Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

Chat

Join the discussion and chat with other Mumsnetters about everyday life, relationships and parenting.

Need a handhold - son in hospital

544 replies

HaudYerWheeshtYaWeeBellend · 31/05/2025 00:20

Took him to A&E yesterday as he fell at the gym and we thought he had broken his wrist (thankfully just a sprain) however during their examinations they were worried about his circulation as his hands and lower arms were going blue and were cold to the touch, they advised we needed to make an appointment with his GP for further investigation.

Managed to get a GP appointment for 3pm today as the hospital suspect he could possibly have Raynaud's syndrome/disease

GP took his blood pressure and it was 177/127 , they thought the machine was faulty so got a another one and it was the same.

We had to take him straight to A&E, they’ve been trying to get bloods for the last 6 hrs but his veins keep collapsing and are unable to obtain his bloods, 2 doctors and 3 nurses have all tried with all sorts of needle sizes/cannulas etc… even with a vein scan machine, he’s been poked and prodded more times than we an count,

They’ve done a serious of tests, ECG, blood pressure cuffs on his arms and lower legs every 60 mins.

His only symptoms are some slight dizziness and some blurred vision, because of this they carried out a test where they turned the lights off and shown a torch in his eye… however the drs body language changed, she went and got her senior doctor to look and they redone the test.

We were then told to wait in the room as they needed to speak to a more senior doctor.

We were then put into a room, nurse came in about 45 mins later and advised he was being admitted, we asked why and she said has no one told you anything and we said no.

Doctor has come in and said DS is being transferred to another hospital, either tonight or tomorrow morning, he needs to see an specialist eye doctor , he also needs a urgent CT scan, possibly MRI and a heart scan as his ECG has shown some concerns and did we know he had a heart murmur.

They also need to get his bloods urgently somehow.

I’m not naive, I know what they are suspecting, I just need to be positive and hopefully the scans show nothing.

OP posts:
PiggyPigalle · 01/06/2025 19:09

eustoitnow · 01/06/2025 17:53

My child - much much younger - was allowed on home leave last year whilst waiting on MRIs and lumber punctures - it was helpful for me as a single parent I also had other young children at home with no support. The hospital was very supportive of home leave - one less to monitor over night I suppose. We had to be back in every morning for rounds and then would stay all day whilst they did tests and monitoring etc. I was surprised it was allowed given her symptoms (lower limb paralysis)

no harm in asking about home leave but very much depends if his observations suggest stable blood pressure etc - if it’s too high/low they definitely won’t allow it

That would make sense. Sleep at home and stay in the hospital all day as a patient.
Scrub what i posted before then.

Kirbert2 · 01/06/2025 19:18

Somuchgoo · 01/06/2025 19:05

Same!

I remember on night 1 being so frustrated at 2hrly neuro OBS (which require waking the patient), why were we even there? I should have gone home and brought her back in the morning etc.

By night 2 she was in a different hospital awaiting life saving enormous surgery (happened the following morning). They had declined my offer of driving her to the specialist hospital and they blue lighted her instead
because it was so risky for her to be out of hospital.

It's likely nothing as serious here, but he's being kept in for good reason, and sometimes it's obvious in hindsight you'll be relieved for that. Best case scenario is that he'll be a bit bored. Equally, him staying put could save his life. Be guided by the doctors.

The best days for us was when he was allergic to one of the medications he needed but they had to give it to him because it was a huge part of his treatment plan so they infused it over the day incredibly slowly, gave him pre meds etc and to be cautious did his obs every 15 minutes up until 2 hours after the infusion had finished!

Those days were never fun but I'm so grateful with how cautious they were.

I hope she's doing ok now. We've unfortunately experienced blue lights to a different hospital for life saving surgery too.

TheOrphanTree · 01/06/2025 20:09

You're absolutely right saying not to worry about exams, this is about getting him better. Resits exist and nothing is impossible with time and support.

Interested in this thread?

