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I'm so miserable - life advice please

81 replies

JunkBasket · 29/04/2024 16:41

I'm sat here crying (a common occurrence) because I am so frustrated and fed up with my life and I just don't know where to begin in sorting things out.

I don't work and haven't for over 10 years due to initially taking time off when the kids were tiny, and then discovering that my eldest is autistic after he started refusing school. There's nothing I can do about this now - I've campaigned the school, local authority, MP, government etc and there's no suitable placement for my child so consequently he's at home with me. He has some work sent virtually and although it's not a lot, it takes an awful lot of time and effort to get him to complete it. I find this stressful and time consuming. He also has various different appointments to attend on a regular basis that are an hours drive away which takes up another big chunk of time. Everything else I do with DC is extremely stressful as he struggles with lots of things, not independent etc.

DH works full time running his own business. He tends to go to work later than average (9-9-30am) and consequently gets home around 7 by which point we've eaten. He then showers, eats dinner and puts youngest DC to bed and always falls asleep doing so.
He does the dishwasher about 50% of the time. Apart from cutting the grass and putting out bins this is the only household chore he does.

He also occasionally travels for work so can be away from a few days to a week at a time. This is rare but obviously everything falls to me during this time.

I am also a partner in the business but I do a minimal amount of work (few hours a week).

I do all other household chores (laundry, cooking, cleaning, food and clothes shopping, appointments etc)

I have absolutely NO other regular help and never have done. My kids have never stayed overnight at a grandparents for example. I could count on one hand the amount of times the GPs have looked after the kids. DM has said she could help out IF I get a job but she can only do two certain days so I'm limited.

DH has also broached the subject of his elderly mother coming to live with us in a few years as she can no longer manage on her own. He relies on me and takes it for granted that I will do a lot of things for him - he's assured me that her care would not fall to me but I just know that it would end up that way. I don't mean to be heartless but this would break me.

I'm giving you all this info because I'm desperately miserable. I'd love to be able to be going out to work and earning a decent amount of money, as well as having that sense of achievement but I don't have anyone that I can leave my kids with. It feels really unfair to me that DH goes to work and enjoys it whilst I feel like I'm stuck in a prison at home. I have brought this up with him multiple times and he has said I should get a job - my issue is that I have no real skills to put on my cv. I worked in multiple admin roles before having children so I've no "career" to return to.

Well done if you've got this far, any ideas on what to do/where to go from here?

OP posts:
andjustlikethat1 · 29/04/2024 16:45
Flowers
stayathomer · 29/04/2024 17:00

You obviously need to get out more but while work seems like the solution, it doesn’t really make sense due to your son, op when I went back to work and we had issues with children being sick or not wanting to go in it was a living hell, both of us saying’well I can’t stay home’ and both getting into trouble with work. When we added childcare it was even worse as they can’t take them when they’re sick anyway!

I don’t know what to say, perhaps you need to make a list of what is making you unhappy, would a one or two day pt job do it for you? Do you just need to get out more, as in more freedom, go for walks wtc? Join a woman’s shed or something? Swimming? Is your dh 7 days a week? Are you ultimately unhappy because you’re worrying all the time about your ds? Can you get more help for him through school?

The one thing is your dh should help more but pin the other side of it you need to see if he falls asleep that early he must be wrecked so I’d say he’s not as happy as you think x (But he needs to help x)

Sorry I’m not better, hopefully someone helpful pops in soon.

TwigTheWonderKid · 29/04/2024 17:01

How old is your son who has autism OP?

And what kind of business does your husband run?

LoraPiano · 29/04/2024 17:04

Hugs @JunkBasket. Maybe not the advice you are looking for, but have you spoken to your GP? Sometimes depression makes us stuck, and sometimes it is peri. Maybe some medicine will help you see a path forward and stop feeling stuck?

Maddy70 · 29/04/2024 17:08

None of what you or your husband are doing is unreasonable and its fair that you take the lions share of the household as you are not working. What isn't fair is you feel like you have no life. You need to meet with friends have some laughs.

You need a schedule which allows fun !

