might be of interest to you. It listens what birds are around and tells you what they are and depending where you live or if you have a garden, it even works in the garden. Sounds a lovely day 🙂

@martha79 I was just thinking the same thing at @bedfrog 's losing weight. I'm so heavy now.

Generally I am ok about it but now and again I feel sad at suddenly feeling so unattractive (maybe because I am single too and doubt I'll ever have another relationship at 52 and having MEcfs).

Feeling a bit down this evening because it's just been a slog today. I mean it was nice enough popping out yesterday with DS but I just feel done with single parenting at the moment. I wouldn't be without my lovely boy but I've done so much work today... laundry and mum taxi and changing sheets and yesterday went out to do something so it wasn't a boring day for him. I'm absolutely exhausted and at work tomorrow.

Mum is expecting a phone call but I'm not going to manage it.

Exh is whining about needing a holiday again. He goes abroad about X4 a year now. Leaves me to it obviously. I haven't been abroad since out honeymoon and we divorced ten years ago.

Two friends have sent me photos of being out for lovely events and walks at the coast. I feel sad about missing out on life tonight. I know they don't mean to but I find it hard seeing those photos sometimes.

Love the sound of the hammocks. Brilliant idea 😊

We made it out for a walk! And I made a roast. Now exhausted but we did stuff.