Need a handhold - son in hospital

[HaudYerWheeshtYaWeeBellend]

Took him to A&E yesterday as he fell at the gym and we thought he had broken his wrist (thankfully just a sprain) however during their examinations they were worried about his circulation as his hands and lower arms were going blue and were cold to the touch, they advised we needed to make an appointment with his GP for further investigation.

Managed to get a GP appointment for 3pm today as the hospital suspect he could possibly have Raynaud's syndrome/disease

GP took his blood pressure and it was 177/127 , they thought the machine was faulty so got a another one and it was the same.

We had to take him straight to A&E, they’ve been trying to get bloods for the last 6 hrs but his veins keep collapsing and are unable to obtain his bloods, 2 doctors and 3 nurses have all tried with all sorts of needle sizes/cannulas etc… even with a vein scan machine, he’s been poked and prodded more times than we an count,

They’ve done a serious of tests, ECG, blood pressure cuffs on his arms and lower legs every 60 mins.

His only symptoms are some slight dizziness and some blurred vision, because of this they carried out a test where they turned the lights off and shown a torch in his eye… however the drs body language changed, she went and got her senior doctor to look and they redone the test.

We were then told to wait in the room as they needed to speak to a more senior doctor.

We were then put into a room, nurse came in about 45 mins later and advised he was being admitted, we asked why and she said has no one told you anything and we said no.

Doctor has come in and said DS is being transferred to another hospital, either tonight or tomorrow morning, he needs to see an specialist eye doctor , he also needs a urgent CT scan, possibly MRI and a heart scan as his ECG has shown some concerns and did we know he had a heart murmur.

They also need to get his bloods urgently somehow.

I’m not naive, I know what they are suspecting, I just need to be positive and hopefully the scans show nothing.

He would have been 10 they we giving them t children when my daughter was 7. She didn’t get but it was a very difficult choice to make.

the current GCSE year were all 12 when the announcement in Sept 2021 for all 12-15 year olds to have them - it was as Omega? hit. 60% I think got vaccinated as often they needed proof to do things alongside adults

DS who was younger didn’t

How have you gotten in today?

I cannot really remember to be honest my daughter is 12 now and I remember kids from her class going to get it but I opted out. She hasn’t had the flu vaccine since either. I did not have any either i was just too wary.

I dont think we need to turn this into a debate vaccines, that isn't helpful to the OP.

@HaudYerWheeshtYaWeeBellend HaudYerWheeshtYaWeeBellend hoping now it's past the weekend they have been able to get on with tests and you know or are nearer to knowing what is going on and you have a treatment plan.

Also hope school have been in touch and being proactive and sorting out the exam stuff so thats one less thing to worry about.

Thinking of you.

I've just come across this thread @HaudYerWheeshtYaWeeBellend. What a hellish few days for your family. Seems like the gym injury was a blessing in disguise as it's meant that all appropriate tests and investigations can now take place. Sending you a huge hug and handhold. And do please stay in the hospital with him, it's so important that he is kept under observation. Hoping that you get answers soon and that he makes a swift recovery xx

I am not was just answering someone’s question I have no idea about vaccines so I would never speculate on them for this situation. Of course I hope he is ok and getting positive results such a worry.

Apologies , I went home yesterday and just closed myself off from the world.

Nothing has been done today, (except more blood and first urine of the day taken) we are also back at the QE, we need to wait until they can fit him in for his scans/tests.

Ward doctor said they are debating not putting him through a lumbar now due to his eye test being perfect and to just get the CT scan, but the registrar needs to sign off on this - registrar has been dealing with emergencies most of today sadly.

Im hoping he won’t need it, as speaking to a few people who have had a lumbar, it can cause headaches and he certainly doesn’t need to have any more of them.

Because his eye test was excellent (no inter cranial swelling/bleeding) he is now not classed as an emergency case and has been down graded so to speak (This is good news).

Another blood test has come back and he’s deficient in Vit D (I cannot understand this as the kid is never not outside) so he’s on tablets for this.

BP has went down again.

Heart scan on Thursday.

DS is also going to be fitted with a 24/7 BP monitor and will be on home leave, it just means he sleeps at home , he’s still classed as an inpatient in exactly the same way if he was staying in hospital, he just gets to rest at home on night time.

Now I think it’s investigation as to why he has high BP and circulation issues (they don’t think it’s linked to his heart).

Yes Ds had had the Covid jab and a booster (asthma and allergies).

Everything just seems to be going at a snails pace.

School informed about exams , I’ve also left a VM and the receptionist has emailed the teachers also, no one has been in touch, but it doesn’t surprise me sadly, his school isn’t the best with communication.

That sounds positive and it’s great that you can all hopefully get some sleep at home. It must be frustrating to still be waiting for answers. I hope he’s feeling better with the lower BP.

