Ds, 19, Myocarditis, 3.2k Tryponin, ' MRI & send home'

[medianewbie]

Follow onto previous thread: 'Ds, 19, what are these symptoms' (don't know how to link, would be happy if anyone could do it for me?)

Ds in hospital since Sunday 1am. Presented at A&E with severe chest pain, vomiting, sore neck & shoulders. 8m after a bad dose of covid which had left him exhausted & with occasional 'stitch' feeling in chest during rest.
Bloods showed a Tryponin level of 2.5k, which increased to 3.7k on Mon, 4.2k Tues, 5.5k Weds. Thurs down to 3.2k.
Echo scan showed moderate LVSD. Given bisopralol. Re-scanned yesterday & told now normal. LVSD dx retracted. Still has dx of Myocarditis. No cause?

MRI scheduled for this afternoon. Results 'take 2 weeks'.
Suggest go home meantime.
He's currently on high dependency bed but they wants to take telemetry off & walk down to cafe. I asked what sort of activity level next 2 weeks - 'normal' - 'go on holiday if you like'. I mentioned we have a holiday to Malta booked next Weds & Consultant said: 'up to you'.

REALLY ??

Gosh that's a massive difference!! Brilliant. Fingers crossed he is on his way to getting better. Hugs OP. 💐

Brilliant! Likely post viral myocarditis. Fingers crossed for a speedy recovery x

Oh, that's excellent news!!

I had a massive response to my 1 and only Pfizer vaccine.
After recovering from pericarditis I had ongoing chest pains made worse after exercising.
My cardiologist ordered specific micro-clotting tests (not the same as D-Dimer tests in A&E), and my strong immune response triggered AntiPhosphoLipid Syndrome, which is a micro clotting disorder.
I take a low dose daily aspirin (75mg) to thin my blood & all chest pains resolved after 4 weeks or so, but have to take the aspirin for life.
May be worth asking your GP to test him for antiphospholipid levels.
I hope he makes a full recovery.

My decision regarding the holiday would be based on ds, given that you haven’t been advised not to go from a medical perspective. If he is feeling much better go, obviously ensuring appropriate insurance in place. If he doesn’t feel up to it, cancel.

Do you have private medical. I got myocarditis after sepsis. All the tests were going to take a long time so I went private to get diagnosed and then back into the nhs system. I'm not sure you'll get travel insurance if you are awaiting results...and I wouldn't risk it on a heart issue.

Oh wow, they’re excellent results now OP!!

Nice it's come down. I'm sure at home, without the stress of hospital environment and blood tests/ scans, it will come down to undetectable in the next few days. It might have all seemed scary as it's your son, but really not an uncommon situation.

Happy it’s gone down @medianewbie xxx

So pleased it's come down so dramatically.

so, they are discharging us.
MRI scan results 'in due course'.
He's keen to go of course, & I am sure he will rest better at home.
It's all been quite 'fast' to process though!

Re holiday - its a no go as Consultant just gave us copy of letter to GP which says they recommend he cancels his flight to Malta in July due to the airtravel & the heat. Describes his Dx as 'probable acute Myocarditus with LVSD'.
I won't get insurance with that atm, low Triponin or not.
Plus, we'll just toddle around for a couple of weeks, make sure the MRI doesn't reveal any surprises & then book something more adventurous.

I'd like to say a MASSIVE THANK YOU to everyone who commented on this & my previous thread. I might have survived it without MN but it would have been even tougher & I would therefore have been in a less good state to support Ds.
So, you have not only helped me enormously, you've helped my Ds hugely.
THANK YOU THANK YOU THANK YOU all.

Please don’t let him exercise for 6 weeks! And if he has any palpitations he should get seen straight away x

So glad to hear the good news. Speedy recovery and exciting travels ahead for you!

Sorry to hijack the thread but I was recently admitted for tests and monitorinf for 3 days at A and E because my troponin was very slightly raised after some mild chest discomfort and clamminess lasting a few minutes.

My discharge letter says HS Trop I 32

No one explained to me how raised that is, but it seems absolutely tiny in comparison to those numbers so I am curious why they suspected a small heart attack? Eventually said they "didn't think so" based on EKG and ECG results. Can anyone shed any light??

Mine was 47 and they suspected heart attack. It should be 0 so any raise shows potential heart damage

That's helpful. Thank you.

May I ask was yours eventually diagnosed as a heart attack? As mine wasn't but I'm left feeling unsure as I didn't get any diagnosis other than palpitations (which I never had so I have no idea why they wrote that!) I didn't have a chest CT or angiogram....

Thinking of you and ds a lot @medianewbie

Fantastic news, @medianewbie . Hope you can relax for a couple of weeks and that DS recovers completely and you have a nice holiday somewhere later in the summer!

I know you probably just want to forget the last few days but if you have the energy at some point, I would write to PALs as pp suggested because your/your DS's care has been very patronising and it would be good if it was flagged.

So pleased the troponin level has massively reduced, that must be reassuring. Also, I'm pleased the consultant was more definitive in his recommendation to cancel your holiday rather than leave it up to you.

There is no PALs in Scotland. I'm not sure there is an equivalent. My Trust has a form for queries/concerns/compliments. It's a shame we don't as I remember PALs can be good from my time working in NHS England.

Glad his levels have come down - Great news !!

I'm in Scotland and thought there was a PALS but think this is now the Scot version: PASS scotland

I used to deal with TI claims.

I'd decline everything (and not be happy about it at all) if anything happened between now and returning.

Except for cancellation if the GP signed the certificate to say not fit to fly, I'd cover that instantly.

I'm so glad hear he's doing better, OP! What a relief for you x

Ah I didn't realise! Never heard of PASS. I had a look at my Trust's website, there is info about PASS at the bottom of the feedback and complaints page. Thank you for making me aware.

An ECG would show if there was any heart muscle damage which you would have if you’d suffered a heart attack.

Sounds as if they were initially erring on the side of caution but on investigation was proven not to be the case. You don’t need a CT or angiogram to rule out a heart attack, an ECG will suffice.