Are the PIP changes going to effect your eligibility?

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The main change proposed is that you will have to score FOUR points in at least one daily living category to be eligible for the benefit.

A huge number of people are going to lose their benefit because of this change.

I looked at my last award letter and I didn't have a 4 in any category, it was all 2's and 3's. Having said that, my condition is deteriorating, so by the time I get my next review, I might find that I can no longer do some of the things that I can currently do, as my condition is progressive.

Clearly you have enough evidence to support you receiving PIP, which is fine....but I know people who have received it without any formal diagnosis but know the right person to be involved with their application. Even with a diagnosis, I'm struggling to get PIP - despite swathes of evidence and information being provided....
Didn't mean to cause upset.....

Agree with this.

I get 3 x 4 points and like your husband a 10 year award with a light touch review. It was only awarded to me last year after 4 years of fighting / appealing / tribunal / eventually doing a change of circumstances.

Now we have more never ending hoops to jump through and uncertainty.

I have a rare autoimmune disease that affects heart, lungs, muscles and joints and requires daily high dose steroids and immune suppressants - it’s progressive and most patients either die of the interstitial lung disease or complications from being so immune compromised from the medication.

I still had to jump through hoops to claim PIP!

More good points thank you.

No, I can't do that either but forget such things are a problem as a relative or neighbour normally opens them or with other difficult lids I use a knife - though that rarely goes according to plan.

Fairly organised so on a weekly visit I will get a battery changed or something picked up and moved - so much so that family must dread visiting ...

I think I will start a PIP list as I have probably got too good at adapting to living this way.

Currently no as I have 4 points on one category but I think we are all being naive thinking maintaining 4 points will be easy - I expect the category and criteria will change too

my daughter was one of those undiagnosed people for 13 years!

she had no evidence. Young healthy looking girl. Doctors look at that and just called her mentally ill, anxious, acted and looked at her like she was crazy and attention seeking, insane etc

nothing wrong with her they insisted

even when she ended up in a wheelchair/bedridden. Imagine suffering so much and doctors cannot find anything so look at her likes she crazy they had no idea what was wrong with her for years so no evidence. it then took us 4 years once we found a doctor who believed us privately, to wait on nhs and get a bunch of tests done. Turned out to be a rare neurological illness. I later met many people just like my daughter, for years they had to fight to be diagnosed during which they suffered. I read even something as simple as endometriosis can take like 8 years to be diagnosed on average. There are many even non rare illness that can take up to a decade to be diagnosed.

now my husbands mother has money and we never claimed anything, financially supported her for 10 years, but what the hell are people like my daughter without family and no former diagnosis like ours supposed to do??

you don’t truly know these people’s situation enough. How well do you know their medical information or history?? If it’s very hard for people that are diagnosed, said so yourself, so being undiagnosed is even harder. That person that helped them could have been a doctor who knows better. Idk. PiP is for how the condition affects you, not diagnosis. If they were awarded then I’m sure there was a need.

you at least have an illness that was diagnosed. It’s terrible for you, now imagine if you were struggling to get diagnosis too. God forbid being in the horrible situation of suffering and doctors looking at you like my crazy for a decade like my daughter was.

Yes exactly. They will be looking at changing the points and what four points is given for too I reckon because sadly I don't think the cuts they have announced will make anywhere near the savings they think they will and the number of people actually claiming will just continue to rise and rise.
When they make the LCWRA/ health element of UC dependent on getting PIP we will just see huge numbers more applying for PIP which even if many don't get an award will cost loads to assess, and for people to go to tribunal.

So does this mean that if on your last assessment you didn't achieve 4 points on at least one of the daily living categories,you are imminently going to lose your PIP? Or does it mean when you are next assessed? I have 2 years to go until my next assessment,and my conditions have got worse since I was last assessed, and I'm worried that I'm suddenly going to lose my award.

It will be at next assessment from Nov 2026 I think.

Former foster son has 29 points in daily living category and was given a 10 year award at 16. He's 18 now on UC but will now lose his LCWRA. He goes to college already, but will not be able to work. He'll just have to wait to claim again at 22. How I hate KS for doing this to him.

It will take a few years for it to be put in place, if ot gets approved at all. So hopefully the gap wont be too much for him.

I think the changes are proposed for November 26

As it stands yes but at reassessment who knows you know what liars they are

with the new changes coming to pip if you score a 10 in mobility and only 2s which one have scored 8 in daily living and your working will your pip stop

You'll keep your mobility. It's the care part you'll lose

Hi sorry not explained very well chemo drugs 🙈
So im working ive got 8 points in daily living but my most is only 2 points that add up to 8 points
In the mobility side I have scored a 10 in one of the 2 components

Evan thou im working i thought it was to get people back into work which I'm doing

Will i get an assessment to see if things have changed

It won't matter that you are working. Unless you score four points in one descriptor for daily living you will no longer qualify for daily living PIP. Your mobility component will be unaffected.

If things have changed significantly ( either way)you should always report it. Otherwise you should just have your normal re-assessment which would depend how long you were awarded for.

My son will hopefully still qualify as he got 4 points in 3 categories. Despite the fact that he’s got autism and learning disabilities, and they haven’t changed since he was born, he has still only ever been awarded for 3 years. It’s very annoying - it’s not like he will suddenly be cured of learning disabilities. Since he moved from DLA to PIP nothing has changed - he is still very vulnerable and can’t go out on his own or be left at home alone. But yeah, a 3 year award is great, you never know when he might miraculously get better. 🙄 So next year I need to do all those bloody forms again.
Not to mention the year long fight to get him the UC and LCWRA he was entitled to.
It’s all a continuous fight. But hey, here we are living the high life on our thousands of pounds in benefits.

Yes, I agree.

I haven't yet had the answer my first PIP claim so I have no idea what I have scored in anything yet. But I had strokes in January and didn't really understand the system when the form was filled in. My friend filled the foreman for me because I'm unable to write but at the time. I was feeling very positive and I was having a Stroke Team come out for OT PHYSIO et cetera and they were all telling me how well I was doing. Plus doing little bits and pieces for me that I didn't really realise like you say opening bottles moving things helping me put the duvet cover on. (well putting it on for me!!) my neighbour is still being very good helping me with bits and pieces so I'm adapting and coping, but by God everything takes a very long time.

I don't even know if I'm going to qualify for PIP let alone have anything that scores a 4.

If I have to appeal their decision, I'm going to have to stop being so 'can do' about everything, while still being honest about my ability.

For things like cooking I said I could do things, like chopped vegetables and lift pans, but I can only do them some days, and I can't really stand in the kitchen long enough to cook anything that's not pre-prepared.

And things like yes, I can get dressed independently, but only if it's suitable to wear leggings and a T-shirt. I can't get myself dressed in anything that requires buttons or zips. And the adaptation tools you can buy I can't really use at the moment because I don't have enough dexterity in my hands and because of the nerve pain it really hurt hurts to hold them. But from the way we filled the form in, I think I will score 0 in the dressing section.

I've just had a message to say this morning that they still haven't made a decision on my claim, but will write to me when they have.

So for now, it's 'wait and see'

🙇🏻‍♀️

What sort of 'evidence' there though to show you can't do things or you can't do them repeatedly? If my initial claim fails, I don't know how to evidence how affected I am??

My award is till may 27 will it run till then or nov 25 like they are saying