JunkBasket · 29/04/2024 17:13

stayathomer · 29/04/2024 17:00

You obviously need to get out more but while work seems like the solution, it doesn’t really make sense due to your son, op when I went back to work and we had issues with children being sick or not wanting to go in it was a living hell, both of us saying’well I can’t stay home’ and both getting into trouble with work. When we added childcare it was even worse as they can’t take them when they’re sick anyway!

I don’t know what to say, perhaps you need to make a list of what is making you unhappy, would a one or two day pt job do it for you? Do you just need to get out more, as in more freedom, go for walks wtc? Join a woman’s shed or something? Swimming? Is your dh 7 days a week? Are you ultimately unhappy because you’re worrying all the time about your ds? Can you get more help for him through school?

The one thing is your dh should help more but pin the other side of it you need to see if he falls asleep that early he must be wrecked so I’d say he’s not as happy as you think x (But he needs to help x)

Sorry I’m not better, hopefully someone helpful pops in soon.

Thank you, yes I think you're right - I just need more freedom and it would be a nightmare sorting childcare but I would really like to think that my DH would take up some of the slack/reduce his hours slightly.
I think I would also like to have some responsibility for the earning of money, crazy as that may sound?!

I think it's the nagging feeling that his life seems on the whole quite relaxed/enjoyable and mine is stressful and I'd like to see a better balance.

Thank you for such a kind response. I will have a think about some things I could be doing outside of the home.

OP posts:
JunkBasket · 29/04/2024 17:14

TwigTheWonderKid · 29/04/2024 17:01

How old is your son who has autism OP?

And what kind of business does your husband run?

He is 14.

I'd rather not say the nature of my husband's business as it's quite niche and would out me.

OP posts:
Freakinfraser · 29/04/2024 17:17

I also don’t feel your husband is being unreasonable on th4 chores work front, although I do om his mother coming to stay I’d put my foot down there.

the core of the issue is you’ve no career or skills to fall back on so any care you can get will likely be way more than you earn. Financially could you all afford that?

Freakinfraser · 29/04/2024 17:18

JunkBasket · 29/04/2024 17:14

He is 14.

I'd rather not say the nature of my husband's business as it's quite niche and would out me.

Does he not go to school at all?

Drippingtaps · 29/04/2024 17:18

I’ve got two kids who are autistic and I work four days a week. I’m thinking of leaving as I’m absolutely exhausted. Youngest child is 11 and is very high needs (mental age of a 1 year old). Working has added so much more stress to my life due to the demands. I like bringing in money but 95% of the time, I’m super stressed.

Does your son have an ehcp?

FortunataTagnips · 29/04/2024 17:20

I’m so sorry, OP - that sounds shit. Can your son be safely left at home during the day? If so, I second PPs’ suggestions of carving out some time for yourself, to pursue your own interests.
If he can’t be left, then you really should be receiving some respite hours from your LA. Is this something you’ve looked into?

JunkBasket · 29/04/2024 17:20

LoraPiano · 29/04/2024 17:04

Hugs @JunkBasket. Maybe not the advice you are looking for, but have you spoken to your GP? Sometimes depression makes us stuck, and sometimes it is peri. Maybe some medicine will help you see a path forward and stop feeling stuck?

Thank you.

I was on medication for 10 ish years but it really didn't make much difference to the negative emotions, only numbed the happy ones. I actually feel better having come off it!

I've also had over a year of therapy which was just me going round in circles and never coming to any conclusive answers. She basically said that a lot of my issues are down to "outside influences".

After going through everything with my DS I do think I am also neurodivergent but I am reluctant to go back to the GP as I am worried they will think I'm jumping on the autism/adhd TikTok bandwagon 😔. I'm concerned they will turn me away as I know waiting lists to be assessed are 3years long.

OP posts:
NoCloudsAllowed · 29/04/2024 17:20

Book yourself a weekend away, let dh take care of home.

Basic human needs are socialisation, access to green space, exercise, a sense of challenge, good food, good sleep. Do you get these? Sounds like you're stuck in a rut and feeling underappreciated.

Make a schedule of how you meet those needs. Why does dh start work that late - can he come back at a time that lets you go out one night a week? Yoga class, evening class etc. even just a walk in a park would help.

Son is 14 - what happens past gcse age? When does this intensive dependency change, would he ever go to college? What do local authorities say about care once he's past school age? Would he need this? It's only a few years away, you could start planning now about what you'll do when the homeschooling is done with.

