If you have a disability and work/want to work

[Glassesofmilk]

What support and adjustments do you have/would you need?

Im reading so much about cuts to welfare, plans to make PIP harder to claim but don’t see much about what support would be needed because employers are going to need to make a lot of adjustments and colleagues of disabled people are going to need to be understanding (I see a lot of threads about how someone has more breaks etc or has time off and everyone resents them as they get paid the same for less hours/work?)

Will the government be consulting with employers and making changes to offer more protection and support to those who are pushed back to work and may struggle? Maybe things like more sickness / holiday allowance for those with disabilities or a different type of leave they can access if experience a flare up of a condition? Appointments for medical issues due to disability or MH covered in the same way antenatal appts are?

I work and get pip i work along side small group of people i can get on with.
I do the graveyard shifts because of my problems and it works well.
Also have a support worker that calls me every week and sees me every 2 weeks.

That's disgraceful you had to go through that x

To add I don't get PIP and work FT 40hrs a week. I really could do with dropping to 32hrs but can't afford to

And yes, PIP cutbacks worry me, even though it's not a work-related benefit. PIP is what keeps me able to work at the moment.

I work full time in the NHS as a medical professional. I claim PIP and mobility allowance.
I need a cleaner and someone to keep the garden tidy as I can't do those things. I'm also going to need an electric wheelchair and a mobility scooter so the money helps with that.
I can drive luckily as my job involves working all over the county. I could be anywhere. I use a wheely chair at work as a wheelchair is too unwieldy and I can scoot across the floor on that.
I work two days from home doing training and management stuff.
The worst thing is the exhaustion and the fact I live alone. My husband ran off as soon as I got sick, he said he didn't want to look after a cripple.
Without PIP I wouldn't be able to get the mobility aids I need or the help at home and I get private physio when I need it as nhs physio doesn't help me. I need to have it outside of working hours.
I have 4 years before retirement then life will be a lot easier.
The blue badge is great too. That really helps.

I have Schizoaffective disorder bipolar type.
I struggle to work part time and I get PIP.

So the reason I can't work full time??
Despite the fact I take my meds my illness makes me paranoid and have hallucinations like hearing voices about others which makes having colleagues difficult at times, a pity because I do like my colleagues but can never relax around them.
The meds and the depression part of the illness also both cause extreme fatigue.

I prefer to be a bit more manic or just stable than depressed.

I often feel quite flat too and struggle to bother with self care such as regular showers & meals, which means I don't go out.

I have problems with my finances which a trusted family member helps me with.

Only my line manager knows the truth and extent of my illness as I'm very good at masking and she was quite shocked when I told her the truth.
Even with reasonable adjustments I'm on a first stage verbal warning for sickness; since that I've been off sick 3 more occasions (twice due to a bereavement that I didn't expect that is affecting me badly and I'm hallucinating again. I was stupid enough to try to struggle into work after it rather than taking two weeks off) so I'm worried now.

I live alone and pay bills & mortgage. My wages are £1150 a month & PIP is £700.
I bought my home before I got ill, when I had a well paying good career. I'm determined not to give up my home. Unfortunately it's too small for a full time lodger and I'm too unwell at present to take on a weekday lodger.

Unfortunately CoL means many people who could benefit from working part-time, can't afford to. I have a distant relative who manages a fluctuating condition by working part-time, with his hours spread out through the week. It works for him as as long as he meets each weekly deadline, it's up to him how the time is worked. But he had to make some difficult decisions to be able to do that - moved to a cheaper part of the country, has to limit hobbies and social life to manage energy levels and his income.

There is so much variety in fluctuating conditions. Someone who might need to switch hours around twice a year and has a bit more time off sick than the average, is reasonably straightforward to manage. Someone whose fluctuations are several times a month, much less so as that effectively means employing someone else to guarantee the job gets done around whether the first person is there or not.

How many jobs are there where it really doesn't matter where you are or what hours you work as long as it gets done? I'm sure there are some jobs like that but not the many that would be needed.