Hypermobility - when did you know

[Smartiepants79]

If you or your child are hyper mobile can you tell me when it was diagnosed? What age and what symptoms. Thanks

I was 50. Terrible stiffness and pain in my ankles. I had always felt my ankles and knees slipping out of place but didn't realize it was unusual until I eventually saw a podiatrist. He was astounded and horrified by how far I could bend my ankles and compared mine to his.
I'd honestly thought everyone was the same.

When dc sustained an injury, the nature of the injury meant that the specialist tested him for hyper-mobility. Dc was about 15 at the time and prior to that had just seemed to be a bit clumsy, plus handwriting has always been poor.

DD was assessed by a physio as a baby (for a different issue), and found to be hypermobile.

I suspect I am to - I’m very bendy and badly co-ordinated.

A visit to an osteopath promoted my diagnosis.

Late 20s.i dislocated my pelvis just standing in a queue. I was referred to a a rheumatologist. Suddenly a lifetime if strange and unexplained injuries made sense. Clearly mine is quite severe- I had shay's assumed these were just unfortunate accidents. I now know exactly how to look after my joints and as long as I maintain it they are Consuderably better.

My dd was around 9, we noticed that her foot slightly turned in. She has hyper mobility in her knees and has what I described as banana legs. The slight turn was corrected with exercises and insoles. Her diagnosis made me realise that I’m hyper mobile too.

When im wearing short sleeves people are always horrified by how far round my arms twist! My ballet teacher was concerned by how far back my knees go. If i step wrong on a non-flat surface i go over very easily. I have crutches in my house always ready

When I was a child a friend asked if I could bend my elbows backwards and when I showed her I could she said I was double jointed. I then spent my teens freaking my friends out with my bendyness (a particular favourite was bending my index finger right back so it touched the back of my hand!) but it was 'officially' diagnosed by a physio when I was in my thirties. Only really causes me issues when I have to either stand still for long periods (knees hyperextend) or press on something with outstretched fingers for too long as my fingers hyperextend (sometimes have to at work).

I was in my early 20s and my mum pointed out how weirdly my fingers were bent while I was holding a fork. I hadn't realised people's fingers don't normally bend like that.

I'm now mid 30s and just been diagnosed by a rheumatologist as joints starting to cause me a bit of bother. I scored 7 on the Beighton scale

My knees and elbows bend too far but my fingers are fine. My right shoulder pops in and out easily.
I've not been diagnosed as such but my physio has said it and my knee surgeon told me too. I have no idea if it's officially in my notes. I do yoga and danced as a kid being over flexible is not good.

I was 21 though the symptoms were obvious long before that even in childhood. When I dislocated my jaw.

And my daughter was 6 months when I noticed and 15 months when diagnosed.

My nephew was just a toddler when we noticed how weirdly flexible his hands , wrists and feet were .
Saw physios and did horse riding at their suggestion
Now in 20s still uses spoons to open ring pull cans as thumbs just bend
He's definitely had to adapt how he uses any tool instrument etc

I was 28. It was excellent to finally understand why I hurt my ankles and knees so often, and why I found hillwalking so difficult, and why I was exhausted all the time even though I was young.

I was about 10, I think. I had started violin lessons, and my fingers kept locking because they were bending backwards. My ballet teacher had always commented on my being 'double-jointed' and how I had to be extra careful with certain things, but that was the first time anyone referred to it as hypermobility.

DS1 was 4, and was referred to both physio and orthotics after a lot of leg pain.

DS2 was 6. His was less noticeable at first, but he now dislocates his knees, shoulders and wrists with alarming regularity!

My DC2 was diagnosed at about 19 months old. Still wasn't walking so was referred to physio who observed hypermobility in almost all of their joints. Started walking at 21 months but also with an issue with hip sockets. Over 2 now and still loosely under orthopaedics and is also under orthotics, wears orthotic boots which help a lot with stability and therefore fatigue/stamina.

I was 28 when i was diagnosed with EDS but both my kids started showing symptoms of EDS and hyper mobility from the age of about 4-5. One has more pain than the other and more stiffness whereas the other has more of the classical stretchy skin and double jointed party tricks but both have the same symptoms that manifest differently.

I was a teenager but it’s always been obvious. I’m very flexible and can bend the wrong way in lots of places. I also have other associated symptoms.

DD was 4 the first time she went on a trampoline and her knees were agony after only minutes. She saw a physio who diagnosed hypermobility but as she started puberty, she had a host of other symptoms appear and a consultant who did surgery for one of the new issues suggested it was actually EDS. By then, her hip, jaw and ribs were subluxating/slipping.

DS started gymnastics as a toddler and they noticed very quickly and asked us to check with a GP that he was safe to continue. He stopped soon after and started swimming instead.

We then retrospectively realised that now 40yr old DH had eds as well.

I was 7, but back then it was known as double jointed, as others have said, i too could do all sorts of wonderous tricks..
Now at 60 i have real problems with my joints, i've gone over on my ankles more often then i can count, and the cartilage has all but gone in my ankles, due to my wobbliness.
I had physio for a while, but eventually my rheumatologist said there wasnt anything more she could do... my consultant wanted to fuse my left ankle, but i decided against as it would cause problems elsewhere (hip and back)
I can no longer drive and no longer trust my knees with walking up and down stairs, even walking most days is painful.
My podiatrist advised me to wear lace up boots, to support my ankles, which i have to do even in Summer nowadays!
Its a bloody nightmare.

My son was about 10 and it was his terrible handwriting, he has a strange grip on his pen because of weakness in hands

Dts at 11.

Age 4 - DS walked late, multiple visits to GP as I knew something was 'wrong', couldn't climb in parks, complained of being tired after walking, feet so flat that inside ankle bone on the floor, dislocated elbow a few times. Lots of physio improved things, along with orthotic insoles and boots.

I have written 'hypermobile, tires easily, more prone to dislocations, does not prevent any activities' more times than I care to remember. It's a bit of a lie about the not preventing activities though, as he was advised not to play rugby/contact sports, he's not good at running, and his handwriting is slow and impaired - those weird thick pens help.

Teenager now and luckily not got any worse, as was warned he could be in a wheelchair in 20's.

ETA and constipation - even gut action is relaxed

21, I have hEDS. I have to assume doctors noticed before that given the extent of my hypermobility just no one ever bothered to think it was worth mentioning.

Suspected when DD5 started W-sitting, I think this must have been when she was 1. Diagnosed by the paediatrician at 2.2 as she was referred due to not walking. Eventually walked consistently inside and out from 2.8 (before this just steps indoors). She can now walk/run/ride a scooter and so on but does experience pain in her legs/feet/ankles, particularly after lots of physical activity, also, when it's cold. When we were at paeds, they gave my legs a poke and said I was a bit hypermobile, I've known my arms bend the wrong way since I was a teen. It's not every joint though.

I've read hypermobility is common in children diagnosed with autism. Also tall and very slim children. All of this is DD.

I was about 40. I had awful foot pain.