That’s a positive update!
Re the vitamin D it’s probably worth looking at supplementing with it’s co-factors (K2 and magnesium as a minimum) to ensure calcium is laid down in bones rather than arteries.

Interesting regarding the covid vaccine, without getting into debate York Cardiology Dr Sanjay has a good explanation of why magnesium supplements are supportive post vaccination. Google York Cardiology Magnesium.

I would perhaps also be looking into his genetics down the line to see if he is MTHFR as are 40%+ of the population but that might guide future vaccine decisions.

When my son was in hospital, we always joked to double the amount of time that was said for something and it usually turned out to be more accurate.

My son has had to have several lumbar punctures as part of his treatment and as long as he rested on his side for a little while afterwards, he never experienced headaches just in case your son does end up needing one.

Sounds like everything is moving in the right direction.

I am sick and tired of people asking this stupid question when people are ill.

millions of people have had he covid vaccines and only a small minority of people have been unwell after it.

vaccines have been about for many many years, to keep people safe!

OP I’m glad everything is sounding more positive for your son, I just wish for both your sakes they can figure out what caused the raised BP etc.

how were the school when you contacted them today?

I would hope they'll ditch the lumbar or at least do ct first if he has no evidence of raised intercranial pressure. I am so pleased he's not emergency case but absolutely share your pain with how long it takes to get any definitive answers in a hospital. We used to find different random doctors said different things And told different lies about when we could go home! DC was nil by mouth until 2pm 3 days in a row just in case he needed an op that never happened. A senior hdu nurse gave the docs a bollocking and they have up that idea!

Fact checker mthfr and vaccines just wanting to give an alternative viewpoint

Ask for his B12 to be tested too x I had similar symptoms , my D was very low and B12 astonishingly low. My daughter was hospitalised with the same symptoms which also turned out to be B12 deficiency. I'm also taking D, K2 and magnesium and twice weekly lifelong B12 Injections x

I would take every test they’ll offer including a lumbar puncture.

What confuses me about that question is why do they jump to the possible issue being the vaccination as opposed to having had Covid itself, an illness known to cause heart problems?

Does he have any swollen joints at all are they looking at some kind of auto immune rheumatoid arthritis

Glad its sounding more positive.

Please don't dismiss any link between the covid vax and what's happened. May be zero link at all of course but worth bearing in mind whilst trying to get to the bottom.

Hope you hear from school soon re the exams.

@HaudYerWheeshtYaWeeBellend does he have any low grade stomach/digestive issues at all? Constipation, diahorrhea? Stomach aches, nausea?

That’s a positive update considering the urgency 48 hours ago!

Great news they saw nothing in his eyes - did they say what they saw/suspected previously to cause them to worry?

Bodies are weird. They can recover sometimes from
severe signs and symptoms without ever really knowing the cause!

I'm glad you have home leave of a nighttime and are back more local.

This all sounds very positive. So glad you are getting to sleep at home, that rest will help you all.

Re lumbar puncture my 9yr old had one 2 weeks ago, along with mri. His was urgent to rule out some conditions and also because he has tics, absence seizures and had had changes in his balance. Anyway his had to be done under general because he is autistic pda. It was actually quite traumatic, he ended up being restrained and needinh injection of ketamine just to get him safely to theatre. But that was because of his autism, pda and sensory and demand overwhelm.. the procedures then went very smoothly, even before he was properly awake he was sitting up, trying to escape 🙄🤣 but he had no after effects at all from the lumbar puncture, did say his back felt funny. He didn't actually know he had the lumbar puncture.. he knew he was having an mri of his brain.

He has also had one at 6 weeks old as he had meningitis. And been fine.

So although there are risks its relatively straightforward, so if he does end up having it hopefully all will go smoothly.

Hope you dont end up having to chase school too much.

Hope they get necessary tests done over next few days so you get answers and your boy keeps improving.

Hope you both have a great sleep at home tonight

Fingers crossed the investigations can be booked for sooner rather than later xx

Has anyone done a cortisol test? (Needs to be done at 8-9am, irrelevant if done at any other time). If he’s been on steroids for asthma and allergies and these have been stopped (?) it’s possible he’s developed secondary adrenal insufficiency. Have a google of this. It’s too complex to go into too much detail here (I’ll be here all day) but essentially it’s where the steroids suppress the adrenal response and leads to low cortisol - which can cause high blood pressure before a drop in SAI (secondary adrenal insufficiency). With Addisons (which is another form of low cortisol but when the adrenal glands themselves don’t work - I have this) it causes low blood pressure but many medics do not understand that secondary does not present this way so if they’re looking for an adrenal crisis (google this) they won’t necessarily recognise the secondary signs (no change in potassium, no drop in blood pressure).

In some people just 4-6 weeks of steroids for a condition like asthma can be enough to affect the adrenal response.

Ignore anything online about adrenal fatigue - this does not exist. You either have adrenal insufficiency (a real and potentially dangerous condition) or you do not.