Over active bladder syndrome

[Pinkgoose4]

Had a doctor's appointment today , thinking maybe a prolapse because I'm always weeing ..turns out ,over active bladder syndrome..and I have medication to try..also got to do bladder training once the medication arrives
Just wondering if anyone wants to chat ,who has the same thing really

I've 3 months worth of 3 different meds to try ,and then go back if still having problems.
I was surprised she didn't mention what you suggested,tbh

I had to come off solefenicin as it gave me horrendous acid reflux. I was literally waking up in the night with involuntary oesophageal spasms. I am now on darifenicin and it’s much better. All medications I’ve been given result in dry eyes and dry mouth but it’s manageable.

Like you I did have to plan my outings. I used to have to go in to tge office 3 times a week. I was getting up at 06:30 and getting to the office at 07:45 without drinking anything. The problem being I was then having dizzy spells on the way in to work.

Even now if I go to the theatre or a gig I don’t drink much before hand and go to tge loo before I go in. However I think a lot of that is psychological now as the medication has really helped.

So I used to go to the gym ...but the door to the hallway toilet is locked .. instead yo have to walk through the gym ,down two flights of stairs and along a corridor..so I use to go at 6 am , without having a drink ,and without taking a drink with me .. because I was worried I'd not get to the toilet in time if I drank anything..but that was 15 years ago ..
I'd love to go again..but I just don't think even that would work any more for me ..I still think I'd be needing a wee despite my drinking anything that morning ..
That acid reflux does not sound good ..I really hope I don't get that

I also have vagifem and it's helping as well - I have definitely noticed a difference in my dryness etc. For my prolapse I have a pessary fitted and it helps - but I do think surgery is on the cards in the future.
I think a lot of the urgency and worry becomes psychological as I still get really anxious if I know I can't easily access a loo - I'm hoping that changes in time. I'm 58 and have had to advocate for myself quite strongly with my consultant to even talk about possible surgery.

My teen daughter has. She has never been dry. Is now on Solifenicin and Mirabegron. She had a course of PTNS and we are now looking at Botox in the bladder.

From what I have read about surgery for prolapse..it's still mesh .
And I read about sling the mesh campaign,and that put me of getting help.
But doctor didn't seem concerned and definitely hasn't suggested referral anywhere.
So maybe if nothing improves for me ,I need to be pushing to.
Or maybe I've not enough wrong down there for a referral,I don't know

I hope things are improving for her ..must be awful at a young age xx

@Pinkgoose4 the PTNS made a big difference and is much better but we are at maximum medication now and she is still wet every day. So hopefully Botox will be the answer!

I’ve had prolapse repair using this method.

https://www.gloshospitals.nhs.uk/your-visit/patient-information-leaflets/sacrospinous-fixation-and-pelvic-floor-repair/

I had a course of Botox for overactive bladder and it was amazing!
I ended up paying for it privately as the waiting list where I am is 6-9 months. Sadly it only lasted about 6 months and the waiting list is even longer now so I am back in Mirabegron and a good stock of tenas.

I hope it works for her xx

Thankyou ,I've read all that ..did it make a difference to you
No mesh either..that's brilliant
But where do they stitch it to ..like through the vagina,and attached to where ?
How long did you wait for the operation?
Did you have physiotherapy first or something at a women's centre I think my doctor mentioned

I'm on monjroro as well ,I've lost over 10 stone on it .
I'm wondering if it's worth me coming of it for a month or two to see if things improve for me .
I don't know if they are or could be effecting things ..I think it's definitely making me constipated though

I was referred for physio. The gynae physiotherapist said my muscles were actually quite strong and couldn’t really be improved enough to make any difference to the prolapse. I also tried the ring and shelf pessaries, which just fell out.

The way the repair works is be attaching the vault of the vagina to the sacrospinous ligament, deep inside your pelvis, all done through your vagina. I had pain in my right buttock for about two weeks, after surgery but that soon settled.

I’m nearly two years on and everything is still in the right place. The waiting list was three years. I was fortunate to be able to go privately.

Yes he did, and tbf, for years it seemed to be. I think we assumed it was perhaps mind over matter, which is why I’m following along as we are interested in different people’s experiences.

Well the tablets arrived today ,have taken the first one
Will update as I go ,incase anyone is following in the same situation.

Small update
I slept so well last night ,I only got up for a wee twice in the night ..that is an amazing difference to sometimes 6 times a night .
Yesterday I totally didn't think about weeing ,and definitely wasn't weeing every hour .
In fact I need a wee now ,and I weed at 6 am and 9 am ..so definitely better than my usual which is at least every hour ..
It's only day two ,but I can see big differences ..I also thought they would take time to work like antidepressants do ,but it doesn't seem like it ...
I don't want to jinx things ,but I'm feeling hopeful I could get my life back