SEN PARENTS SUPPORT GROUP - Thread 1

[mumofoneAloneandwell]

Hey everyone

this is the original thread that was started for half term:
https://www.mumsnet.com/talk/_chat/5491563-half-term-sen-parents-support-group?page=1

but we’re carrying it on since it’s been helpful

all parents of sen kids are welcome - also those who’s sen kids are now adults!

safe space to vent, share advice, tips and tricks, share good news and bad, and just chit chat and be 🙂

i am a mum of one dd. She’s 6 and is autistic and not yet verbal. It’s just us, no support system so I am thankful for the people on here keeping me company through the journey ❤️

Hope all okay @mumofoneAloneandwell

Sorry I’ve not been around much, we’ve had a fairly rough few months.

Behaviour is absolutely off the scale, and just feels constant at the moment. Trying to just “pick our battles,” but there’s too many to choose from. Sleep isn’t great, been up since 1:15am and he’s still going now.

To top off the “spike” we’re in, we have to move house (not optional sadly) in the next few months and I already know the impact that will have on him, his behaviour and how unsettled he’ll be.

In the trenches at the minute!

Yes, her diet is very restricted, there are very few things she’ll eat. No fruit or veg at all, though she will eat cucumber with cheese. She will occasionally eat omelette, bacon, rice and cheese, pot noodles. She has at various times eaten spaghetti on its own or rice and bacon with cheese.

She will sometimes eat these these foods but then refuses.

The only food she’ll eat consistently is snack food like Pringles, Quavers etc. She eats breakfast egg muffin with cheese every morning.

So yes, her diet is very limited and she’s overweight as a result, with poor health. So it probably is the anaemia that makes her dizzy, though we did previously wonder whether it was part of her epilepsy, as flashing lights cause it and she has photosensitive epilepsy.

Thank you so much for your interest, it’s appreciated l.

Hi there, my now 35 year old son who was diagnosed with Classic Kanners Autism way back in the day was non verbal until he was about 8. School wise he’s never been to one and I just took him through the day teaching him how a day was lived. When he started to speak it became obvious he’d been soaking up information like a sponge and he never ceased to amaze us with what he knew and I’ll never forget driving down the road with him and hearing a voice in the back of the car saying - parachute man falling down from the sky. And yes, there was. Anyway, my son eventually went on to be able to read and write as well as count and do simple arithmetic but if anyone had told me this would happen I’d have cried because it seemed so unlikely. Please don’t think your child isn’t learning from you, you may not see any sign of it today but you will one day when it’s least expected. I still think about the day I realised my son had been soaking up information like a sponge over the years but just wasn’t able to show us.

You’re doing a great job ❤️

Hi there, I’m wondering if your DS is going through a seasonal change due to the change in the seasons. It’s a very real thing and it’s something that affects my son.

My son now has additional Dx’s on top of his original one but his reaction to changes in the seasons has been a constant throughout his life. It is however now worse than it was before due to his bi-polar disorder.

eta - for my son it’s not about the difference in routine that people assume causes it - it’s about the difference in the light, the wind, shorter daylight hours etc even though we live in a country where winter just means it gets dark half an hour earlier than usual. He also reacts when we are coming out of winter into spring.