Alphabet1spaghetti2 · 29/04/2024 17:22

Tough love here.

  1. you say you haven’t worked in 10 years ….. erm excuse me but you do have three jobs. A) full time carer B) Running the household - admin and organisational skills. Plus teaching you child schoolwork. C) you work part time in your dh business - please say you get paid for this!

so yes, you do have a lot of worthy skills to put on a cv if you so wish. DO NOT forget just how much you do.

Are there any groups you and your son could attend for companionship, enjoyment and just to have some alternative adult company?

JunkBasket · 29/04/2024 17:22

Maddy70 · 29/04/2024 17:08

None of what you or your husband are doing is unreasonable and its fair that you take the lions share of the household as you are not working. What isn't fair is you feel like you have no life. You need to meet with friends have some laughs.

You need a schedule which allows fun !

I work a few hours a week in the business, as well as tutoring my son for many hours a day as well as taking him to hospital and therapy appointments on a weekly basis. I don't have time to do the lions share on my own.

OP posts:
Katiemc15 · 29/04/2024 17:23

Could you look into a local support group for other parents of kids like your son? It sounds like you need support and a social outlet.

JunkBasket · 29/04/2024 17:23

@Freakinfraser No he doesn't go at all

OP posts:
JunkBasket · 29/04/2024 17:24

Freakinfraser · 29/04/2024 17:17

I also don’t feel your husband is being unreasonable on th4 chores work front, although I do om his mother coming to stay I’d put my foot down there.

the core of the issue is you’ve no career or skills to fall back on so any care you can get will likely be way more than you earn. Financially could you all afford that?

No we couldn't afford it

OP posts:
Freakinfraser · 29/04/2024 17:24

JunkBasket · 29/04/2024 17:23

@Freakinfraser No he doesn't go at all

Can you look to get him into a school that would cater for his needs?

JunkBasket · 29/04/2024 17:24

Drippingtaps · 29/04/2024 17:18

I’ve got two kids who are autistic and I work four days a week. I’m thinking of leaving as I’m absolutely exhausted. Youngest child is 11 and is very high needs (mental age of a 1 year old). Working has added so much more stress to my life due to the demands. I like bringing in money but 95% of the time, I’m super stressed.

Does your son have an ehcp?

We aren't in England so EHCP isn't a thing here

OP posts:
JunkBasket · 29/04/2024 17:25

Drippingtaps · 29/04/2024 17:18

I’ve got two kids who are autistic and I work four days a week. I’m thinking of leaving as I’m absolutely exhausted. Youngest child is 11 and is very high needs (mental age of a 1 year old). Working has added so much more stress to my life due to the demands. I like bringing in money but 95% of the time, I’m super stressed.

Does your son have an ehcp?

Sorry to hear you are so exhausted. I can only imagine 😩

OP posts:
sunflowerfan · 29/04/2024 17:27

Is the work being sent for your son to do actually useful?
Would your's and his time be better spent doing something else?

JunkBasket · 29/04/2024 17:27

FortunataTagnips · 29/04/2024 17:20

I’m so sorry, OP - that sounds shit. Can your son be safely left at home during the day? If so, I second PPs’ suggestions of carving out some time for yourself, to pursue your own interests.
If he can’t be left, then you really should be receiving some respite hours from your LA. Is this something you’ve looked into?

He can be left for short periods - not really long enough to do anything meaningful. I have to prompt him to do everything - clean teeth, get up, eat breakfast, do work, come out for a walk to get exercise. It all takes up a lot of time as he struggles with executive functioning, so not a lot of time left for me.

OP posts:
Katiemc15 · 29/04/2024 17:28

Could you go and speak to your GP? They may be able to recommend some practical supports, put you in touch with some useful contacts and you’ll likely feel better just for having spoken to someone

JunkBasket · 29/04/2024 17:29

FortunataTagnips · 29/04/2024 17:20

I’m so sorry, OP - that sounds shit. Can your son be safely left at home during the day? If so, I second PPs’ suggestions of carving out some time for yourself, to pursue your own interests.
If he can’t be left, then you really should be receiving some respite hours from your LA. Is this something you’ve looked into?

Not looked into respite but our LA is notoriously shit. A bunch of corrupt shysters.

OP posts:
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