Then you might like threads about these subjects:

Muchtoomuchtodo · 01/06/2025 20:33

Hope you start to get some answers tomorrow @HaudYerWheeshtYaWeeBellend

I would email the school exam officer tonight giving brief details of what’s going on and explaining that your DS cannot attend for his exams and that you’ll submit the letter of evidence of his admission as soon as you have it. That’ll save any rushing (for you) and panic (at school) tomorrow.

BrownPanda · 01/06/2025 21:43

Newcastle is one of two hospitals in the uk which deals with mitochondrial disease, DNA experts, not saying this is relavant to your son though.

I hope everthing goes well and your son's health improves.

slapmyarseandcallmemary · 01/06/2025 21:56

Thinking of you

Lunde · 01/06/2025 22:39

Hope you manage to get a little sleep tonight 💙

Gymnopediegivesmethewillies · 02/06/2025 00:00

Best of luck for the tests OP, I’ll be thinking of you and your son x

Letsgoforaskip · 02/06/2025 05:44

Thinking about you all and hope it goes well today.

CaribbeanChaos · 02/06/2025 07:03

Tiswa · 01/06/2025 09:26

No there aren’t if you miss an exam you miss and exam there are no contingencies and there are no resits other than maths and English in November

the school will deal with it if they have the paperwork including getting special consideration for the exams done. All subjects have done a paper now so he should meet the 15% requirement to get a grade
hipefully he hasn’t done as badly as he thought with maths

There definitely are contingency days at the end of the final week. All students are required to be in the country and available. These are for incidences such as a national paper leak etc.

itsgettingweird · 02/06/2025 07:11

Good luck with all the tests today. I hope you get some answers and a plan to get him better.

Tiswa · 02/06/2025 07:20

CaribbeanChaos · 02/06/2025 07:03

There definitely are contingency days at the end of the final week. All students are required to be in the country and available. These are for incidences such as a national paper leak etc.

There are two contingency days but for mass events - local or national level not for this. On a national level I can’t remember it being used it may have on a local one

@HaudYerWheeshtYaWeeBellend hopefully the school will reassure you soon about the exams and start the paperwork at their end for how many he needs to be miss and the special consideration for those he has done

lunar1 · 02/06/2025 08:52

How’s he doing today?

Everintroverte · 02/06/2025 08:53

Wishing him all the best. Hope you get some tests done quickly today and some answers through soon.

pinkingshears · 02/06/2025 09:55

OP, you will now have the Monday to Friday team on.
I hope they organise the tests quickly now and that you have clear results.
Thinking of you x

Marmunia10667 · 02/06/2025 10:07

OP, did you son happen to get the Covid vaccine??

spinningisthebest · 02/06/2025 10:16

Just wanted to send you good wishes for today as things ramp up again.

Jowak1 · 02/06/2025 11:22

Thinking of you today and hope you get some answers x

LBFseBrom · 02/06/2025 12:29

Jowak1 · 02/06/2025 11:22

Thinking of you today and hope you get some answers x

Same from me. x

Jammy0916 · 02/06/2025 13:01

Best wishes.

bigbreakfastclub · 02/06/2025 13:08

Every parents nightmare. Really hoping things turn out ok.
lots of love and strength sent to you ❤️

lisaolay · 02/06/2025 13:18

Marmunia10667 · 02/06/2025 10:07

OP, did you son happen to get the Covid vaccine??

I wanted to ask this but I was too scared to.

TaggieO · 02/06/2025 13:38

BrownPanda · 01/06/2025 21:43

Newcastle is one of two hospitals in the uk which deals with mitochondrial disease, DNA experts, not saying this is relavant to your son though.

I hope everthing goes well and your son's health improves.

Let’s not speculate things like this for no reason. It sounds like it’s just the OP’s nearest major centre.

LushLemonTart · 02/06/2025 14:51

Marmunia10667 · 02/06/2025 10:07

OP, did you son happen to get the Covid vaccine??

Probably not at that age?

LapinR0se · 02/06/2025 15:45

@HaudYerWheeshtYaWeeBellend how is he today?

Swipe left for the next trending thread