Hypermobility - when did you know

[Smartiepants79]

If you or your child are hyper mobile can you tell me when it was diagnosed? What age and what symptoms. Thanks

I was told this when my son was diagnosed some 10y ago by the threumatologist at GOSH. Apparently they think there is some sort of colocated genetics for collagen mutations that give the collagen variations that lead to stretchy skin and ligaments and anxiety disorders. Certainly my son is the 'sensitive one' in the family and I also suffer from sleepless nights, stress etc.

Just to add, There is a known link between EDS and Autism.

Almost 100% sure she doesn’t have adhd or asd of any kind.
She has been diagnosed epileptic in the last 12 months (a real shock) but there are no other concerns.

Sorry to hijack the thread for a minute but I've been reading the thread with interest, so while people knowledgeable about hypermobility are assembled can I ask if you would say this is a backwards bending elbow? (Sorry I know it's hard to tell from a bad photo).

If it is then I think I score six on the beighton scale.

My joints have been hurting and clicking for ages now, I thought it was just age (I'm 43) and I've always been quite bendy.

Is there any point in trying to get a diagnosis of hypermobility? Is there anything a doctor could actually do for me?

DD used to fall quite a bit but ran everywhere so we put it down to that. We had a few incidents where she seemed to hurt herself badly and refused to move her arm or leg or whatever but recover quite quickly at A&E ( where we were frequent visitors). It was hinted at a couple of times that one of us may have handled her a bit roughly She broke her ankle aged 5 and didn't recover well and we saw several physios, both NHS and Private and visited our GP several times as well as speaking to Health Visitors, school Nurses etc.
I was really concerned but everyone out it down to me being PFB or worse and I managed to make an appointment with a semi retired GP who had done all my AN care and who I really trusted. I explained everything and she asked me if I or anyone else in my family was very "bendy" I said that both myself and my Mum were and then diagnosed DD with Hypermobility and everything fell into place I think DD was 6 by this point.
We didnt get much help but it was a starting point and we managed to get more effective physio and when DS came along we knew what to look out for and could take preventative measures. The Dc are 18 and 14 now but their Hypermobility rarely bothers them and its much better understood these days.

I've never been officially diagnosed, but both husband and I are definitely hypermobile. I was taken to doctor several times as a child, as my knees used to sublux (pop out) regularly, and the pain was excruciating, but the doctors were dismissive. At a rotund 55 I can still put my hands flat when touching my toes, do splits & hyperextend my knees & elbows. Main problem is knee pain after being on my feet, though I am clumsy, and sleep with cushions to support my knees & shoulders.
All 3 kids have it, 2 are also autistic. DD diagnosed by paediatrician age 7 after spraining ankles repeatedly; she's a Beighton 8. It's helpful to be sympathetic to the pain they feel, to encourage the right sports & exercises to support their joints and to be able to alert school to potential problems.

DC2 was officially diagnosed at 15 months after the GP made a referral at 12 months because DC2 couldn't sit up by themselves. Physio aged 2, various injuries from tripping over nothing have resulted in hospital visits, stitches and broken limbs as well as nerve damage. Any sport involving running or changing direction rapidly tends to lead to injury but as walking can cause knee caps to sublux, it's not always easy to identify which things will be a problem. DC2 now uses a laptop at school all the time and will do so for GCSEs because of the pain and fatigue. They need an upright mouse and flat profile keyboard though, not a regular one with a mouse pad as that involves too much stretch.