Need a handhold - son in hospital

[HaudYerWheeshtYaWeeBellend]

Took him to A&E yesterday as he fell at the gym and we thought he had broken his wrist (thankfully just a sprain) however during their examinations they were worried about his circulation as his hands and lower arms were going blue and were cold to the touch, they advised we needed to make an appointment with his GP for further investigation.

Managed to get a GP appointment for 3pm today as the hospital suspect he could possibly have Raynaud's syndrome/disease

GP took his blood pressure and it was 177/127 , they thought the machine was faulty so got a another one and it was the same.

We had to take him straight to A&E, they’ve been trying to get bloods for the last 6 hrs but his veins keep collapsing and are unable to obtain his bloods, 2 doctors and 3 nurses have all tried with all sorts of needle sizes/cannulas etc… even with a vein scan machine, he’s been poked and prodded more times than we an count,

They’ve done a serious of tests, ECG, blood pressure cuffs on his arms and lower legs every 60 mins.

His only symptoms are some slight dizziness and some blurred vision, because of this they carried out a test where they turned the lights off and shown a torch in his eye… however the drs body language changed, she went and got her senior doctor to look and they redone the test.

We were then told to wait in the room as they needed to speak to a more senior doctor.

We were then put into a room, nurse came in about 45 mins later and advised he was being admitted, we asked why and she said has no one told you anything and we said no.

Doctor has come in and said DS is being transferred to another hospital, either tonight or tomorrow morning, he needs to see an specialist eye doctor , he also needs a urgent CT scan, possibly MRI and a heart scan as his ECG has shown some concerns and did we know he had a heart murmur.

They also need to get his bloods urgently somehow.

I’m not naive, I know what they are suspecting, I just need to be positive and hopefully the scans show nothing.

Op if your son gets a poor grade he can always resit exams later in the year.

Try to look on this as a good thing, whatever is wrong with him is being thoroughly investigated. Ask your husband to bring you in a flask as they are really useful for keeping drinks warm until you need them. Your son might also appreciate some snacks as he's tall and well built and hospital food is not always the most appealing.

So scary for you. Hope you get some answers soon 😞

@Extraavailable - the op has more than one son. The op is not obliged to give a full medical history on here. I am sure op told the doctors all his prescribed medicines. Steroids for asthma are very different from steroids used for bodybuilding. It's really bloody bad form to thread stalk, particularly on a thread like this.

I also would have assumed she meant illegal anabolic steroids rather than prescription ones as I would have assumed prescription ones were not what they were asking!

Big hand hold for you, I hope they can work out what the issue is very soon and that whatever it is, is easily treated.

My son had a 10 month hospital stay. He finally came home in January and during last summer when he was in, a girl across from him was doing her GCSE's with hospital school. If he is well enough on Monday, it might be something to consider?

School will help in informing exam board.
being in hospital he cannot take unless well enough to arrange via hospital school.
Main thing is to identify the cause of these issues.
Exams can be retaken tho if he did one math paper already they might be able to use that to give a grade.
Wishing you the best in finding a treatable cause.

Think about you all, such a shock for everyone but hopefully his injury means he’s in the right place at the right time.

Assuming the op does have steroids in her home (I do too for asthma, eczema etc) she also keeps an eye on quantities and would know if any where disappearing. Topical and inhaled steroids for asthma and eczema are also very different. I take oral steroids as well at high doses for my asthma but I keep them away from my children and know how many I have. I would assume op does too

Am sure she has given hospital full medical history and details of any regular medication as that will all have been asked.

OP I took my son to A&E on a 'gut feeling' (some symptoms but not clear why) last July. They were dismissive.
It turned out he was in Heart Failure. I spent 5 days and 5 nights at his bedisde (19, but Autistic). It will never leave me (or him, I fear)
I know you are in England so will have an NHS App ? (I didn't as we are in Scotland) but I'd advise you to DOCUMENT EVERTHING. Ask Questions.
Check that he is being checked for basic things like drinking and urinating
(my son wasn't even on a High Needs ward). Ask Questions.
I am keeping you both in my thoughts and prayers and I hope they can find the issue and treat him effectively quickly.

@pinkingshearsI remember your thread, how is your lad now?

I haven’t even got the head space to even deal.

I’m sure I said recreational drugs, not prescription drugs, I don’t believe I’ve denied saying ds takes or has taken prescription steroids.

Everyone is aware of his medical background, none of his existing conditions are the cause of why he’s currently in hospital, for info ds has acute asthma, eczema and anaphylactic allergies, I don’t even know why I’m explaining , look me up, I’ve had the same username for years , been quite open about ds background.

How worrying and what bad timing with exams. But yes main thing is he gets better and I hope you get answers soon. I would ring school today and leave a message just incase the exams officer is working and picks the message up. Obviously keep discharge papers/summaries as evidence if needed, ask for a drs note on discharge. I don’t know what happens if a grade is estimated???

Ignore the drama seekers OP, they love to pick apart every word and try and point score. Hope you get some answers very soon and your boy is OK x

Ignore the thick twerps who can’t even begin to comprehend how incredibly worried and stressed you are, prefer to drone on and on about irrelevant stuff.
I truly hope you get some kind of diagnosis quickly, being in limbo is torture.

There’s always someone who likes to try and stir shite
hope your son gets some answers soon OP

Coming back to agree with this.

I took my son to A&E last March because I was sure he was dehydrated due to a tummy bug. Things escalated and as I said in my previous comment, he ended up staying in hospital for 10 months, some of which was completely preventable and was missed by the first hospital as they insisted he had gastroenteritis and surgeons ignored nurses concerns that it was something else (spoiler alert: nurses were correct, surgeons were incorrect).

The serious incident report was recently completed after almost 15 months of investigating and it also turns out that his fluids weren't documented correctly which meant that how much he was vomiting was missed by the surgeons claiming that he didn't need surgery.

I wish I had asked more questions and I wish I had pushed more.

What an amazing boy competing at high level Rugby in spite of asthma etc. I am inder consultant care for my asthma and run 20 plus miles a week etc, but not competitive 🤣 exercise definitely helps and doing it in spite of eczema, asthma which can actually be quite debilitating and hard to live with, especially for a teen us impressive, so well done him.

Hopefully they get to the bottom of whatever is going on ASAP and you get a treatment plan and he is back out enjoying his sports.

Re exams if it comes down to it he can re do maths and English whilst doing apprenticeship, but they have contingency for this. I would ping school an email mark it urgent exams officer and just expmsin the basics. They will sort it but its the least of your worries.

Hope you have some news soon .

Anabolic steroids ( bodybuilding) are absolutely not the same thing as corticosteroids for eczema.

Stop peddling nonsense.

Because that's not what the nurse meant - when asking about OPs strapping, rugby playing son.
jeez.

I’m pretty sure that the medical team will have taken a detailed medical history and all of this will have been discussed.

it seemed obvious from the OPs post on this that the discussion with the nurse was about anabolic steroid /illicit drug use hence the nurses comments about his muscle bulk. And the son’s comments about not finding anything in a blood test…..they won’t be testing his blood for evidence of corticosteroids! So of course they’d have denied using those type of steroids in that conversation.

Surely that’s obvious? One of the first things they would’ve asked OP is about any medications he’s on. They will already know about this and were asking in the context of steroids they might not know about so OP wouldn’t need to bring up again that he’s on steroids for eczema.

I'm sorry people are derailing your thread with foolish comments @HaudYerWheeshtYaWeeBellend

You've got enough to contend with. Just ignore them.