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Please help. Just found this on my dad's back.

948 replies

sprigatito · 20/05/2024 18:04

My dad's partner died of cancer a few days ago, he and I were with her when she died, and I've brought him home with me until the funeral (and probably permanently). He's got Alzheimer's and his partner was his carer. He's been looking pained and twisting his shoulder, he said it's just a spot, but I made him show me his back and found this. It looks just like the squamous cell carcinoma he's had removed before, only it's enormous. He's lost weight and is pale and more vague and breathless than usual, but I thought it was just grief Sad

This is really fucking bad, isn't it? He survived stage 4 lymphoma in 2017 and has a heart condition. I have a doctor calling me back from 111, but should I just take him to A&E?

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Please help. Just found this on my dad's back.
Sensitive content
Please help. Just found this on my dad's back.
OP posts:
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10
monicagellerbing · 21/05/2024 20:58

@Freezinghotlikeaweevil read the updates

Nimbus1999 · 21/05/2024 21:02

sprigatito · 21/05/2024 18:14

Thank you all, I will calm down and wait for the appointment. I'll give it a few days and then phone the dermatology department and ask to be slotted in if there's a cancellation. I'll also stock up on pain killers, the poor bugger is trying to hide it but he's writhing and wincing when he thinks nobody is looking.

Definitely do this! I had a breast referral appointment and phoned every day and they managed to see me after a few days in the end. Very short notice

CorpusInterruptus · 21/05/2024 21:16

FreshStar · 21/05/2024 18:30

To be completely frank, this is something you need to discuss with the NHS rather than the messaging boards here. If he ends up getting very unwell, you’ll regret not going to A&E based on posters here. if he ends up being fine, you’ll regret going to A&E based on posts here. People on here can offer you a place to vent and a listening ear, but I don’t really think it’s the appropriate place to triage A&E visits

She’s also dealing with her dad having dementia. There have been a lot of compassionate, understanding and practical replies on both the skin cancer and dementia concerns. I don’t mean to speak for the OP but this can be a very lonely situation and of course people should be able to talk about it.

People aren’t stupid, they know that the medical advice on here is to be viewed cautiously. Having said that, I’ve actually seen quite a few cases where posters are being dangerously let down by the NHS and have received lifesaving guidance here.

it can just be bloody hard to discuss anything with the NHS sometimes.

stichguru · 21/05/2024 21:18

sprigatito · 20/05/2024 21:27

Weird question, but if you were going to measure it, would you only measure the raised lump in the middle, or the big angry areola around it as well?

I'd give them two measurements - the bit around it isn't part of the original lump but should be mentioned. Might be an indicator of infection.

FlamingoFloss · 21/05/2024 21:19

Sending you best wishes and a hand hold xx

beenwhereyouare · 21/05/2024 21:25

I don't know very much about the NHS, but I'm sure some of you know the answer to this:

What would happen if you took him to A&E?

Dibbydoos · 21/05/2024 21:26

A&E won't help. He needs to see a gp tomorrow and get referral. Pls keep on at them for a date because waiting weeks is def killing people with cancer.

I have to admit I've no idea if it's cancer or not - it doesn't have a rolled edge or anything, but if it is best get it off ASAP.

Good luck xxx

toomanytonotice · 21/05/2024 21:31

beenwhereyouare · 21/05/2024 21:25

I don't know very much about the NHS, but I'm sure some of you know the answer to this:

What would happen if you took him to A&E?

He’d sit for 10 hours waiting as it’s neither an accident nor an emergency. He’ll eventually get seen and either told he needs to see his gp for a referral, or given a referral.

whichever way he’ll waste all night sat on a chair, only to get the same referral he’s already got.

merryandbrightdelight · 21/05/2024 21:35

Hi op, I just wanted to say I'm sorry you're going through this Flowers I would ring 111 for advice, explain about your dads dementia and that him going to his own surgery isn't really an option for how far away he is, and that he's likely to remain with you permanently. Hope you get sorted

Nadal1966 · 21/05/2024 21:48

This reply has been withdrawn

This message has been withdrawn at the poster's request

justasking111 · 21/05/2024 21:53

This reply has been deleted

This message has been withdrawn at the poster's request

@Nadal1966 I think you're on the wrong thread.

