The inside of my body is shaking.

[PuceisNotGreenWhoKnew]

This is really odd, but over the last few months I’ve noticed what I can only describe as the inside of my body shaking. It’s been happening when I am in bed and relaxing to go to sleep. To begin with I thought it was DH snoring but it happened when he was away. Then I thought it might be the tube, I’m in London and the underground goes nearly underneath my house. But I’ve just experienced the feeling when I’ve been standing up and not at home.

I can’t go to the GP and say my inside bones are shaking, can I? Do I just pretend it’s not happening?

And I was going to go to the GP as I’m menopausal, no period for over a year, but have had period pain and what felt like ovulation. This has been followed by a huge bloated stomach that looks like I’m 7 months pregnant.

Will they think I’ve got health anxiety if I go with both? I don’t think I do, but I’ve had done pretty serious illnesses in my time and I wonder if I do have it now!

Hi @Hollyhobbi I've just read your post. I've not heard if anyone else with parathyroid issues before. My heart monitoring also came back with tackycardia, my calcium & phosphate levels were out too.

do you have any advice? Suggestions? Recommendations?

im going to have to read the thread again tomorrow, I'm now more sure this is to do with my parathyroid than my stroke.

i think maybe my best bet is to push my GP for a referral to an endocrinologist.

unless anyone has a better suggestion.

Make sure your gp checks your calcium and phosphate levels by requesting a bone profile blood test. Vitamin D is often low as well so that should be tested along with parathyroid hormone from the one blood draw. I have had two DVTs caused by primary parathyroidism. Other people in the help group I belong too have had suspected strokes and blood clots in their lungs.

I have fibromyalgia and I vibrate inside, particularly when I’ve over done it. My understanding is that it’s a sign of a overstimulated nervous system. Menopause did make it worse.

@Hollyhobbi

thank you, they have all been tested. I had vit D high dose earlier in the year, it's more in range now. I had a stroke in January.

Sept blood tests:

serum calcium 2.55 (no guide number)
serum adjusted calcium 2.63 (2.2-2.6)

serum inorganic phosphate .82 (.8-1.5)
serum alkaline phosphate .98 (30-130)

parathyroid 10.6 (1.6-7.2)

vit D 76 (50-200)

any thoughts on those?

Is there any advice on how to calm the nervous system down that's worked for you?

It looks like primary hyperparathyroidism to me. I can give you the name of a facebook group I’m in as the first surgery I had didn’t take out enough glands and I need another operation with an expert surgeon who I found through the site?

hollyhobbi

i have only just seen your message, I don't know why I didn't get a notification?

but yes, that would be great, thank you.