LardoBurrows · 21/05/2024 22:07

@Nadal1966 You need to start your own thread.

LardoBurrows · 21/05/2024 22:07

Oh nuts, cross posted.

TheShellBeach · 21/05/2024 22:18

Dibbydoos · 21/05/2024 21:26

A&E won't help. He needs to see a gp tomorrow and get referral. Pls keep on at them for a date because waiting weeks is def killing people with cancer.

I have to admit I've no idea if it's cancer or not - it doesn't have a rolled edge or anything, but if it is best get it off ASAP.

Good luck xxx

He's been seen and referred today.

Laurabeee · 21/05/2024 23:45

This is my area but obviously this is the internet so take advice from the clinicians you meet in person above anything here. The best pathway for is the two week wait referral which is the fastest way to see dermatology. He should have a consultation and I am pretty sure they will want to biopsy or remove this quickly. Worst case scenario is a squamous cell carcinoma, but remember that the majority of these are completely treated with surgery. You have done all you can to help so hopefully you can have a bit of a rest now.
Hoping it all gets sorted soon.

Laurabeee · 21/05/2024 23:48

I also agree with a previous poster that bloods won’t add much here but you could discuss that with the doctor that you see at clinic if you are worried.

claphamnative · 21/05/2024 23:50

Don’t know where you are in the country but I was ‘pleasantly’ (feels odd saying that in this context) surprised by how quickly my grandmother was called in to the dermatology clinic on a two week pathway referral for suspected skin cancer - saw the GP on the Friday evening, was at the clinic the next Wednesday afternoon so not even 3 working days later. Fingers crossed it will be similar for you. Have you got any correspondence coming direct to you?

ittakes2 · 22/05/2024 00:49

sprigatito · 21/05/2024 18:14

Thank you all, I will calm down and wait for the appointment. I'll give it a few days and then phone the dermatology department and ask to be slotted in if there's a cancellation. I'll also stock up on pain killers, the poor bugger is trying to hide it but he's writhing and wincing when he thinks nobody is looking.

I personally would just call them today and not wait. Just explain about his dementia and he seems to be in pain and say you can bring him in quickly if there are any last min cancellations.
I don’t have medical experience but I think the fact it looks fairly symmetrical is a good thing - it’s asymmetrical growths which are always of concern.
it looks infected in the photo - I am guessing the nurse doesn’t think it is or she would have given him antibiotics.

Itwasafterallallaboutme · 22/05/2024 01:24

Hi @sprigatito, I am so sorry that you are going through such a nightmare time. You are obviously a very caring and loving person. As you have already seen a nurse I didn't want to say anything, but I am being niggled - if there is such a word - by an impression the photos of your dear Dad's back gave me, so please bear with me for a minute or two; the immediate impression I got was that whatever it is, it looks very infected and sore. I am worried that if it is infected it could turn into Septicemia very quickly, which would of course be an emergency right now, no matter whatever else is going on.

I had a slow growing lump on my back that a doctor took a quick look at (it was very large, itchy, and it felt like it was trying to burst out of my skin, so it was very annoying, but not exactly painful), the GP said it was a cyst and as it was only a "cosmetic" problem, the surgery would not do anything about it. It was just a cyst, which is of course very good, but I wasn't at all worried about what it looked like, the only person who normally sees that part of my back is my Dr. It was both uncomfortable and very annoying, so I was not happy that she wouldn't arrange for it to be removed.

What I think might be the most relevant bit with regards to your DDad is that within 3 to 4 weeks of seeing the GP, my cyst became very, throbbingly, painful, and very pinky red, which was creeping past just the circumference of the actual cyst. It looked a lot like your DDad's lesion (sorry if that is the wrong term to use when it hasn't been identified yet), except that mine was a bit more like a regular roundish shape. It became so painful one evening that my DH took me to A&E at our localish hospital. I had the usual wait to be seen by the triage nurse, but as soon as she saw it she offered me painkillers (which I didn't need as I was already on Morphine and Codeine tablets for my other conditions, which help keep most of my pain within acceptable boundaries, but doesn't touch the pain when I get stabbing pains due to neuropathy in my feet!), but even my painkillers, including my usual 50mgs of Amitriptyline for neural pains, did absolutely nothing for the pain caused by my infected cyst.

The nurse took my temperature and checked my blood pressure, and then sent me straight for blood tests, and ECG. I was then seen very quickly by a Dr, who started me on antibiotics straight away - intravenously at first - and wanted to admit me, and to operate on the cyst as soon as the antibiotics had reduced the infection. However beds were, as usual, very hard to come by, I didn't want to be admitted anyway, and they were convinced when I told them about all the other medical and service equipment I would need to bring in, or have them provide for me on the ward. So after making an appoinment for me to come back for my little operation, and giving me enough oral antibiotics to take until I had the op, they let me go home after I had spent a few hours on the intravenous antibiotics. They also wouldn't let me have the operation under a local anaesthetic - which I almost begged for - because apparently it would have still been too painful, so I had to have a general anaesthetic.

I'm sorry if I am giving you useless information, that isn't relevant to your DDad at all, I was just trying to show you how important it could be if his lesion is infected. Quite frankly I am appalled at how the nurse treated, or rather didn't treat, your poor Dad. I just hope that he wasn't in anywhere near the amount of pain I was in, as it is almost unbelievable that considering your Dad has a Dementia and therefore couldn't reliably tell the nurse how much pain he was in, that the nurse didn't do any of the obvious, usual, and necessary tests that she could have easily done at the surgery. IMO and above everything else, as soon as she saw 'that' on your Dad's back, she should have called a Dr in to see it. If whatever it is, is infected, it needs treating straightaway, and not waiying 2 weeks for an appointment with a dermatologist, or anyone else.

I am so upset and cross on behalf of both your DDad and you. I hope, and will pray, that you both get the best outcomes for each of you, the bear minimum being that your Dad is without pain very soon - hopefully by the use of painkillers, and antibiotics, if he does have an infection.
💐💐💐

Vive42 · 22/05/2024 07:56

The nurse has done the very minimum. Disappointing when you consider what your poor Dad is going through.

The standard of care in this country is appalling. The lowest of the low.

AliceMcK · 22/05/2024 08:13

MsFaversham · 21/05/2024 18:19

My nurse practitioner has called in the doctor when I had a tricky problem. In my hospital the blood tests come back the same day, I get them on my app and my GP can see them too.

Agree, happens at our surgery all the time.

marmaladeandpeanutbutter · 22/05/2024 08:45

I think the nurse should have involved a doctor. Inappropriate in my view.

TheShellBeach · 22/05/2024 10:10

marmaladeandpeanutbutter · 22/05/2024 08:45

I think the nurse should have involved a doctor. Inappropriate in my view.

Why?

A doctor on this thread has said that the nurse's actions were appropriate.

toomanytonotice · 22/05/2024 10:21

marmaladeandpeanutbutter · 22/05/2024 08:45

I think the nurse should have involved a doctor. Inappropriate in my view.

the nurse did involve a doctor. A dermatologist who will see the patient asap.

they could have dragged the gp in, to make the same referral to a dr, but why waste everyone’s time?

it’s not a “tricky” issue, and it’s not the bare minimum. We all know it need seeing by a specialist, which is exactly what’s been done. Still not good enough for mumsnet though.

i am willing to bet the referral was accompanied by a note saying the more professional equivalent of “you need this in NOW”. I have worked triage before and even “just” as a first aider I can spot an “oh crap” referral over a “just being cautious” referral. There are ways to draw attention and get something prioritised without panicking the patient.

Penguinfeet24 · 22/05/2024 10:36

Unfortunately the two week pathway is an urgent referral :/ The NHS is just falling apart now - I've just taken out private healthcare for instances just like this, waiting two weeks when I had a breast lump was agonising beyond belief so I get how worried you are :( You are doing all you can at this stage though, you can do no more now.

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